Team-Based Qualitative Rapid Analysis: Approach and Considerations for Conducting Developmental Formative Evaluation for Intervention Design

Schexnayder, Julie; Perry, Kathleen R.; Sheahan, Kate; Elliott, Nadya Majette; Subramaniam, Soumya; Strawbridge, Elizabeth; Webel, Allison R.; Bosworth, Hayden B.; Gierisch, Jennifer M.

doi:10.1177/10497323231167348

Cited by 9 publications

(4 citation statements)

References 39 publications

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“…We identified rapid data analysis (RDA) as our analysis plan to facilitate rapid intervention development while maintaining scientific rigor [43][44][45]. We conducted rapid qualitative analysis because our goal was not to elicit new perspectives or an in-depth understanding of dyadic relationships in dementia but to understand key intervention elements, safety issues, and facilitators and barriers to implementation of the technologically mediated biopsychosocial intervention being developed.…”

Section: Discussionmentioning

confidence: 99%

Bio-Experiential Technology to Support Persons With Dementia and Care Partners at Home (TEND): Protocol for an Intervention Development Study

Rochon,

Sy,

Phillips

et al. 2023

JMIR Res Protoc

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Background Alzheimer disease and related dementias are debilitating and incurable diseases. Persons with dementia and their informal caregivers (ie, dyads) experience high rates of emotional distress and negative health outcomes. Several barriers prevent dyads from engaging in psychosocial care including cost, transportation, and a lack of treatments that target later stages of dementia and target the dyad together. Technologically informed treatment and serious gaming have been shown to be feasible and effective among persons living with dementia and their care partners. To increase access, there is a need for technologically informed psychosocial interventions which target the dyad, together in the home. Objective This study aims to develop the toolkit for experiential well-being in dementia, a dyadic, “bio-experiential” intervention for persons with dementia and their caregivers. Per our conceptual model, the toolkit for experiential well-being in dementia platform aims to target sustained attention, positive emotions, and active engagement among dyads. In this paper, we outline the protocol and conceptual model for intervention development and partnership with design and development experts. Methods We followed the National Institutes of Health (NIH) stage model (stage 1A) and supplemented the model with principles of user-centered design. The first step includes understanding user needs, goals, and strengths. We met this step by engaging in methodology and definition synthesis and conducting focus groups with dementia care providers (N=10) and persons with dementia and caregivers (N=11). Step 2 includes developing and refining the prototype. We will meet this step by engaging dyads in up to 20 iterations of platform β testing workshops. Step 3 includes observing user interactions with the prototype. We will meet this step by releasing the platform for feasibility testing. Results Key takeaways from the focus groups include balancing individualization and the dyadic relationship and avoiding confusing stimuli. As of September 2023, we have completed focus groups with providers, persons with dementia, and their caregivers. Additionally, we have conducted 4 iterations of β testing workshops with dyads. Feedback from focus groups informed the β testing workshops; data have not yet been formally analyzed and will be reported in future publications. Conclusions Technological interventions, particularly “bio-experiential” technology, can be used in dementia care to support emotional health among persons with a diagnosis and caregivers. Here, we outline a collaborative intervention development process of bio-experiential technology through a research, design, and development partnership. Next, we are planning to test the platform’s feasibility as well as its impact on clinical outcomes and mechanisms of action. International Registered Report Identifier (IRRID) DERR1-10.2196/52799

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Section: Discussionmentioning

confidence: 99%

Bio-Experiential Technology to Support Persons With Dementia and Care Partners at Home (TEND): Protocol for an Intervention Development Study

Rochon,

Sy,

Phillips

et al. 2023

JMIR Res Protoc

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“… 44 We will analyze the primary qualitative data using a rapid analytic approach. 45 , 46 Summary templates will be reviewed weekly to bolster confirmability, trustworthiness, dependability, and credibility. Summary information will be transferred to matrices organized by informant and interview domains to facilitate data condensation and synthesis, paying attention to similarities, differences, and trends in responses across informant type.…”

Section: Methodsmentioning

confidence: 99%

“…We will ensure the validity and reliability of findings and the iterative generation of codes through regular team discussions. We will systematically capture team reflections in templated analytic memos 46 and code the matrix using codes drawn from NASSS and PHCR through independent coders. Investigators will maintain an audit trail of coding and analytic decisions.…”

Section: Methodsmentioning

confidence: 99%

Optimizing the Equitable Deployment of Virtual Care for Women: Protocol for a Qualitative Evidence Synthesis Examining Patient and Provider Perspectives Supplemented with Primary Qualitative Data

Goldstein,

Patel,

Van Loon

et al. 2023

Health Equity

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Introduction: Women experience numerous barriers to patient-centered health care (e.g., lack of continuity). Such barriers are amplified for women from marginalized communities. Virtual care may improve equitable access. We are conducting a partner-engaged, qualitative evidence synthesis (QES) of patients' and providers' experiences with virtual health care delivery for women. Methods: We use a best-fit framework approach informed by the Non-adoption, Abandonment, Scale-up, Spread, and Sustainability framework and Public Health Critical Race Praxis. We will supplement published literature with qualitative interviews with women from underrepresented communities and their health care providers. We will engage patients and other contributors through multiple participatory methods. Results: Our search identified 5525 articles published from 2010 to 2022. Sixty were eligible, of which 42 focused on women and 24 on provider experiences. Data abstraction and analysis are ongoing. Discussion: This work offers four key innovations to advance health equity: (1) conceptual foundation rooted in an antiracist action-oriented praxis; (2) worked example of centering QES on marginalized communities; (3) supplementing QES with primary qualitative information with populations historically marginalized in the health care system; and (4) participatory approaches that foster longitudinal partnered engagement. Health Equity Implications: Our approach to exploring virtual health care for women demonstrates an antiracist praxis to inform knowledge generation. In doing so, we aim to generate findings that can guide health care systems in the equitable deployment of comprehensive virtual care for women.

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“…All team members then reviewed themes to establish agreement, a process also taken by Schexnayder et al (2023). 54…”

Section: Matrices Analysismentioning

confidence: 99%

Adapting the Serious Illness Conversation Guide for Unhoused Older Adults: A Rapid Qualitative Study

Latimer,

Pope,

Lin

et al. 2024

Preprint

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Background Older adults experiencing homelessness (OAEH) age quickly and die earlier than their housed counterparts. Illness-related decisions are best guided by patients’ values, but healthcare and homelessness service providers need support in facilitating these discussions. The Serious Illness Conversation Guide (SICG) is a communication tool to guide discussions but has not yet been adapted for OAEH. Methods We aimed to adapt the SICG for use with OAEH by nurses, social workers, and other homeless service providers. We conducted semi-structured interviews with homeless service providers and cognitive interviews with OAEH using the SICG. Service providers included nurses, social workers, or others working in homeless settings. OAEH were at least 50 years old and diagnosed with a serious illness. Interviews were conducted and audio recorded in shelters, transitional housing, a hospital, public spaces, and over Zoom. The research team reviewed transcripts, identifying common themes across transcripts and applying analytic notetaking. We summarized transcripts from each participant group, applying rapid qualitative analysis. For OAEH, data that referenced proposed adaptations or feedback about the SICG tool were grouped into two domains: “SICG interpretation” and “SICG feedback”. For providers, we used domains from the Toolkit of Adaptation Approaches: “collaborative working”, “team”, “endorsement”, “materials”, “messages”, and “delivery”. Summaries were grouped into matrices to help visualize themes to inform adaptations. The adapted guide was then reviewed by expert palliative care clinicians for further refinement. Results The final sample included 11 OAEH (45% Black, 61±7 years old) and 10 providers (80% White, 8.9± years practice). Adaptation themes included changing words and phrases to 1) increase transparency about the purpose of the conversation, 2) promote OAEH autonomy and empowerment, 3) align with nurses’ and social workers’ scope of practice regarding facilitating diagnostic and prognostic awareness, and 4) be sensitive to the realities of fragmented healthcare. Responses also revealed training and implementation considerations. Conclusions The adapted SICG is a promising clinical tool to aid in the delivery of serious illness conversations with OAEH. Future research should use this updated guide for implementation planning. Additional adaptations may be dependent on specific settings where the SICG will be delivered.

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Team-Based Qualitative Rapid Analysis: Approach and Considerations for Conducting Developmental Formative Evaluation for Intervention Design

Cited by 9 publications

References 39 publications

Bio-Experiential Technology to Support Persons With Dementia and Care Partners at Home (TEND): Protocol for an Intervention Development Study

Bio-Experiential Technology to Support Persons With Dementia and Care Partners at Home (TEND): Protocol for an Intervention Development Study

Optimizing the Equitable Deployment of Virtual Care for Women: Protocol for a Qualitative Evidence Synthesis Examining Patient and Provider Perspectives Supplemented with Primary Qualitative Data

Adapting the Serious Illness Conversation Guide for Unhoused Older Adults: A Rapid Qualitative Study

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