Stigma perspective of siblings of children with a major childhood burn injury

Lehna, Carlee

doi:10.1111/1745-7599.12007

Cited by 6 publications

(8 citation statements)

References 9 publications

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“…The current study's findings supported previous research linking higher levels of stigma and lower levels of quality of life to lower life satisfaction [13,27]. Both sexuality and interpersonal relationships predicted life satisfaction, in line with previous research [11,16]. Previous research has shown that changes in appearance following burn injury and worse mental health are closely related to stigma [11,12], and while the current study reinforced these findings, it also demonstrated the mediational role of both affect and body image in the relation between stigma and life satisfaction.…”

Section: Discussionsupporting

confidence: 90%

“…Families of individuals with burn injuries often reported feelings of fear, shame, and guilt which may manifest through various stigmatizing verbalizations and behaviors [10]. Individuals with burn injuries may be stared at or ridiculed [11]. In particular, individuals with facial/neck burns or amputations as a result of a burn injury are at increased risk for experiencing stigma [4].…”

Section: Introductionmentioning

confidence: 99%

“…Sexual dysfunction is also a common concern and can negatively impact romantic relationships and self-esteem [16]. These sequelae are often compounded by negative body image [17] and difficulty with social interactions, which can lead to feelings of isolation and loneliness [11]. All of these difficulties, without proper support and coping strategies, can lead to poor psychosocial adjustment and mental health [6].…”

Section: Introductionmentioning

confidence: 99%

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Relations among Stigma, Quality of Life, Resilience, and Life Satisfaction in Individuals with Burn Injuries

Watson

Perrin

2022

EBJ

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This study examined the relations among burn stigma, quality of life, resilience, and life satisfaction, hypothesizing that higher stigma and lower burn-related quality of life would lead to lower life satisfaction; however, resilience would moderate this relation. A sample of 89 participants was recruited from an outpatient clinic of a burn center in a critical care hospital. Participants completed a battery of measures assessing these constructs. Results suggested that burn stigma was associated with reduced life satisfaction after accounting for other variables. Multiple regression models found that burn stigma predicted both affect and body image but not interpersonal relationship quality or sexuality. Interpersonal relationship quality, sexuality, affect, and body image all predicted life satisfaction. Both affect and body image partially accounted for the relation between stigma and life satisfaction, and resilience accounted for the relation between stigma and affect. Findings reinforce previous literature that has shown a relationship between stigma and life satisfaction but also emphasizes the role of resilience and burn-related quality of life. Individuals who experience a burn injury may have innate resilience abilities, which allow them to bounce back from stressors; thus, resilience can be a targeted strength to bootstrap in order to improve adjustment outcomes.

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Section: Discussionsupporting

confidence: 90%

Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

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Relations among Stigma, Quality of Life, Resilience, and Life Satisfaction in Individuals with Burn Injuries

Watson

Perrin

2022

EBJ

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“…In the hospital phase, it was the instrumental and emotional support and affection offered primarily by siblings, but also those that had been regarded as best friends and in a number of cases from friends made in hospital. The significance of such supportive relationships has also been echoed in child [39,40], adult burn [41], and also other trauma recovery and resilience studies [42,43]. In this study, the affection and support from family and friends, and the respect and compassion of hospital staff reassured and comforted the children, installed hope, and thus bolstered their endurance especially of the physical pain and helplessness highlighted immediately after the injury [19,35], a form of psychological first aid [32].…”

Section: Discussionmentioning

confidence: 63%

Enablers of psychosocial recovery in pediatric burns: perspectives from the children, parents and burn recovery support staff

et al. 2020

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Background Pediatric burn injuries are a major cause of death and injury, occurring mainly in resource poor environments. Recovery from burns is widely reported to be constrained by physical, psychological, relationship and reintegration challenges. These challenges have been widely described, but not the enablers of psychosocial recovery. This is especially true in pediatric burn research, with few multi- perspective studies on the recovery process. Methods This qualitative study involved 8 focus group discussions (four with 15 children post-burn injury, four with 15 caregivers) and 12 individual interviews with staff working in pediatric burns that explored the psychosocial needs of children after a burn and the enablers of their recovery. Purposive sampling was utilized and recruitment of all three categories of participants was done primarily through the only hospital burns unit in the Western Cape, South Africa. The interviews focused on factors that supported the child’s recovery and were sequentially facilitated from the child and the family’s experiences during hospitalization, to the return home to family and friends, followed by re-entry into school. Thematic analysis was used to analyze verbatim interview transcripts. Results The recovery enablers that emerged included: (i) Presence and reassurance; indicating the comfort and practical help provided by family and close friends in the hospital and throughout the recovery process; (ii) Normalizing interactions and acceptance; where children were treated the same as before the injury to promote the acceptance of self and by others especially once the child returned home; and (iii) Sensitization of others and protection; signifying how persons around the child had assisted the children to deal with issues in the reintegration process including the re-entry to school. Conclusions This study indicates that the psychosocial recovery process of children hospitalized for burns is enabled by the supportive relationships from family members, close friends and burn staff, present during hospitalization, the return home, and school re-entry. Support included comfort and physical presence of trusted others and emotional support; affirmation of the child’s identity and belonging despite appearance changes; and the advocacy and protection for the re-entry back into the school, and more generally the community.

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“…Also on the longer term when they are reintegrated into society, the child can be faced with situations of stigmatization. Bullying is an example that concerns all stakeholders such as the pediatric burn survivors, parents, siblings, teachers and other members of the school community [14,15]. Therefore, a program that helps clarifying what happened during the period of hospitalization and how the scars will progress might prepare the school community to adjust to the situation, to increase awareness of what happened and possibly to facilitate a successful school reintegration.…”

Section: Introductionmentioning

confidence: 99%

School reintegration of pediatric burn survivors: An integrative literature review

Pan

Santos

Nascimento

et al. 2018

Burns

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Stigma perspective of siblings of children with a major childhood burn injury

Abstract: Children with changed appearance focused on normalizing their lives in a positive way. Oftentimes, it was a parent or noninjured sibling who would describe manifestations of stigma and ways they tried to protect the child with burn injury.

Cited by 6 publications

References 9 publications

Relations among Stigma, Quality of Life, Resilience, and Life Satisfaction in Individuals with Burn Injuries

Relations among Stigma, Quality of Life, Resilience, and Life Satisfaction in Individuals with Burn Injuries

Enablers of psychosocial recovery in pediatric burns: perspectives from the children, parents and burn recovery support staff

School reintegration of pediatric burn survivors: An integrative literature review

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