Spiritual Care, Pain Reduction, and Preferred Place of Death Among Advanced Cancer Patients in Soweto, South Africa

Ratshikana-Moloko, Mpho; Ayeni, Oluwatosin; Tsitsi, J M L; Wong, Michelle; Jacobson, Judith S.; Neugut, Alfred I.; Sobekwa, Mfanelo; Joffe, Maureen; Mmoledi, Keletso; Blanchard, Charmaine; Mapanga, Witness; Ruff, Paul; Cubasch, Herbert; O’Neil, Daniel S.; Balboni, Tracy A.; Prigerson, Holly G.

doi:10.1016/j.jpainsymman.2020.01.019

Cited by 23 publications

(24 citation statements)

References 36 publications

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“…All four mutually interdependent dimensions of psychosocial needs should be considered, as neglect of anyone over time may have a detrimental effect on others and, ultimately, on overall wellbeing and QoL (Stoewen, 2017). Some studies have explored a single type of demand, such as supportive care (Chiesi et al, 2017; Maguire et al, 2013), information (Beernaert et al, 2018), or spiritual needs among people with cancer only (Ratshikana‐Moloko et al, 2020) or unmet needs among family caregivers only (Ashrafian et al, 2018; Kim & Yi, 2015). The few studies that examined the diverse needs of both individuals living with cancer and their family caregivers have focused on different components of needs.…”

Section: Introductionmentioning

confidence: 99%

Quality of life and associated factors among adults living with cancer and their family caregivers

Gabriel

Creedy

Coyne

2021

Nursing & Health Sciences

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This study examined the association of needs, health literacy, and quality of life among adult Nigerians with cancer and family caregivers. A descriptive study was conducted involving 240 adults with cancer and family caregivers attending a tertiary hospital. More than two‐thirds of participants reported moderate or high needs. Information (90.8%) and spiritual support (85%) were the domains of highest need among adults with cancer. Family/social support (85%) and spiritual support (81.7%) ranked the highest among family caregivers. A negative correlation was found between needs and quality of life. Stepwise regression analysis showed that needs and literacy explained 36% of the variance in adults with cancer's quality of life and 28% of the variance in family caregivers’ quality of life. Spiritual need accounted l for 9.5% and 9.1% of variation for adults with cancer and family caregivers, respectively. Findings suggest that interventions with a focus on social/family and spiritual needs may improve wellbeing of adults with cancer and caregivers in Nigeria. This research are generalizable to other low‐income countries where family values and spirituality are often a strong feature of daily life.

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Section: Introductionmentioning

confidence: 99%

Quality of life and associated factors among adults living with cancer and their family caregivers

Gabriel

Creedy

Coyne

2021

Nursing & Health Sciences

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“… 12 , 13 , 14 They often feel worried about their future, the influence of their treatment on their lives, the side effects of their treatment, new body pain that they may feel, and the fear that their cancer will return or get worse. 15 , 16 , 17 Indeed, cancer‐related distress and intense unpleasant emotions that interfere with functioning have been listed as common negative consequences of their diagnosis. 18 Compared with general populations, patients diagnosed with cancer are at a higher risk of psychological and mental health problems.…”

Section: Introductionmentioning

confidence: 99%

“…Their diagnosis and treatment are major stressors that contribute to serious health problems such as loss of appetite and insomnia, as well as psychological problems, such as anxiety and depression 12–14 . They often feel worried about their future, the influence of their treatment on their lives, the side effects of their treatment, new body pain that they may feel, and the fear that their cancer will return or get worse 15–17 . Indeed, cancer‐related distress and intense unpleasant emotions that interfere with functioning have been listed as common negative consequences of their diagnosis 18 .…”

Section: Introductionmentioning

confidence: 99%

The psychological health of patients diagnosed with cancer in Iraq during the COVID‐19 pandemic: A single center study

Alrubai¹,

Khalil

Zaki

et al. 2021

Psycho-Oncology

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Objective The objective of this study was to assess the psychological health status of patients diagnosed with cancer in Iraq during the COVID‐19 pandemic. The study aim was to measure the prevalence of depression, anxiety, and stress among patients diagnosed with cancer. Secondary aims were to assess the association between depression, anxiety, and stress with sociodemographic characteristics, cancer‐specific characteristics, patients' experience in healthcare visit, risk perception towards COVID‐19, and health concern during the outbreak. Methods A cross‐sectional study was conducted between September 1, 2020 and December 1, 2020 at an Oncology clinic in Baghdad. Included in the study were two hundred patients diagnosed with cancer. Data collected included: demographic variables (age, gender, residential location, marital status, education, employment status), clinical characteristics and cancer‐specific parameters (duration since cancer diagnosis, cancer type, treatment duration, clinic visits frequency), experience during the pandemic (skipping or postponing treatment or periodical tests, suffering from new body pain, fear of acquiring the infection, fear of health deterioration), as well as psychological health status (depression, anxiety, stress). Pain, risk perception towards COVID‐19, and health concern were measured using categorical Likert scale with responses being no, sometimes, and often. The psychological health status was measured by the “Depression, Anxiety, and Stress Scale” (DASS‐21). Cut‐off scores of the DASS‐21 greater than 9, 7, and 14 represent a positive screen of depression, anxiety, and stress, respectively. Results The prevalence of patients who screened positive for depression was 22.0%, anxiety 22.0%, and stress 13.5%. The prevalence of depression, anxiety and stress were significantly more in those who had university or higher education (34.3%, p ‐value <0.0001; 32.3%, p ‐value <0.0001; 19.2%, p ‐value = 0.02 respectively). Those were four times more likely to have depression and two times more likely to have anxiety than participants who had school education (OR = 4.40 CI [1.98–9.77], p ‐value <0.0001; OR = 2.55 CI [1.15–5.65], p ‐value = 0.02, respectively). The prevalence of anxiety was significantly the highest in the age group 16–39 years (40.9%) compared to 22.3% in the age group 40–64 years and 10.3% in the group ≥65 years ( p ‐value = 0.02). Patients ≥65 years of age were less likely to develop anxiety compared to younger patients (OR = 0.44 CI [0.22–0.89], p ‐value = 0.02). As for the patients' experience in healthcare visit, 66 patients (33.0%) skipped or postponed their treatment or tests due to the outbreak. Around (8%) sometimes suffered from new body pain. Those who sometimes suffered from...

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“…Many people prefer to be taken care of at home and also prefer a death at home compared to other settings, such as a hospital or hospice [ 3 , 4 ]. A better understanding of the determinants of preference for place of death may assist to actualize those preferences, while achieving a preferred place of death is considered an indicator of high-quality end-of-life care [ 5 , 6 ]. Recognizing individual preference for the place of death can improve the quality of end-of-life care and help to provide support for them [ 7 ].…”

Section: Introductionmentioning

confidence: 99%

Where Do Cancer Patients in Receipt of Home-Based Palliative Care Prefer to Die and What Are the Determinants of a Preference for a Home Death?

Cai

Zhang

Guerriere

et al. 2020

IJERPH

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Understanding the preferred place of death may assist to organize and deliver palliative health care services. The study aims to assess preference for place of death among cancer patients in receipt of home-based palliative care, and to determine the variables that affect their preference for a home death. A prospective cohort design was carried out from July 2010 to August 2012. Over the course of their palliative care trajectory, a total of 303 family caregivers of cancer patients were interviewed. Multivariate regression analysis was employed to assess the determinants of a preferred home death. The majority (65%) of patients had a preference of home death. The intensity of home-based physician visits and home-based personal support worker (PSW) care promotes a preference for a home death. Married patients, patients receiving post-graduate education and patients with higher Palliative Performance Scale (PPS) scores were more likely to have a preference of home death. Patients reduced the likelihood of preferring a home death when their family caregiver had high burden. This study suggests that the majority of cancer patients have a preference of home death. Health mangers and policy makers have the potential to develop policies that facilitate those preferences.

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Spiritual Care, Pain Reduction, and Preferred Place of Death Among Advanced Cancer Patients in Soweto, South Africa

Cited by 23 publications

References 36 publications

Quality of life and associated factors among adults living with cancer and their family caregivers

Quality of life and associated factors among adults living with cancer and their family caregivers

The psychological health of patients diagnosed with cancer in Iraq during the COVID‐19 pandemic: A single center study

Where Do Cancer Patients in Receipt of Home-Based Palliative Care Prefer to Die and What Are the Determinants of a Preference for a Home Death?

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