Supporting the health and well‐being of people with intellectual disability and high support needs through networking and resource development

Carlson, Glenys

doi:10.1046/j.0045-0766.2002.00285.x

Cited by 13 publications

(12 citation statements)

References 16 publications

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“…The research reported here has very practical implications for service providers, carers and women with learning disabilities themselves. These may be best tackled with a more strategic approach to women's health, such as that described by Carlson (2002), to incorporate the training, information, resource and communication needs of all concerned. Problematic menstruation can have a substantial impact on women and carers and it is essential that the problems identified here are addressed effectively.…”

Section: Resultsmentioning

confidence: 99%

Menstrual Problems Experienced by Women with Learning Disabilities

Rodgers¹,

Lipscombe²,

Santer³

2006

J Appl Res Int Dis

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Background Menstruation appears to be problematic for women with learning disabilities, yet there has been little quantitative research on their experiences, or comparisons with other groups of women. This paper considers the nature and extent of menstrual problems experienced by women with learning disabilities. Methods The data reported here come from a cross-sectional postal questionnaire survey conducted with carers of 452 women, aged 14-55 years, who had learning disabilities.Results Women with learning disabilities appear to be as likely to experience menstrual problems as other women. However, such problems may be experienced differently and more negatively and may not always be recognized appropriately. Conclusions More attention needs to be given to menstrual problems experienced by women with learning disabilities, both in research and in practice. It is particularly important that women with learning disabilities be supported to play a central role in recognizing and defining the problems they experience.

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Section: Resultsmentioning

confidence: 99%

Menstrual Problems Experienced by Women with Learning Disabilities

Rodgers¹,

Lipscombe²,

Santer³

2006

J Appl Res Int Dis

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“…However, given that so few women had been taught about menstrual care by a teacher, it may be that there is potential for a greater role for schools. Carlson (2002) describes a health and well-being network operating in one area of Australia, which focuses on issues relating to girls' and women's health and well-being, including menstrual management. The network incorporates a range of perspectives, produces information resources and develops staff training.…”

Section: Discussionmentioning

confidence: 99%

“…Other studies have evaluated training programs aimed at promoting menstrual self-care. Whilst small scale, they demonstrate encouraging results (Demetral, Driessen, & Goff, 1983;Fraser & Ross, 1986;Richman, Ponticas, Page, & Epps, 1986;Epps, Stern, & Horner, 1990), but these less intrusive alternatives are not given due emphasis (Carlson, 2002).…”

Section: Introductionmentioning

confidence: 96%

“…Historically, there has been a focus on addressing problems by eliminating or suppressing menstruation in women with intellectual disabilities (Carlson, 2002). Studies have focused on the ''best'' ways of achieving this (Abbro, 1984;Kreutner, 1981;Molsa, 1986;Sheth & Malpani, 1991), raising legal and ethical concerns (Carlson, 2002;Fellowes, 2000) and giving insufficient emphasis to the possible health effects of such interventions, such as dysfunctions of the ovaries and cardiovascular system (Carlson & Wilson, 1996).…”

Section: Introductionmentioning

confidence: 99%

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The nature and extent of help given to women with intellectual disabilities to manage menstruation

Rodgers¹,

Lipscombe

2005

Journal of Intellectual & Developmental Disability

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Background Menstruation has been shown to be problematic for many women with intellectual disabilities. There has been a greater focus on menstrual suppression or elimination than on help and training to manage menstrual care successfully. Method A cross-sectional questionnaire survey was conducted in England to investigate the help and training currently given to women with intellectual disabilities. Results Twenty-nine percent of the women had never been given the opportunity to learn how to manage their own menstrual care. Where someone had tried to teach the woman, this was most often her mother. Carers were giving considerable amounts of assistance with menstrual care, although some of the women with more profound disabilities were able to manage menstrual care independently.Conclusions The authors argue that all women with intellectual disabilities should have the chance to manage or assist with their own menstrual care, backed by a strategic approach to menstrual education and support.

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“…Although managing a period is a routine self care activity for women with (and without) disabilities, any acknowledgement of menstruation is difficult to find in the occupational therapy literature (Carlson, 2002). The absence of everyday knowledge and practice, or its ‘silence’ from formal written accounts, is evidence of subjugation.…”

Section: Introductionmentioning

confidence: 99%

‘Le moment de la lune’. An auto-ethnographic tale of practice about menarche in a children’s hospital

Denshire

2011

Australian Occupational Therapy Journal

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Points of tension in 'Normal spaces' are elaborated and I explain how 'Le moment de la lune' problematises supporting menarche in a children's hospital. Now practice has moved on with dedicated adolescent wards in all major children's hospitals. Nevertheless, occupational therapy practice around issues of menstrual self-management is still under-documented. Writing about unspoken moments of practice can have ethical implications for expanding the ways occupational therapy practice can be written and understood.

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Supporting the health and well‐being of people with intellectual disability and high support needs through networking and resource development

Cited by 13 publications

References 16 publications

Menstrual Problems Experienced by Women with Learning Disabilities

Menstrual Problems Experienced by Women with Learning Disabilities

The nature and extent of help given to women with intellectual disabilities to manage menstruation

‘Le moment de la lune’. An auto-ethnographic tale of practice about menarche in a children’s hospital

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