Special child, special mother: the sense of strength in mothers of children with congenital zika virus syndrome

Abstract

Objectives: To understand the meanings of having a child with the Congenital Zika virus Syndrome in the experience of women and, from this, what they would say to others who find themselves in the same situation. Method: Qualitative and interpretive study, based on the Model of Resilience, Stress, Adjustment and Family Adaptation proposed by McCubbin and McCubbin. 40 mothers from different cities in the state of Paraiba took part in the study. Results: The meanings found were classified in three thematic categories: the divine force that transforms life of the mothers; patience and love, double feelings as a source of overcoming; and the sense of mother’s strength beyond the disease. Conclusion and implication for practice: Caring for a child diagnosed with Congenital Zika virus Syndrome has involved emotional, social, spiritual and economic aspects, as well as a transformation and suffering process. The experiences may contribute to the qualification of healthcare professionals who deal directly with these mothers, and possibly, favor the confrontation and adaptation of them and their families and of the new families that may come to have children with

Síndrome congênita do Zika à luz da teórica Betty Neuman: estressores familiares

“…O cuidar de uma criança com necessidades especiais de saúde para a maioria, geram alterações no âmbito físico e psicológico. (21) Betty Neuman aborda os estressores como estímulos que promovem tensões e desestabilização do sistema. É na interação com o ambiente que a estrutura básica, identificada como as famílias de crianças com SCZV, sofre a ação de estressores que geram trocas mútuas.…”

Congenital zika syndrome and family impacts: an integrative review

“…The findings show that having a child with CZS directly impacts the lives of families, especially that of mothers, leading to changes in routines and family dynamics. Overburdening, exhaustion, lack of time, and an overlap between domestic tasks and caregiving were some of the impacts highlighted by the articles 16,17,21,22,25,[27][28][29][30][31][32]35,37,38 .…”

“…This is compounded by the lack of information on the prognosis, strategies to deal with the situation, and government support. Hamad et al 38 highlight positive feelings such as patience, coping, and adaptation to an unexpected situation, while Lima et al 27 and Melo et al 15 reported will power and determination and solidarity and resilience, respectively.…”

Aleitamento Materno De Crianças Com Microcefalia No Contexto Do Zika Vírus

“…Apesar das dificuldades existentes no enfrentamento que envolve o adoecimento de um filho (24) , algumas mulheres entrevistadas demonstraram expectativas positivas para suas crianças. O cuidado de um filho com diagnóstico da Síndrome Congênita do ZikaV envolve mudanças emocionais, espirituais, sociais e familiares, e há necessidade de uma rede de cuidados para a criança e a mãe (25) .…”