The Association between Hope and Quality of Life among Adolescents with Chronic Diseases: A Systematic Review

Mardhiyah, Ai; Philip, Koshy; Mediani, Henny Suzana; Yosep, Iyus

doi:10.4094/chnr.2020.26.3.323

Cited by 21 publications

(14 citation statements)

References 20 publications

(28 reference statements)

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“…Social function assessment describes a child's ability to interact with peers and get along with friends at school. Assessment of school functions describes a child's ability to do the tasks given at school (Kavitha & Padmaja, 2019;Mardhiyah et al, 2020;Nikmah & Mauliza, 2018).…”

Section: Discussionmentioning

confidence: 99%

“…Thus, if the physical condition is considered stress, a substance resembling beta-carboline, a GABA antagonist, causes a decrease in the number (down-regulate) of GABA receptors. It then causes reduced resistance to anxiety and eases reactions to stress (Isworo et al, 2012;Kavitha & Padmaja, 2019;Mardhiyah et al, 2020). Emotional dysfunction is influenced by various things, such as feeling depressed during diagnosis, therapy that must be undertaken regularly every month and skipping school because of having to undergo therapy (Nikmah & Mauliza, 2018).…”

Section: Discussionmentioning

confidence: 99%

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Quality Of Life of Children with Thalassemia in Indonesia: Review

Rahmah

Makiyah

2022

IJNP

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Background: Thalassemia is an inherited disorder of hemoglobin (Hb) synthesis. Treatment of thalassemia has not yet reached the level of cure. Globally, the management of thalassemia is symptomatic in the form of lifelong blood transfusions. Data on children with thalassemia major in Indonesia has not been widely published. However, various studies clearly showed growth and development disorders and behavior that greatly affected the quality of life of children with thalassemia. Blood transfusions and lifelong use of drugs often lead to feelings of boredom of treatment, not to mention physical changes and the feeling of being different from relatives or friends that will cause the feeling of inferiority. They often drop out of school and do not find work, which causes highly severe psychosocial effects. Objective: This paper aims to provide an overview of the quality of life of children with thalassemia in Indonesia so that it can be used as a reference in providing appropriate management regarding the quality of life of children with thalassemia. Methods: This literature search used google scholar and pubmed for complete publications in 2010-2020 with the keywords "quality of life", "thalassemia children," and "Indonesia”. Result: There were six research articles related to this search. Indonesia's average quality of life for children with thalassemia ranged from 50% to 67.2%.Conclusion: Of the four domains assessed, school function had the lowest average, followed by emotional, physical and social function. Child health services need to optimize children's functional abilities and quality of life.

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Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

Quality Of Life of Children with Thalassemia in Indonesia: Review

Rahmah

Makiyah

2022

IJNP

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“…Becoming a PMC journal and being searchable in PubMed will trigger the recruitment of manuscripts from researchers worldwide, although CHNR's regional scope is currently mainly Korea. After becoming a Scopus-indexed and English-only journal, unsolicited submissions were received from countries outside Korea, including Indonesia, Egypt, and Nepal [2][3][4][5][6]. After being listed in PMC and PubMed, this trend will be accelerated since these two databases are very wellknown among nursing researchers.…”

Section: Chnrmentioning

confidence: 99%

Congratulations on <i>Child Health Nursing Research</i> becoming a PubMed Central journal and reflections on its significance

Huh¹

2022

Child Health Nurs Res

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worked as the editor-in-chief. We discussed the production of full-text journal article tag suite extensible markup language (JATS XML) files, also called PMC XML files. I suggested a way to produce full-text JATS XML files for Korean-language articles. Starting with the second issue of volume 21 in 2015, full-text JATS XML files were made and uploaded to the journal homepage (https://www.e-chnr.org/). At that time, only a few publishing companies were able to produce full-text XML files of Korean-language articles. Since then, I have continued to have discussions with the editors-in-chief of CHNR, Dr.

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“…The relationship between hope and quality of life in adolescents has been evaluated in various chronic diseases, across multiple countries, cultures, and settings. A systematic review of five included studies found a positive correlation between hope and quality of life; hope was found to have both direct and indirect effects on QOL in adolescents with chronic diseases [27]. Hope is considered as a protective role for improving the quality of life in adolescents with cancer [28].…”

Section: Introductionmentioning

confidence: 99%

Hope and Quality of Life among Adolescent with Thalassemia: A Cross-sectional Study in Indonesia

Mardhiyah

Mediani²,

Panduragan³

et al. 2022

Open Access Maced J Med Sci

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Background: Adolescents with thalassemia major had a worse quality of life (QOL) than healthy adolescents. Hope is considered as a protective factor to enhance QOL. The relationship between hope and quality of life in adolescents has been evaluated in various chronic diseases, across multiple countries, cultures, and settings. However studies on exploring the relationship between hope and QOL among adolescents with thalassemia are limited, especially in Indonesia. Objectives: This study aimed to determine the relationship between hope and QOL among adolescents with thalassemia in Indonesia. Methods: A cross-sectional study was carried out from April to Juni 2021. The respondents in this study were 120 adolescents who met the criteria (1) they were teenagers (10-19 years old) who received regular blood transfusions, (2) they could write and read, (3) adolescents who are not mentally retarded. Instruments include demographic data sheets, Child Hope Scale (CHS), and TranQOL. Data were analysis using the Pearson correlational test and multiple regression hierarchical analysis. Results: This study found that 65 (54.17%) were boys, and 55 (45.83%) were girls. About 64.17% had transfusion period for once in 2 - 4 weeks, and 4.17% with comorbidity, and 77.5% having hemoglobin 7 mg/dl. The mean QOL score among adolescents with thalassemia was 47.82 (SD=15.38). Hope and TranQOL scores were positively and strongly associated (r = 0.463, p<0.01). After adjusting for demographic and clinical factors, this finding revealed that hope was significantly and positively associated with QOL in step two. Hope had a significant impact on thalassemic adolescents' QOL (R2 = 0.371, R2 change = 0.239) Conclusion: Hope is a factor that is related and greatly influences the quality of life of thalassemia survivors so that the development of programs and policies that design the expectations of thalassemia survivors and their families will improve the quality of life of patients with thalassemia.

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The Association between Hope and Quality of Life among Adolescents with Chronic Diseases: A Systematic Review

Cited by 21 publications

References 20 publications

Quality Of Life of Children with Thalassemia in Indonesia: Review

Quality Of Life of Children with Thalassemia in Indonesia: Review

Congratulations on <i>Child Health Nursing Research</i> becoming a PubMed Central journal and reflections on its significance

Hope and Quality of Life among Adolescent with Thalassemia: A Cross-sectional Study in Indonesia

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