Spiritual well-being and caregiver burden in Alzheimer's caregivers

Spurlock, Wanda

doi:10.1016/j.gerinurse.2005.03.006

Cited by 71 publications

(43 citation statements)

References 14 publications

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“…Both groups had heterogeneous QoL scores, which led to a non-significant result. These results corroborate the results in the literature, which stress the inverse association between caregiver burden 18,19 and depressive symptoms 20,21 and QoL of caregivers. It has been suggested that caregivers' subjective experiences of depression and burden were more predictive of caregivers' QoL than the objective PwD-related variables, such as the PwD cognitive impairment or functional abilities 20 .…”

Section: Discussionsupporting

confidence: 91%

“…Third, this study enrolled a small sample, and the fact that many variables were included in the regression analysis may have produced some chance associations. We would argue, however, that the consistency of our observations with those of other studies suggests that this explanation is unlikely 18,24 . Furthermore, we did not assess the caregivers' cognition and personality traits; we only had caregivers' reports about their history of cognitive impairment.…”

Section: Discussionsupporting

confidence: 83%

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Caregivers’ quality of life in mild and moderate dementia

Santos

Sousa

Simões-Neto

et al. 2014

Arq. Neuro-Psiquiatr.

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Objective: To investigate quality of life (QoL) of caregivers of mild and moderate dementia and the aspects related to QoL. Method: Crosssectional assessment of dyads of people with dementia (PwD) and family caregivers (n=88). Results: Burden (p,0.05) and depressive symptoms (p,0.001) were related to caregivers' QoL in both stages of dementia. In mild dementia, caregivers' depressive symptoms (p,0.001) and PwD neuropsychiatric symptoms (p,0.001) were related to burden. PwD aberrant motor activity (p,0.001) and anxiety (p,0.001), and caregiver-reported QoL domains of friends (p,0.001) and mood (p,0.05) were related to depressive symptoms. In moderate dementia, selfreported QoL (p,0.01) and anxiety (p,0.01), and PwD anxiety (p,0.01) were related to burden. Caregivers' anxiety (p,0.001) and self-reported QoL (p,0.001) were related to depressive symptoms. Conclusion: Burden and depressive symptoms were related to QoL of caregivers of mild and moderate dementia. However, they are driven by different factors according to dementia severity.Keywords: caregivers, quality of life, depression, dementia. RESUMOObjetivo: Investigar qualidade de vida (QdV) de cuidadores na demência leve e moderada e aspectos relacionados. Método: Avaliação transversal de pessoas com demência e cuidadores familiares (n=88). Resultados: Sobrecarga (p,0,05) e sintomas depressivos (p,0,001) estavam relacionados à QdV dos cuidadores nos dois estágios da demência. Na demência leve, sintomas depressivos dos cuidadores (p,0,001) e sintomas neuropsiquiátricos dos pacientes (p,0,001) estavam relacionados à sobrecarga. Atividade motora aberrante (p,0,001) e ansiedade do paciente, bem como domínios amigos (p,0,001) e humor (p,0,05) da QdV do cuidador estavam relacionados aos sintomas depressivos. Na demência moderada, QdV (p,0,01) e ansiedade (p,0,01) do cuidador, e ansiedade do paciente (p,0,01) estavam relacionadas à sobrecarga. Ansiedade (p,0,001) e QdV dos cuidadores (p,0,001) estavam relacionadas aos sintomas depressivos. Conclusão: Sobrecarga e sintomas depressivos estavam relacionados à QdV de cuidadores de pessoas com demência leve e moderada. Entretanto, estes aspectos estão relacionados a diferentes fatores por severidade da demência.Palavras-chave: cuidadores, qualidade de vida, depressão, demência.

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Section: Discussionsupporting

confidence: 91%

Section: Discussionsupporting

confidence: 83%

Caregivers’ quality of life in mild and moderate dementia

Santos

Sousa

Simões-Neto

et al. 2014

Arq. Neuro-Psiquiatr.

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“…However, our findings offer another dimension of burden to comprehensively measure the construct. We found that burden reflected being emotionally pesado, (tired, sad or frustrated), consistent with findings from many studies that have examined the emotional costs of caregiving in terms of depression, stress, happiness, satisfaction, and well-being (Chappell & Reid, 2002;Chumbler et al, 2003;Spurlock, 2005;Stull et al, 1994;Zarit et al, 1980;Zarit et al, 1986). However, the women in this study also conceptualized burden in terms of being physically tiring, and that pesado referred literally to the physical demands of care.…”

Section: Discussionsupporting

confidence: 87%

“…The changing social roles for Mexican women thus raise questions about the effects of caregiving on their health and well-being. Research in other countries has clearly demonstrated a link between caregiving and poor caregiver health outcomes, including stress, burden and multiple role strain (Pinquart & Sorensen, 2003, 2005, 2007. However, the dearth of literature points to our lack of understanding of the caregiver experience in Mexico, especially in terms of caregiver stress and burden.…”

Section: Introductionmentioning

confidence: 99%

Concepts of Burden in Giving Care to Older Relatives: A Study of Female Caregivers in a Mexico City Neighborhood

Mendez-Luck

Kennedy

Wallace

2008

J Cross Cult Gerontol

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Objectives-This study examined how women in a Mexico City suburb conceptualized the construct of burden within the context of giving care to older relatives.Methods-Data were collected on forty-one women through semi-structured interviews regarding their caregiving experiences to elderly relatives. Phenomenological principles were used to analyze meanings and understandings of caregiving experiences.Results-Burden was a multi-dimensional construct that referred to specific situations that made caregivers feel emotionally or physical "heavy." Burden also referred to "being a burden" by being in the way, making things difficult, or being a 'weight' on caregivers' shoulders. However, women in this study also viewed burden as a positive sacrifice that involved love, initiative, and good will.Discussion-This study is an important first step in defining the ways in which caregiving is positively and negatively meaningful for Mexican caregivers and their families. Our findings offer an additional dimension of caregiver burden to broaden our understanding and measurement of the construct. The development of culturally appropriate instruments to measure caregiving burden in Mexico is necessary to provide an empirical foundation for policy recommendations that address the growing need for institutional support of caregivers. Moreover, our findings suggest that researchers studying caregiving in Mexico should think about how burden is measured on existing instruments before adapting them for widespread use.

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“…Dementia; 0(0):1-20. DOI: 10.1177/1471301217700741 (Villareal-Reyna, Salazar-González, Cruz-Quevedo, Carrillo-Cervantes, & Champion, 2012;Zhang, Edwards, Yates, Ruth, & Guo, 2012) and have shown to reduce levels of burden (Spurlock, 2005) and improve mental health outcomes (Hebert, Dang, & Schulz, 2007) in other studies.…”

Section: Discussionmentioning

confidence: 99%