The applications of PROs in clinical practice: what are they, do they work, and why?

Greenhalgh, Joanne

doi:10.1007/s11136-008-9430-6

Cited by 542 publications

(433 citation statements)

References 76 publications

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“…A recent review identified that screening using PROs often leads to an increased detection rate of problems by clinicians but is rarely followed up by interventions or associated with an improvement of patient symptoms [18]. This may be due to the fit of the intervention in clinical practice as well as the attitude of clinicians to the use of quality of life measures for decision making [1].…”

Section: Discussionmentioning

confidence: 99%

“…However, evidence for efficacy is mixed possibly due to the complexity of the intervention which involves not only sound PROs but also training on interpretation of scores and management guidelines for staff [1]. In the United States, guidelines and national initiatives have been published to promote assessment and management of supportive care needs of cancer patients including psychological, social and spiritual concerns [2].…”

Section: Introductionmentioning

confidence: 99%

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The Social Difficulties Inventory (SDI): development of subscales and scoring guidance for staff

et al. 2010

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Aims: To develop subscales for clinical use of the Social Difficulties Inventory (SDI) with score interpretation guidance for use in routine oncology practice.Background: Patient-reported outcome measures are used increasingly in cancer care but successful implementation is dependent on a combination of sound psychometrics, guidance on clinical meaning and good clinical judgement. The SDI, a 21-item instrument (SDI-21) developed for use in cancer care, demonstrated good psychometric properties. Rasch analysis of the SDI resulted in a 16-item interval scale of Social Distress (SD-16), which allowed for establishment of some clinical utility guidance but further work was required to optimise meaningful interpretation in clinical practice.Data sources: Data were pooled from three studies investigating psychometrics and clinical utility of the SDI-21.Statistical analyses: Common factor analysis was undertaken on SD-16 items. Subscales were derived from the resulting factors and calculated by summing the scores of associated items. Subscale reliability was evaluated using Cronbach's a.Results: There were 652 participants. A three-factor model explaining 53.3% of the variance was extracted forming the basis of the subscales: Everyday living, Money matters and Self and others. Subscale reliability was good. In a clinical setting, a 2-point change in subscale score could be interpreted as a clinically meaningful difference.Conclusion: The development of three subscales and clinically significant difference scores for the SD-16, combined with the previously developed cut-off points, improves the clinical utility of the SDI-21 when assessing social issues in oncology care.

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Section: Discussionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

The Social Difficulties Inventory (SDI): development of subscales and scoring guidance for staff

et al. 2010

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“…PROMs have been used in research -as outcomes in clinical trials and economic evaluations -for many years (Appleby et al, 2004;Fung and Hays, 2008;Greenhalgh, 2008;Marshall et al, 2006;Rose and Bezjak, 2009;Snyder and Aaronson, 2009) and have recently migrated into everyday clinical practice (Appleby and Devlin, 2005;Black, 2013;Fung and Hays, 2008;Rothwell et al, 2010;Snyder and Aaronson, 2009).…”

Section: Introductionmentioning

confidence: 99%

An acute knee injury: tracking a two-year recovery online

Taylor

Williams

2015

IJEH

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Current government policy aims to deliver high quality healthcare by recording accurate data at the point of giving care, storing it efficiently and displaying it in a format, which is easily interpreted by healthcare professionals and patients. Few published reports describe the benefits of collecting and reporting such data from the point of view of the patient. We report the case of a 62-year-old lorry driver who used a web-based system to track patient reported outcome measures (PROMs) following an acute knee injury to full recovery over a 24-month period. The system reports clinical outcome scores in real-time to the patient and their medical team, clearly illustrating and enhancing recovery from injury. This case reveals how local software meets the needs of the individual patient linking and integrating such local systems must be the future focus of eHealth within the NHS to release the benefits presented by the information revolution.

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“…Nonetheless, it is currently accepted that it should also include the patient's perspective, which can be obtained with the use of patient-reported outcome measures (PROMs). There is evidence that PROMs enable the clinician to better judge patients' problems, because they provide a means to gain insight into the way patients perceive their health and the impact treatments have on their quality of life, and this will help in choosing the most suitable management for their condition [1].…”

Section: Introductionmentioning

confidence: 99%

Outcome instruments to assess scoliosis surgery

et al. 2012

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The applications of PROs in clinical practice: what are they, do they work, and why?

Abstract: Future research needs to identify ways in with PROs can be better incorporated into the routine care of patients by combining qualitative and quantitative methods and adopting appropriate trial designs.

Cited by 542 publications

References 76 publications

The Social Difficulties Inventory (SDI): development of subscales and scoring guidance for staff

The Social Difficulties Inventory (SDI): development of subscales and scoring guidance for staff

An acute knee injury: tracking a two-year recovery online

Outcome instruments to assess scoliosis surgery

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