Study of the factors influencing the preparation of advance directives

Puente, Katia del Pozo; Hidalgo, Jesús López-Torres; Herráez, Ma José Simarro; Bravo, Beatriz Navarro; Rodríguez, Jordi Olcina; Guillén, Vicente Gil

doi:10.1016/j.archger.2013.07.009

Cited by 22 publications

(17 citation statements)

References 27 publications

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“…On the other hand, physicians are also hesitant to initiate these discussions and often believe that ACP is unnecessary for young and healthy patients which compounds these barriers [ 29 , 30 ]. And although those who have been widowed are more involved in the process of ACP, marital status was surprisingly not a predictor of engagement in ACP in this study [ 31 ]. A population-based study on AD completion in Alberta showed that people who had looked after or given care to a dying person were more likely to complete an AD [ 32 ].…”

Section: Discussionmentioning

confidence: 93%

The prevalence in the general population of advance directives on euthanasia and discussion of end-of-life wishes: a nationwide survey

et al. 2015

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BackgroundTo determine the extent to which members of the general population have talked to their physician about their wishes regarding medical treatment at the end of life, to describe the prevalence of advance directives on euthanasia, and to identify associated factors.MethodThis study used data from the cross-sectional Health Interview Study (HIS) 2008 that collected data from a representative sample (N = 9651) of the Belgian population.ResultsOf all respondents, 4.4 % had spoken to their physician about their wishes regarding medical treatment at the end of life, while 1.8 % had an advance directive on euthanasia. Factors positively associated with discussions regarding wishes for medical treatment at the end of life were being female, being older in age, having poorer health status and having more GP contacts. People older than 55 years and living in Flanders or Brussels were more likely than the youngest age categories to have an advance directive on euthanasia.ConclusionYounger people, men, people living in the Walloon region of Belgium, people without a longstanding illness, chronic condition or disability and people with few GP contacts could represent a target group for education regarding advance care planning. Public information campaigns and education of physicians may help to enable the public and physicians to engage more in advance care planning.

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Section: Discussionmentioning

confidence: 93%

The prevalence in the general population of advance directives on euthanasia and discussion of end-of-life wishes: a nationwide survey

et al. 2015

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“…Previous studies have indicated that completion of ADs was 14%–30% among the general population, and 15%–49% among cancer patients . Many factors are associated with having ADs including sociodemographic characteristics such as age, level of education, gender, religious beliefs, health or functional status, public education on ADs, and traditional perspectives . Little work has been done on the perception of ADs in both the general and ill populations.…”

Section: Introductionmentioning

confidence: 99%

Advance directives of lung cancer patients and caregivers in China: A cross sectional survey

Feng

Jun-ying

et al. 2019

Thoracic Cancer

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Background: This study aimed to investigate lung cancer patients and attitudes of their caregivers toward advance directives (ADs) in China. Methods: A cross sectional study was conducted in the Department of Oncology outpatient clinic in West China Hospital, Sichuan University. A questionnaire was used to survey the attitudes of lung cancer patients and caregivers toward ADs. Results: A total of 148 lung cancer patients and 149 caregivers were enrolled into the study. Of these, 94.6% and 89.9% of patients and caregivers had not heard of AD and none of those in the study had ever signed an AD. A total of 79.7% patients and 75.2% caregivers were willing to sign ADs after they were provided with information. Patients who preferred the end of life period to sign ADs were 5.4 times more likely to have ADs than patients who chose to sign ADs when their disease was diagnosed (P < 0.05, ). Caregivers who were reluctant to undergo chemotherapy when diagnosed with cancer were 2.16 times more likely to sign ADs than those willing to receive chemotherapy (P < 0.05, 95%CI [1.20-3.90]). Conclusions: In China, lung cancer patients and their caregivers showed lack of knowledge about ADs, and the completion rate of ADs was extremely low. However, participants were positive about ADs and public education on ADs may help to increase the completion rate of ADs in China.

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“…To make the living will document more effective, multiple sessions and interactive discussions with a resource person such as doctors are recommended [7,8,14]. The document also needs to be simplified in order to reach a larger section of the population as well.…”

Section: "I Had a Dinner With My Son And Said "Look If I Am Not Gettmentioning

confidence: 99%

“…It is to ensure that the person's wishes and their autonomy are respected [2]. Apart from their autonomy, it could also prevent medical futility that mostly occurs among terminally ill patients [1][2][3][4][5][6][7][8]. While most of their wishes are to have a high quality of life, to be independent and to complete their unfinished businesses, only half of the patients are able to communicate their needs to the family members and doctors [9].…”

Section: Introductionmentioning

confidence: 99%

Perception of Advance Directive in Thai Women with Cancer: A Qualitative Study

Phenwan

Srisuwan

TIENTHAVORN

2017

Walailak J Sci & Tech

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Advance Directive (AD) is a medical agreement to ensure that patients’ autonomy is respected. In Thailand, there has been Health Act Legislation to promote the use of a living will, a form of AD, since 2007. However, there is no assessment of its practicability yet. The objective of this study was to explore perceptions and attitudes to living wills by women who were diagnosed with cancer. We conducted semi-structured interviews using a purposive sampling method. Fifteen patients at the gynaecologic oncology clinic from January 2014 to April 2015 joined the study. Participants were instructed to read the living will document designed by the Thai National Health Security Office (NHSO) and asked about 3 aspects; awareness of and attitude towards living wills, comprehension of the document, and decision-making. Final codes were analysed using investigator and data triangulation methods along with content analysis. All participants were in the early stages of cancer. Five women were diagnosed with breast cancer, 7 with cervical cancer, and 3 with ovarian cancer. None of them had heard of living wills before. Three themes emerged; 1) Participants felt overwhelmingly positive about the idea of making an AD with a living will. 2) The document was too complicated for participants. 3) Past experiences about death and terminal illness played a major role in decision-making regarding AD. In conclusion, larger scale assessment of AD in Thailand is recommended. Living wills may be useful tools for making AD in women with cancer but they need to be simplified.

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Study of the factors influencing the preparation of advance directives

Cited by 22 publications

References 27 publications

The prevalence in the general population of advance directives on euthanasia and discussion of end-of-life wishes: a nationwide survey

The prevalence in the general population of advance directives on euthanasia and discussion of end-of-life wishes: a nationwide survey

Advance directives of lung cancer patients and caregivers in China: A cross sectional survey

Perception of Advance Directive in Thai Women with Cancer: A Qualitative Study

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