Social participation of persons affected by leprosy in an endemic district, West Bengal, India

Govindharaj, Pitchaimani; Srinivasan, Sampathkumar; Darlong, Joydeepa

doi:10.47276/lr.90.1.105

Cited by 14 publications

(20 citation statements)

References 9 publications

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“…This finding is concordant to a study by An et al [21] which found that severe leprosy form affects QoL adversely. This finding is also concordant to a study by Govindharaj et al, [25] stating duration of illness affected physical domain of QoL thus reducing QoL adversely. Non-reaction had higher QoL in all domains compared to reaction, regardless in the form of RR or ENL, and there were no significant differences between RR and ENL regarding QoL in all domains.…”

Section: Discussionsupporting

confidence: 92%

Prediction of leprosy patient’s quality of life from clinical characteristics

Teng¹,

Esti²,

Komarasari³

2021

Int. J. Dermatol. Venereology Leprosy Sci.

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Background: Leprosy is one of the chronic skin infection which shares long term impact. It might cause permanent disability, and treatment might take longer before the patient completely recovered. These possibilities highly affect the quality of life (QoL). Methods: A retrospective cohort study was conducted in the outpatient department of leprosy, in Sitanala Hospital, Tangerang, Indonesia. A total of 102 patients' QoL were assessed by Indonesian version of WHOQOL-BREF and sociodemographic and clinical course data were collected from medical records. P-value smaller than 0.05 is appraised as statistically significant. Results: Low income was related to worse leprosy form (lepromatous leprosy type) and immune reaction (erythema nodosum leprosum). QoL scores could be predicted by form of leprosy, immune reaction, impairment grade, and duration of illness. Conclusions: QoL scores in patients with leprosy could be predicted by illness characteristics and duration of illness, whereas forms of leprosy predicted all domains of QoL.

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Section: Discussionsupporting

confidence: 92%

Prediction of leprosy patient’s quality of life from clinical characteristics

Teng¹,

Esti²,

Komarasari³

2021

Int. J. Dermatol. Venereology Leprosy Sci.

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“…Studies from India suggest that physical disabilities do affect the quality of life (Govindharaj et al, 2018) and social participation (Ramasamy et al, 2018;Govindharaj et al, 2019;Ramasamy et al, 2019) of people affected by leprosy. The present study demonstrated that people who had visible impairments (grade 2 disability -60%), experienced more activity limitation compared to those respondents who had only loss of sensation (grade 1 -30%).…”

Section: Discussionmentioning

confidence: 99%

Activity Limitation of People Affected by Leprosy in an Endemic District in West Bengal, India

Govindharaj

Srinivasan

Darlong³

2020

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Purpose: This study aimed to assess the level of activity limitation, and the factors associated with it, among people affected by leprosy who were reporting at a leprosy referral centre of Purulia, in West Bengal state, India. Method:A cross-sectional study was conducted among 358 individuals affected by leprosy. Persons recruited for this study were above 18 years of age, married, and had been diagnosed with leprosy for at least 1 year at the time of the interview. A semi-structured questionnaire was used to gather information about the respondents' socio-economic and disease status. The Screening of Activity Limitation and Safety Awareness (SALSA) Scale was used to measure activity limitation.Results: Of the 358 respondents, 59% were male, 60% were between 18 and 45 years of age, and 42% were illiterate. About 144 or 40% of the respondents had Grade 2 disability and 60% had disease duration of more than 3 years. There were 229 individuals (64%) who had no limitation in activities, 103 (29%) had mild limitation and 26 (7%) had moderate to severe limitation in activities. There is a significant association between gender, age, occupation, physical disability and disease duration with activity limitation. Conclusion:It appears that limitations in activities among persons affected by leprosy are associated with being a woman, a housewife, an aged person, and with longer disease duration. The physical disability was intrinsically associated with limitation in activities.

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“…After the full-text analysis, we included 47 articles. 23 from Brazil [ 11 – 33 ], 6 from India [ 34 – 39 ], 3 from China [ 40 – 42 ], 2 from Bangladesh [ 2 , 43 ] and Comoros [ 44 , 45 ]. One from Cambodia [ 46 ], Sri-Lanka [ 47 ], Cameroon [ 48 ], Venezuela [ 49 ], Bangladesh and Thailand [ 50 ], Indonesia [ 51 ], Argentina [ 52 ], and Uganda [ 53 ].…”

Section: Resultsmentioning

confidence: 99%

Measuring endemicity and burden of leprosy across countries and regions: A systematic review and Delphi survey

et al. 2021

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Background Leprosy is a chronic infectious disease caused by Mycobacterium leprae, the annual new case detection in 2019 was 202,189 globally. Measuring endemicity levels and burden in leprosy lacks a uniform approach. As a result, the assessment of leprosy endemicity or burden are not comparable over time and across countries and regions. This can make program planning and evaluation difficult. This study aims to identify relevant metrics and methods for measuring and classifying leprosy endemicity and burden at (sub)national level. Methods We used a mixed-method approach combining findings from a systematic literature review and a Delphi survey. The literature search was conducted in seven databases, searching for endemicity, burden and leprosy. We reviewed the available evidence on the usage of indicators, classification levels, and scoring methods to measure and classify endemicity and burden. A two round Delphi survey was conducted to ask experts to rank and weigh indicators, classification levels, and scoring methods. Results The literature review showed variation of indicators, levels, and cut-off values to measure leprosy endemicity and/or burden. The most used indicators for endemicity include new case detection rate (NCDR), new cases among children and new cases with grade 2 disability. For burden these include NCDR, MB cases, and prevalence. The classification levels ‘high’ and ‘low’ were most important. It was considered most relevant to use separate scoring methods for endemicity and burden. The scores would be derived by use of multiple indicators. Conclusion There is great variation in the existing method for measuring endemicity and burden across countries and regions. Our findings contribute to establishing a standardized uniform approach to measure and classify leprosy endemicity and burden at (sub)national level, which would allow effective communication and planning of intervention strategies.

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Social participation of persons affected by leprosy in an endemic district, West Bengal, India

Cited by 14 publications

References 9 publications

Prediction of leprosy patient’s quality of life from clinical characteristics

Prediction of leprosy patient’s quality of life from clinical characteristics

Activity Limitation of People Affected by Leprosy in an Endemic District in West Bengal, India

Measuring endemicity and burden of leprosy across countries and regions: A systematic review and Delphi survey

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