Support/services among family caregivers of persons with dementia—perceived importance and services received

Alwin, Jenny; Öberg, Birgitta; Krevers, Barbro

doi:10.1002/gps.2328

Cited by 26 publications

(23 citation statements)

References 20 publications

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“…The strong negative effect on the families caring for the member with BD, with no stronger positive value being gained or feelings being supported, can be compared with results by Alwin et al . (2010) showing higher negative effect scores for these families (mean 14.9) than those of family caregivers of persons with dementia (mean 13.0).…”

Section: Discussionmentioning

confidence: 83%

Outcomes of an educational intervention for the family of a person with bipolar disorder: a 2-year follow-up study

Jönsson

Wijk

Danielson

et al. 2010

Journal of Psychiatric and Mental Health Nursing

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This study aimed to analyse the outcomes of an educational intervention for family members living with a person with bipolar disorder. A longitudinal study was conducted comprising a 10-session educational intervention designed for families with members in outpatient mental health care. Thirty-four family members agreed to participate. Data were collected on five occasions, at baseline and during a 2-year follow-up through self-assessment instruments: the Carers of Older People in Europe Index, the Jalowiec Coping Scale-40, the Sense of Coherence questionnaire and the Social Adaptation Self-evaluation Scale. The results showed that the condition had a considerable negative impact on the family members as carers, but the educational intervention increased their understanding, which facilitated the management of their lives. A significant improvement in stress management was seen over time and social functioning was retained. The study showed that families living with one member with bipolar disorder benefited from the educational intervention in terms of increasing understanding of the condition and reducing stress. Mental health care needs to develop educational interventions further and offer the families support to strengthen their ability to manage with the situation.

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Section: Discussionmentioning

confidence: 83%

Outcomes of an educational intervention for the family of a person with bipolar disorder: a 2-year follow-up study

Jönsson

Wijk

Danielson

et al. 2010

Journal of Psychiatric and Mental Health Nursing

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“…This behavioral approach identified specific concerns and tailored strategies to individual needs, consistent with the empirical literature (Gallagher‐Thompson and Coon, ) and meeting practice guidelines for dementia care (Vasse et al ., ). Carers report such types of support as important and preferred (Alwin et al ., ). Participants reported viewing segments and complying with between‐session assignments.…”

Section: Discussionmentioning

confidence: 99%

A telehealth behavioral coaching intervention for neurocognitive disorder family carers

Steffen

Gant

2015

Int J Geriatr Psychiatry

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ObjectivesThis study examined the differential impact of two telehealth programs for women caring for an older adult with a neurocognitive disorder. Outcomes examined were depressive symptoms, upset following disruptive behaviors, anxious and angry mood states, and caregiving self‐efficacy.MethodsWomen cohabitating with a family member diagnosed with a neurocognitive disorder were assigned via random allocation to either of the following: (1) a 14‐week behavioral intervention using video instructional materials, workbook and telephone coaching in behavioral management, pleasant events scheduling, and relaxation or (2) a basic education guide and telephone support comparison condition. Telephone assessments were conducted by interviewers blind to treatment condition at pre‐intervention, post‐intervention, and 6 months following intervention.ResultsFor those providing in‐home care at post‐treatment, depressive symptoms, upset following disruptive behaviors, and negative mood states were statistically lower in the behavioral coaching condition than in the basic education and support condition. Reliable change index analyses for Beck Depression Inventory II scores favored the behavioral coaching condition. Caregiving self‐efficacy scores for obtaining respite and for managing patient behavioral disturbances were significantly higher in the coaching condition. Effect sizes were moderate but not maintained at the 6‐month follow‐up.ConclusionsThis study provides some initial evidence for the efficacy of a telehealth behavioral coaching intervention compared with basic education and telephone support. Carers' abilities to maintain strategy use during progressive disorders such as Alzheimer's disease likely require longer intervention contact than provided in the current study. Dementia carers, including those living in rural areas, can benefit from accessible and empirically supported interventions that can be easily disseminated across distances at modest cost. © 2015 The Authors. International Journal of Geriatric Psychiatry Published by John Wiley & Sons, Ltd.

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“…A meta-analysis of 34 interventions showed that the family caregivers to persons with dementia appraised their own coping skills as improved by the intervention 20. In a study where the aim was to examine the family caregivers’ apprehension regarding what type of support they found important, the results revealed that the family caregivers rated support and service within the areas of information, relief, and counseling as highly important 21. This corresponds with a study where family caregivers communicated the need for better knowledge of the disease, as well as education on ways to handle cognitive and different behavioral disorders 22.…”

Section: Discussionmentioning

confidence: 99%

Family caregivers’ assessment of symptoms in persons with dementia using the GBS-scale: differences in rating after psychosocial intervention – an 18-month follow-up study

Dahlrup¹,

Nordell

Andrén

et al. 2010

CIA

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The purpose of this study was to examine if psychosocial intervention for family caregivers made any differences in describing symptoms of dementia in the persons they cared for. The study population comprised family caregivers of persons aged 70 years and older receiving social services and diagnosed with dementia disorders. A group of 129 family caregivers underwent psychosocial intervention including education, information, and provision of a support group, while 133 family caregivers did not and these formed the control group. Family caregivers were followed-up every 6 months for a total of 18 months. They rated intellectual, emotional, and activity of daily living (ADL) functions in persons with dementia using the Gottfries-Bråne-Steen scale (GBS-scale). Family caregivers who underwent psychosocial intervention rated the intellectual and emotional symptoms of dementia significantly higher 6 months later compared to controls and the effect was sustained during the 18-month follow-up irrespective of relationship and education. Most notably, decrease in function of recent memory, ability to increase tempo, long-windedness, distractibility, and blunting were better identified. Our findings suggest that the family caregivers who underwent psychosocial intervention achieved better understanding of different symptoms and the behaviors of dementia. These findings may explain earlier findings of positive effects after psychosocial intervention on family caregivers’ sense of burden, satisfaction, and ability to delay nursing home placement.

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Support/services among family caregivers of persons with dementia—perceived importance and services received

Cited by 26 publications

References 20 publications

Outcomes of an educational intervention for the family of a person with bipolar disorder: a 2-year follow-up study

Outcomes of an educational intervention for the family of a person with bipolar disorder: a 2-year follow-up study

A telehealth behavioral coaching intervention for neurocognitive disorder family carers

Family caregivers’ assessment of symptoms in persons with dementia using the GBS-scale: differences in rating after psychosocial intervention – an 18-month follow-up study

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Support/services among family caregivers of persons with dementia—perceived importance and services received

Cited by 26 publications

References 20 publications

Outcomes of an educational intervention for the family of a person with bipolar disorder: a 2-year follow-up study

Outcomes of an educational intervention for the family of a person with bipolar disorder: a 2-year follow-up study

A telehealth behavioral coaching intervention for neurocognitive disorder family carers

Family caregivers&rsquo; assessment of symptoms in persons with dementia using the GBS-scale: differences in rating after psychosocial intervention &ndash; an 18-month follow-up study

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Family caregivers’ assessment of symptoms in persons with dementia using the GBS-scale: differences in rating after psychosocial intervention – an 18-month follow-up study