Support for bereaved family carers

Payne, Sheila; Rolls, Liz

doi:10.1093/acprof:oso/9780199216901.003.0014

Cited by 13 publications

(18 citation statements)

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“…It is recommended that ongoing assessment to anticipate caregiver needs should be integrated into routine practice rather than be ‘crisis’ driven. 15 However, the challenges that need to be tackled for integration into practice include: developing an intervention relevant to caregivers themselves and that fits into practice; testing the effect of the intervention; and changing practitioner behaviour. This programme proved successful as several of these challenges have been met.…”

Section: Discussionmentioning

confidence: 99%

Hospital postdischarge intervention trialled with family caregivers of older people in Western Australia: potential translation into practice

et al. 2018

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There is lack of a suitable assessment tool that can be used routinely and systematically by hospital staff to address family caregivers’ (FCs’) support needs. This paper describes a novel approach to identifying and addressing FCs’ needs following hospital discharge of the older person receiving care.Setting and participantsFC recruitment occurred on the patient’s discharge from a tertiary hospital in Western Australia; 64 completed the study; 80% were female; mean age 63.2 years.InterventionThe Further Enabling Care at Home (FECH) programme was delivered over the telephone by a specially trained nurse and included: support to facilitate understanding of the patient’s discharge letter; caregiver support needs assessment and prioritisation of urgent needs; and collaborative guidance, from the nurse, regarding accessing supports.ResultsSixty-four FCs completed the FECH programme. The top three support needs identified by the FCs were: knowing what to expect in the future (52%), knowing who to contact if they were concerned (52%) and practical help in the home (36%). The telephone-based outreach service worked well and was convenient for the nurse and the FCs, and saved on transport, time and money. Most of the FCs appreciated the systematic approach to identify and articulate their needs and were satisfied with the support they received, mainly navigation through the systems, problem solving, self-care strategies, explanation of illness, symptoms and medication and access to after-hours services.ConclusionsIn order to guide services which may consider adopting this systematic approach to supporting FCs and integrating it into their routine practice, this evaluation of the FECH programme has described the processes implemented and highlighted the factors that hindered or facilitated these processes to engage caregivers with appropriate services in a timely manner. Positive feedback indicated that the programme was a useful addition to hospital discharge planning.Trial registration numberACTRN12614001174673; Results.

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Section: Discussionmentioning

confidence: 99%

Hospital postdischarge intervention trialled with family caregivers of older people in Western Australia: potential translation into practice

et al. 2018

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“…To inform future planning and policies for solutions to the growing demand for family care and the associated challenges encountered by family caregivers, it is essential to integrate family caregivers’ needs into service planning. 1,2 Policy makers and government and caregiving organisations in the United Kingdom, Australia and Canada stress that family caregivers’ needs should be assessed and addressed and are urgently seeking ways to ensure the ongoing capacity of family caregivers to provide care. 3–6 Identifying any gaps in service provision for caregivers and sharing evidence-based research about the most effective, supportive interventions that service providers can deliver are vital to disseminating knowledge to improve outcomes for caregivers.…”

Section: Introductionmentioning

confidence: 99%

“…3–6 Identifying any gaps in service provision for caregivers and sharing evidence-based research about the most effective, supportive interventions that service providers can deliver are vital to disseminating knowledge to improve outcomes for caregivers. 2 Evidence suggests that good support can improve family caregivers’ psychological outcomes in the longer term. 7,8…”

Section: Introductionmentioning

confidence: 99%

Enabling a family caregiver-led assessment of support needs in home-based palliative care: Potential translation into practice

et al. 2015

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“…This is viewed as particularly important in view of the relatively short time frame that may be available for these exchanges, given the palliative care context. This view is echoed by Payne and Morbey [ 11 ] who note that ‘the window of opportunity for carers to access appropriate information and support is often brief.’…”

Section: Discussionmentioning

confidence: 99%

“…Hospice services play a key role in carer support, given that they are there for the family as well as the patient [ 10 ]. However, whilst the importance of assessing and supporting individuals in their care-giving role is widely acknowledged, regular assessment of carers is yet to become embedded into routine hospice practice [ 11 ].…”

Section: Introductionmentioning

confidence: 99%

Factors influencing practitioner adoption of carer-led assessment in palliative homecare: A qualitative study of the use of the Carer Support Needs Assessment Tool (CSNAT)

2017

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IntroductionInformal caregivers play a pivotal role in supporting patients approaching the end of life. The Carer Support Needs Assessment Tool (CSNAT) is designed to facilitate person-centred assessment and support through a process that is practitioner-facilitated, but carer-led. This study explored practitioners’ experiences of implementing the CSNAT in palliative homecare.MethodsWe conducted qualitative interviews/focus groups with 20 practitioners in one UK hospice homecare service (18 nurses, two healthcare assistants) before and after the implementation of the CSNAT. Thematic analysis of the data was underpinned by framework analysis.ResultsNot all practitioners appreciated that using the CSNAT required a shift towards a more person-centred approach to assessment; consequently they tagged the tool onto their existing practitioner-led practice. Practitioners who did use the CSNAT as intended were able to act as role models and support their colleagues in making this transition. Practitioners’ comments revealed a number of contradictions: 1) Most felt that they ‘already do’ identify carer support needs, but feared using the CSNAT could increase their workload; 2) some worried about introducing the CSNAT ‘too soon’, but recognised that it was ‘too late’ once patients were close to the end of life; 3) whilst practitioners stated ‘they were there for the family as well as the patient’, care provision was overtly centred around patients.ConclusionThis study provides vital insights into barriers and facilitators to implementing the CSNAT as part of a person-centred approach to assessment. The findings identified the training and support required to help practitioners make this transition to this new way of working.

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Support for bereaved family carers

Cited by 13 publications

References 0 publications

Hospital postdischarge intervention trialled with family caregivers of older people in Western Australia: potential translation into practice

Hospital postdischarge intervention trialled with family caregivers of older people in Western Australia: potential translation into practice

Enabling a family caregiver-led assessment of support needs in home-based palliative care: Potential translation into practice

Factors influencing practitioner adoption of carer-led assessment in palliative homecare: A qualitative study of the use of the Carer Support Needs Assessment Tool (CSNAT)

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