Telehealth perceptions in patients with epilepsy and providers during the COVID-19 pandemic

Casares, Maritsa; Wombles, Christina; Skinner, Holly; Westerveld, Michael; Gireesh, Elakkat D.

doi:10.1016/j.yebeh.2020.107394

Cited by 31 publications

(44 citation statements)

References 3 publications

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“…Although geographically apart, the patient populations studied were similar in the two centers consisting of children (mean age 10.4 years, SD 5.1) with chronic epilepsy but poorly controlled seizures in the past 12 months, many of whom required recent medication changes. In keeping with another survey carried out in North America, technology access telemedicine was not a limitation to our patients ( 7 ). However, one should consider limited access to Internet as a relevant barrier for virtual clinics in underdeveloped countries, and telephone contact should be prioritized ( 11 ).…”

Section: Discussionsupporting

confidence: 76%

“…Even though telemedicine has been successfully used to provide epilepsy care for over a decade in some centers (2,3), it was underutilized in epilepsy care before the pandemic (4). Initially designed to provide care in rural and remote areas, telemedicine effectiveness and patients' and providers' high satisfaction rates have encouraged its implementation in several centers (3,(5)(6)(7). In addition, virtual visits may also save costs for patients (3).…”

Section: Introductionmentioning

confidence: 99%

“…In addition, virtual visits may also save costs for patients ( 3 ). Furthermore, with communication tools becoming easily accessible throughout the world, many patients and providers have expressed their willingness to incorporate both in-person and virtual appointments ( 7 , 8 ).…”

Section: Introductionmentioning

confidence: 99%

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Telehealth for Children With Epilepsy Is Effective and Reduces Anxiety Independent of Healthcare Setting

et al. 2021

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Objectives: The use of telemedicine has grown exponentially as an alternative to providing care to patients with epilepsy during the pandemic. We investigated the impact of the current pandemic among children with epilepsy from two distinct pediatric epilepsy centers. We also compared perceptions among those who received telemedicine against those who did not.Methods: We developed a questionnaire and invited families followed in Freiburg, Germany, and Calgary, Alberta, Canada, to participate during the initial 9 months of the pandemic. The survey contained 32 questions, 10 of which were stratified according to telemedicine exposure.Results: One hundred twenty-six families (80 in Freiburg, 46 in Calgary) participated, and 40.3% received telemedicine care. Most children (mean age 10.4 years, SD 5.1) had chronic epilepsy but poorly controlled seizures. Negative impacts were reported by 36 and 65% of families who had to reschedule appointments for visits and diagnostics, respectively. Nearly two-thirds of families reported no change in seizure frequency, while 18.2% reported either worsening or improvement of seizures. Although most families did not note behavioral changes, 28.2% reported behavior worsening. Families who received telemedicine care had a statistically significant reduction of parental self-reported anxiety level after virtual visits compared to those who did not experience telemedicine. Families with telemedicine consultations were more likely to consider future virtual care (84 vs. 65.2% of those without), even after the pandemic. Patient data safety, easy access to specialized services, and consistency with the same healthcare provider were graded as important in both centers, while a shorter waiting time was most relevant in Calgary.Conclusion: In our cohort, some children with epilepsy experienced increased seizures and worsening behavior during the first 9 months of the current pandemic. In addition, our data suggest that telemedicine might reduce parental anxiety symptoms, and families who experienced telehealth were more positive and open to similar appointments in the future.

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Section: Discussionsupporting

confidence: 76%

Section: Introductionmentioning

confidence: 99%

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Telehealth for Children With Epilepsy Is Effective and Reduces Anxiety Independent of Healthcare Setting

et al. 2021

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“…Logically speaking, the review of concept and theoretical notions should take place prior to the measurement of this construct, while the analysed papers studied patient satisfaction in the reverse order. There were also papers in which satisfaction was not defined at all [43,[46][47][48][49]53,56,61,[64][65][66][67]72,80]. Taking into account both the survey questionnaires developed by the authors as well as well-defined, known, validated and reliable measures, these treat satisfaction as a multi-dimensional construct.…”

Section: Recommendations For Preparing Research On Patient Satisfaction With Remote Healthcarementioning

confidence: 99%

The Research on Patient Satisfaction with Remote Healthcare Prior to and during the COVID-19 Pandemic

Hawrysz

Gierszewska

Bitkowska

2021

IJERPH

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The issue of research on patient satisfaction with healthcare services took on a completely new dimension due to the COVID-19 pandemic and the developing telehealth services. This results from the fact that during the pandemic, remote healthcare was often the only possible form of care provision to the patient. The COVID-19 pandemic has substantially accelerated the implementation of remote healthcare in healthcare institutions and made it an essential tool for providing healthcare services. The objective of the literature review was to study the research on patient satisfaction with remote healthcare services prior to and during the pandemic. The study featured a literature review of electronic databases, such as: Medline, ProQuest, PubMED, Ebsco, Google Scholar, WoS. The identified empirical papers were classified in two groups concerning the research on patient satisfaction prior to and during the COVID-19 pandemic, and were divided and descriptively synthesised. Certain limitations to the methodical quality of the research were demonstrated as result of the conducted analyses. It was also ascertained that researchers lack clarity on the method of defining and measuring satisfaction prior to and during the COVID-19 pandemic.

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“…Zwischenzeitlich stehen weltweite Erfahrungen mit telemedizinischen Behandlungen von Patient*innen mit Epilepsie zur Verfügung [ 5 , 7 , 8 , 17 , 20 , 26 , 27 ]. Die Mehrzahl der Untersuchungen bezieht sich auf die Ergebnisse der telemedizinischen Sprechstunden während der ersten Corona-Welle im Frühjahr 2020.…”

Section: Erfahrungen Der Implementierung Der Telemedizin In Der Ambulanten Patientenversorgungunclassified

Patient-zu-Arzt-Anwendungen in der ambulanten Epilepsieversorgung

Wrede

Surges

2021

Z. Epileptol.

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Die telemedizinische Behandlung von Patient*innen mit Epilepsie ist eine Erweiterung der bislang die ambulante Versorgungslandschaft im Wesentlichen prägenden klassischen persönlichen Arztbesuche. Unter administrativen, finanziellen und rechtlichen nun klareren Rahmenbedingungen konnten, durch die COVID-19-Pandemie katalysiert, rasch die zuvor langsameren Prozesse in der Umsetzung beschleunigt werden. Nationale und internationale Erfahrungen verweisen auf eine Noninferiorität im Vergleich zu Vor-Ort-Besuchen. Verbindliche Algorithmen der Zuordnung Vor-Ort-Besuch vs. telemedizinische Behandlung sind noch ausstehend und sollten zukünftig unter Berücksichtigung der Patientencharakteristika sowie Behandlungssituation erarbeitet werden.

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Telehealth perceptions in patients with epilepsy and providers during the COVID-19 pandemic

Cited by 31 publications

References 3 publications

Telehealth for Children With Epilepsy Is Effective and Reduces Anxiety Independent of Healthcare Setting

Telehealth for Children With Epilepsy Is Effective and Reduces Anxiety Independent of Healthcare Setting

The Research on Patient Satisfaction with Remote Healthcare Prior to and during the COVID-19 Pandemic

Patient-zu-Arzt-Anwendungen in der ambulanten Epilepsieversorgung

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