Social support and adaptation outcomes in children and adolescents with cerebral palsy

Applying a developmental approach to quality of life assessment in children and adolescents with psychological disorders: challenges and guidelines

“…One recommendation is to use different age versions of the same instrument [9], as is the case for the three forms of the KINDL questionnaires [96]: KINDL-Kiddy (4-7 years), KINDL-Kid (8-12 years) and KINDL-Kiddo (13-16 years). Another option is to complement QL measurements based on common markers with supplemental assessments that account for the most age-specific aspects [98]. Although the latter suggestion may be fairly easy to implement in clinical practice (by gathering additional information from clinical interviews, for instance), for more formal assessments, such as those required in research, the development of age-specific modules may be pertinent.…”

“…Likewise, the analysis of age as a correlate or predictor, though useful for examining or even discriminating its effects on QL outcomes, does not facilitate a practical translation of empirical research results into pedopsychiatric clinical practice, where age groups may be used to differentiate screening routines, the allocation of resources and service delivery. In fact, a developmental approach to QL assessment in this context would call for age-group analyses even at the level of psychometric examinations [98], which should be preliminary to any other analysis. This is particularly noteworthy not only because common QL dimensions may encompass different features in the daily life experiences of school-aged children and adolescents (e.g., family relationships, school functioning) [93] but also because the psychometric quality of broadband QL measures may differ across the two age groups [98].…”

“…In fact, a developmental approach to QL assessment in this context would call for age-group analyses even at the level of psychometric examinations [98], which should be preliminary to any other analysis. This is particularly noteworthy not only because common QL dimensions may encompass different features in the daily life experiences of school-aged children and adolescents (e.g., family relationships, school functioning) [93] but also because the psychometric quality of broadband QL measures may differ across the two age groups [98]. However, the definition of these age groups is not straightforward.…”

Do Clinical And Psychosocial Factors Affect Health-Related Quality of Life in Adolescents with Chronic Diseases?

“…Wang, Y. Wang, L. B. Wang, Xu, & Zhang, 2012;Zashikhina & Hagloff, 2014), severity of the disease (Mellion et al, 2014;Vanhalst et al, 2013;Zashikhina & Hagloff, 2014), school absence (Cortina et al, 2010;Haverman et al, 2012) and illness perception (Williams et al, 2013). In addition, non-disease factors were also considered determinants for HRQoL, namely anxiety/depression (Velasco, Martín, Díez, Pérez, & Amigo, 2012), gender (Williams et al, 2013;Zashikhina & Hagloff, 2014), age (Alba et al, 2013;Moreira et al, 2013;Zashikhina & Hagloff, 2014), socioeconomic status (Herzer et al, 2011;Zashikhina & Hagloff, 2014), quality of peer relationship (Rassart et al, 2012), social interaction/social support (Carona et al, 2014;Elsenbruch et al, 2013;Vanhalst et al, 2013) and parents' support (Békési et al, 2011;Williams et al, 2013). …”

“…However, living with chronic disease in adolescence still have a significant high risk for poor Quality of Life (QoL) and health-related quality of life (HRQoL) (Alba et al, 2013;Elsenbruch, Schmid, Lutz, Geers, & Schara, 2013;Mellion et al, 2014), particularly in psychological functioning (Moreira et al, 2013;Santos, Matos, Simões, & Machado, 2015;Williams, Sharpe, & Mullan, 2013) and social dimensions (Carona, Moreira, Silva, Crespo, & Canavarro, 2014;Compas, Jaser, Dunn, & Rodriguez, 2012). HRQoL is generally conceptualized as a multidimensional psychological construct including physical, mental, social and spiritual areas of life and general well-being (Eiser & Morse, 2001;Ravens-Sieberer et al, 2001;2005).…”