Sociologie du cancer

Derbez, Benjamin; Rollin, Zoé

doi:10.3917/dec.derbe.2016.01

Cited by 48 publications

(14 citation statements)

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“…Our results, however, contrast about the impact that this gap has. In the literature, the higher socio-economic status of associations' representatives is often considered as a facilitator that gives them access to more effective repertoires of collective action and increases their chance to succeed (Derbez & Rollin, 2016). Conversely, our results raise the question of whether the higher socio-economic status of the associations' representatives has not weakened their capacity to build a collective illness identity.…”

Section: Little Resources Coupled With a Fragmented Basementioning

confidence: 53%

“…These two priorities reveal a collective mobilisation that was only partially connected to patients' experience. This is a crucial difference compared to other health movements that built their collective identity on patients' experience and understanding of their illness from the very beginning of their mobilisation, for example those addressing HIV/AIDS (Epstein, 1996) and cancer (Derbez & Rollin, 2016) in Northern countries. define them as 'embodied health movements', since the embodied experience of patients played a central role in framing what they call 'a politicised collective illness identity' (P. Brown et al, 2004, p. 60).…”

Section: A Fight For Medical Services More Than Against Broader Socia...mentioning

confidence: 99%

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What has been preventing the emergence of a broad social movement on diabetes (and NCDs)? Insights from the mobilisation of diabetes patients' associations in Bamako, Mali

Martini¹,

Traoré

Mahieu³

2021

Global Public Health

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Non-communicable diseases (NCDs) are among the leading causes of morbidity and mortality globally. While international strategies for their prevention and control call for greater civil society participation, many observers regret the lack of a broad social movement to address these diseases. This study focuses on diabetes patients' associations engaged from 1991 to 2014 in Bamako, Mali, and explores what factors influenced their capacity to build a collective national movement to address this disease and shape policy reforms in this area. Our findings show that the emergence of such a movement was limited by several constraints. The focus of diabetes patients' associations on technical biomedical issues silenced the daily embodied experience of patients and reduced the use of human-rights approaches. Moreover, few financial, material and social resources coupled with a fragmented base limited the scope and strength of claims made by patients' associations to obtain treatment at reduced coasts. Finally, modes of actions performed failed to challenge more structural inequalities and imbalances of power.Exacerbated by limited political opportunities, these constraints weakened the associations' ability to drive policy change on diabetes. They reflect some of the current weaknesses of the global mobilisation to address diabetes and NCDs.

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Section: Little Resources Coupled With a Fragmented Basementioning

confidence: 53%

Section: A Fight For Medical Services More Than Against Broader Socia...mentioning

confidence: 99%

What has been preventing the emergence of a broad social movement on diabetes (and NCDs)? Insights from the mobilisation of diabetes patients' associations in Bamako, Mali

Martini¹,

Traoré

Mahieu³

2021

Global Public Health

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“…[11] Cancers, whether of gynecological or urogenital origin, and their invasive treatments are often responsible in patients for sexual disorders associated with significant psychological and social distress with an impairment of their quality of life. The majority lifestyle [12] of cancer patients is an important parameter for sexual life that also affects the private domestic sphere. Hence the importance of the role of the Dar Zhor association, which highlights the joint efforts of life and earth sciences, promotes dialogue, support, and awareness for a better understanding and to break taboos and reduce the stigma associated with sexuality in the context of the disease.…”

Section: Discussionmentioning

confidence: 99%

Social representations about sexuality after cancer: A sociological perspective integrating life and earth sciences

El Ghali,

Borj

2023

E3S Web Conf.

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Cancer and sexuality are two complex and intimately linked fields that give rise to different social representations, influencing the way their sexualities are approached. People with cancer may face challenges that influence their sex lives due to the adverse effects of the disease and its treatments. And because of alterations in identity, body image and taboos surround their sexualities. These factors can contribute to negative perceptions about sexuality in cancer patients. It is essential to understand and recognize the various social representations in order to provide adequate support to people with dementia, while integrating a mixed methodology, through life stories with people with dementia, as well as questionnaires dealing with the sexuality axis. Stereotypes, prejudices, and social norms can contribute to stigmatization of these patients, and to the reinforcement of taboos, which can limit open discussion about sexuality during and after cancer and the enjoyment of a fulfilling and pre-cancer life. For an in-depth study of sexuality and cancer, it is imperative to adopt a multidisciplinary approach and collaboration between the social sciences, life sciences and earth sciences, through a sociological perspective.

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“…Elles développent aussi des actions sur le plan social pour une meilleure (ré)insertion professionnelle des patients par exemple. Cet activisme dans le domaine du cancer est plus tardif et plus modéré qu'aux États-Unis où les collectifs se mobilisent dès les années 1970 pour faire pression sur les acteurs politiques afin que des mesures concrètes soient prises en matière de prévention, de soin ou de recherche (Ménoret, 2002(Ménoret, , 2006Gaudillière, 2002 ;Derbez, Rollin, 2016).…”

Section: Des Patients Acteurs Des Politiques Publiquesunclassified

Les politiques de lutte contre le cancer en France

Knobé¹

2019

Les Politiques De Lutte Contre Le Cancer en France

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Comme par exemple : Association de défense des victimes de l'affaire du sang contaminé (ADVASC) créée en 1995 ; Association nationale de défense des victimes de l'amiante (ANDEVA) créée en 1996 ; Association des victimes de la maladie de Creutzfeldt-Jakob (AVMCJ) créée en 1997 ; Association des victimes de l'hormone de croissance (AVHC) créée en 1999. 2 Exemples : rapport Mattei (1997), Sur l'ensemble des problèmes posés par le développement de l'épidémie d'encéphalopathie spongiforme bovine ; rapport Revol et Le Déaut (1997), L'amiante dans l'environnement de l'homme : ses conséquences et son avenir. Chapitre dans « Les politiques de lutte contre le cancer en France » sous la direction de Patrick CASTEL, Pierre-André JUVEN et Audrey VÉZIAN

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Sociologie du cancer

Cited by 48 publications

References 0 publications

What has been preventing the emergence of a broad social movement on diabetes (and NCDs)? Insights from the mobilisation of diabetes patients' associations in Bamako, Mali

What has been preventing the emergence of a broad social movement on diabetes (and NCDs)? Insights from the mobilisation of diabetes patients' associations in Bamako, Mali

Social representations about sexuality after cancer: A sociological perspective integrating life and earth sciences

Les politiques de lutte contre le cancer en France

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