Source of Social Support and Caregiving Self-Efficacy on Caregiver Burden and Patient’s Quality of Life: A Path Analysis on Patients with Palliative Care Needs and Their Caregivers

Leung, Doris Y. P.; Chan, Helen Yue Lai; Chiu, PW; Lo, Regina Cheuk‐Lam; Lee, Larry L.Y.

doi:10.3390/ijerph17155457

Cited by 51 publications

(57 citation statements)

References 54 publications

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“…As hypothesized, significant correlations of the CSNAT item scores with those of the C-M-CSI and C-CGI-18 were confirmed in this study, supporting the scale’s construct validity. These findings are also consistent with published studies that measured the relationships of the same constructs among carers of palliative care patients [ 13 , 14 , 18 , 33 ]. Surprisingly, this study found that the CSNAT was not significantly associated with the SSQ-6, which was not in line with the study’s hypothesis.…”

Section: Discussionsupporting

confidence: 92%

“…The availability of tangible, informational, and emotional support might be beneficial for meeting the support needs of carers [ 42 , 43 ]. A local study has also shown that the sources of social support are important in influencing the perceived burden and needs of carers of palliative care patients, with stronger family support decreasing caregiver burden and needs [ 33 ]. Future research is recommended to examine which types and sources of social support are associated with the support needs of carers.…”

Section: Discussionmentioning

confidence: 99%

“…Each CSNAT item with external constructs, including caregiver burden, social support, and caregiving self-efficacy, was evaluated using Spearman’s correlation analyses ( r ). It was hypothesized that the CSNAT items would positively correlate with caregiver burden [ 13 , 14 ], and negatively correlate with social support and caregiving self-efficacy [ 8 , 33 , 34 ]. A correlation coefficient ≥ 0.30 supported the construct validity of the tool [ 35 ].…”

Section: Methodsmentioning

confidence: 99%

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Reliability, validity and acceptability of the traditional Chinese version of the carer support needs assessment tool in Hong Kong palliative care settings

Cheng

Leung

et al. 2021

BMC Palliat Care

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Background Among the few existing needs assessment tools for family carers, the 14-item Carer Support Needs Assessment Tool (CSNAT) is the only brief and holistic needs screening tool designed for everyday use in palliative care practices. The aim of this study was to evaluate the reliability, validity, and acceptability of the traditional Chinese version of the CSNAT in palliative care settings in Hong Kong. Methods This adopted a cross-sectional and correlation design with repeated measures. The participants were 125 family carers of palliative cancer patients and 10 healthcare providers (HCPs) that were recruited from two local hospitals. The evaluation of psychometric properties included the following: (1) content validity through HCPs including frontline physicians, nurses, social workers, and clinical psychologists; (2) construct validity between the CSNAT items and those of the validated tools that measured caregiver burden, social support, and caregiving self-efficacy; and (3) one-week test-retest reliability in a sub-sample of 81 caregivers. The acceptability of the tool was assessed by the carers using several closed-ended questions. Results The content validity index of the CSNAT at the scale level was 0.98. Each item of the CSNAT was significantly and moderately correlated with caregiver burden (Spearman’s r = 0.24 to 0.50) and caregiving self-efficacy (r = − 0.21 to − 0.52), but not for social support. All CSNAT items had fair to moderate test-retest reliability (weighted kappa = 0.21 to 0.48), with the exception of two items “managing your relatives’ symptoms, including giving medicines” and “having time for yourself in the day”. Regarding the acceptability of the CSNAT, almost all HCPs were willing to use the CSNAT for carer assessment and support. 89.6% of the carers demonstrated a comprehensibility of the CSNAT tool and 92.9% felt comfortable answering the questions. Around 90% of the carers agreed to use the tool for screening, discussing needs, and making referrals. Conclusion The traditional Chinese version of the CSNAT is a tool with high validity and acceptability and adequate reliability that measures family carers’ support needs, which should be considered for wide application in local palliative care practices.

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Section: Discussionsupporting

confidence: 92%

Section: Discussionmentioning

confidence: 99%

Section: Methodsmentioning

confidence: 99%

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Reliability, validity and acceptability of the traditional Chinese version of the carer support needs assessment tool in Hong Kong palliative care settings

Cheng

Leung

et al. 2021

BMC Palliat Care

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“…On the one hand, deeply influenced by thousands of years of traditional Eastern cultural teachings such as Buddhism, Taoism and Confucianism, filial piety and harmony have become the most important family values for Chinese people. 43 Therefore, it is not difficult to find that in China, family members (mainly the spouse and children) are almost the core caregivers of patients, taking care of all the living, psychological care and disease management during the long disease cycle. 44,45 On the other hand, the values of "Acceptance of Destiny" seem to permeate the way Chinese patients and their caregivers view health.…”

Section: Discussionmentioning

confidence: 99%

Impact of Caregiving Burden on Quality of Life of Caregivers of COPD Patients: The Chain Mediating Role of Social Support and Negative Coping Styles

Yi¹,

Jiang²,

Jia³

et al. 2021

COPD

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Purpose: Caregivers of COPD patients experience various caregiving burden, which is related to their quality of life. We aimed to explicitly explore whether social support and negative coping styles play the chain mediating roles in the relationship between the caregiving burden of caregivers of COPD patients and their health-related quality of life. Methods: We conducted a multicenter cross-sectional survey in four hospitals using a convenience sample. Participants who met the inclusion criteria completed five relevant scales, including a sociodemographic scale. One-way ANOVA and Pearson's method were used to analyze the data accordingly, and chain mediated effect values were estimated by bootstrap method to determine whether the model holds. Results: Among the 201 caregivers who participated in this study, the mean age was 55.94 years, most of them were female (61.2%), the mean caregiving burden score was 52.39 ± 14.65, and the quality of life score was 37.97 ± 3.55. Among them, age, gender, education, relationship with the patient, and the number of chronic diseases were the main factors affecting the quality of life score of the caregivers. According to Pearson results, there was a negative correlation between quality of life and caregiving burden, and negative coping styles. The model result showed that caregiving burden could directly and negatively predict quality of life, and also predict quality of life through the chain mediation of social support and negative coping styles. Conclusion:In China, caregivers of patients with COPD experience severe levels of caregiving burden and low quality of life. The combination of adequate perceived social support and lower negative coping can be effective in alleviating caregiving burden and improving their quality of life. Therefore, healthcare professionals should provide targeted guidance to caregivers with the help of social support and interventions that regulate negative coping styles.

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“…Thus, self-efficacy is tantamount to a sense of agency [ 15 ], and with respect to caregiving, self-efficacy refers to the expectancies that people have not only about their ability to competently support the patient but also their ability to execute of coping strategies, especially in relation to their tenacity in attempting overcoming setbacks and the duration of their commitment to achieve their goals. Thus, the role of self-efficacy in cancer management is crucial because expectations of caregiving efficacy are inversely related to psychological distress, physical functioning, stress, burden and burnout and positively related to benefits for the patient [ 8 , 17 ].…”

Section: Introductionmentioning

confidence: 99%

Assessment of self-efficacy for caregiving in oncology: Italian validation of the caregiver inventory (CGI-I)

et al. 2021

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Background The Caregiver Inventory (CGI), a measure of self-efficacy for caregiving that takes into account aspects of caregiving that are neglected by current measures of caregiving, was translated into Italian and validated. Methods Ninety-one caregivers from a variety of locations in Italy completed the CGI-Italian (CGI-I) as well as the Hospital Anxiety and Depression Scale (HADS) and the Family Strain Questionnaire - Short Form (FSQ-SF). Results A confirmatory factor analysis based on the original CGI factor structure resulted in an adequate fit of the CGI-I using standard fit indices. Thus, the original factor structure was validated in the CGI-I: Managing Medical Information (α = 0.87), Caring for Care Recipient (α = 0.68), Caring for Oneself (α = 0.78), and Managing Difficult Interactions/Emotions (α = 0.55). The CGI-I total score was inversely related to anxiety (HADS, r = − 0.35, p = <.05), and depression (HADS, r = − 0.45, p = <.05). In addition, the CGI-I was inversely related to caregiver stress (FSQ-SF, r = − 0.39, p = <.05). Care of Oneself and Managing Difficult Interactions/Emotions emerged as the strongest and most robust negative relationships with anxiety, depression, and caregiver stress, which replicated, with similar constructs, findings from the original CGI. Conclusions The results of this study established the CGI-I as a reliable and valid measure of self-efficacy for caregiving. This study also confirms the importance of self-care and managing difficult communication in the process of successfully navigating the demands of caregiving and in constructing interventions for caregivers who need support.

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Source of Social Support and Caregiving Self-Efficacy on Caregiver Burden and Patient’s Quality of Life: A Path Analysis on Patients with Palliative Care Needs and Their Caregivers

Cited by 51 publications

References 54 publications

Reliability, validity and acceptability of the traditional Chinese version of the carer support needs assessment tool in Hong Kong palliative care settings

Reliability, validity and acceptability of the traditional Chinese version of the carer support needs assessment tool in Hong Kong palliative care settings

Impact of Caregiving Burden on Quality of Life of Caregivers of COPD Patients: The Chain Mediating Role of Social Support and Negative Coping Styles

Assessment of self-efficacy for caregiving in oncology: Italian validation of the caregiver inventory (CGI-I)

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