Studying the quality of life after organ transplantation: Research problems and solutions

Joralemon, Donald; Fujinaga, Kim Mika

doi:10.1016/s0277-9536(96)00256-0

Cited by 38 publications

(21 citation statements)

References 42 publications

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“…These results appear to be in contradiction with studies reporting a satisfactory QoL after transplantation (4,6). However, criticism on methodology used in QoL studies identified shortcomings and questioned the results and optimistic outlook on life after transplantation (20).…”

Section: Discussionmentioning

confidence: 67%

Clinical Factors Influencing Participation in Society after Successful Kidney Transplantation

et al. 2006

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Clinical factors influencing participation in society after successful kidney transplantation van der Mei, S.F.; Groothoff, J.W.; van Sonderen, E.L.P.; van den Heuvel, W.J.A.; de Jong, P.E.; van Son, W.J. Background. Little information is available on the degree of actual social functioning after successful kidney transplantation. Moreover, information on factors that influence participation in social activities is scarce. The aim of this study was to examine the influence of clinical factors on social outcome. Methods. A retrospective study was performed on a cohort of primary kidney transplantation patients, transplanted between 1996 and 2001. Cross-sectional data on participation in obligatory activities (i.e. employment, education, household tasks), leisure activities (i.e. volunteer work, assisting others, sports, clubs/associations, recreation, socializing, going out) and change in participation were collected by in-home interviews (nϭ239). Multivariate regression analysis was performed.Results. Thirty-six percent of the patients scored low on obligatory participation and only 52.4% was employed.Patients were actively involved in a wide range of leisure activities. Twenty-six percent participated in sports. Multivariate analysis (age-, sex-, and education-adjusted) of participation in obligatory activities showed negative associations with advanced age (PϽ0.01), comorbidity (previous cardiovascular events; PϽ0.01) and cadaveric transplantation (PϽ0.01). There was a positive association with time since transplantation (PϽ0.01). Multivariate analysis of diversity of participation in leisure activities and perceived change in participation after transplantation showed no statistically significant associations with clinical factors. Conclusions.Besides age, clinical factors such as type of donation (cadaveric versus living), comorbidity (previous cardiovascular events), and time since transplantation were associated with participation in obligatory activities such as employment, education and household tasks. Diversity of leisure activities and change in participation was not affected by clinical factors.

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Section: Discussionmentioning

confidence: 67%

Clinical Factors Influencing Participation in Society after Successful Kidney Transplantation

et al. 2006

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“…This paradox may explain why patients who score poorly in quantitative HRQoL studies, report satisfaction with their actual QoL. This highlights a fundamental weakness of objective functional HRQoL assessment, that factors measured often are not weighted to reflect their relative significance for the individual [50].…”

Section: Discussionmentioning

confidence: 99%

Quality of life after liver transplantation for hepatitis C infection

et al. 2007

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Transplant recipients exchange one health state for another. Pre-transplant preparation should encourage realistic expectations of life after transplantation. Before transplantation, potential recipients should be given an opportunity to discuss the donation process. This may reduce the burden of emotional debt experienced by some recipients. Feelings of stigma and future uncertainty may be worse for transplant recipients with HCV. A qualitative approach can provide deeper insight into issues affecting quality of life after transplantation for HCV, and explain some of the ambiguous and contradictory findings of previous quantitative studies.

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“…(Oscar,26) Routine outcome measures of transplantation such as QoL questionnaires do not pick up the vast range of experiences patients go through in the surgical process (Joralemon & Fujinaga, 1996). As most measure outcome many months or years post surgery, patients' management of the immediate postoperative period is hidden.…”

Section: Management Of Surgerymentioning

confidence: 99%

‘Double or quits’: perceptions and management of organ transplantation by adults with cystic fibrosis

Lowton

2003

Social Science & Medicine

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Studying the quality of life after organ transplantation: Research problems and solutions

Cited by 38 publications

References 42 publications

Clinical Factors Influencing Participation in Society after Successful Kidney Transplantation

Clinical Factors Influencing Participation in Society after Successful Kidney Transplantation

Quality of life after liver transplantation for hepatitis C infection

‘Double or quits’: perceptions and management of organ transplantation by adults with cystic fibrosis

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