The Associations of Chronic Condition Type and Individual Characteristics With Transition Readiness

Beal, Sarah J.; Riddle, Ilka; Kichler, Jessica C.; Duncan, Amie; Houchen, Andrea; Casnellie, Lori; Woodward, Julie; Corathers, Sarah

doi:10.1016/j.acap.2016.06.007

Cited by 108 publications

(53 citation statements)

References 28 publications

Supporting

Mentioning

Contrasting

Unclassified

Order By: Relevance

“…In particular, older age (Cantu‐Quintanilla et al, ; Ferris et al, ) and female sex (Javalkar, Fenton, Cohen, & Ferris, ; Sawicki et al, ) are associated with higher levels of HCT readiness. Intellectual disability and learning difficulties appear to be associated with lower HCT readiness (Beal et al, ; Hart, Pollock, Hill, & Maslow, ), so we included the child's educational support as a marker of intellectual difficulties.…”

Section: Methodsmentioning

confidence: 99%

Association of youth health care transition readiness to role overload among parents of children with chronic illness

Hart

Tilburg

Campbell

et al. 2019

Child

View full text Add to dashboard Cite

Background: A parent's level of role overload, a situation in which the demands of an individual's roles are beyond their capacity to perform adequately, has been associated with poor outcomes in adolescents. It is unknown if role overload in parents is associated with less health care transition (HCT) readiness in their children with chronic conditions. We sought to assess this relationship.Methods: Youth with chronic conditions attending a therapeutic camp and their parents completed online consents/assents and de-identified surveys. Parents reported on parental role overload using the Reilly Role Overload Scale and a proxy assessment of the youth's HCT readiness using the STAR x -Parent Questionnaire. Youth self-reported on their HCT readiness using the STAR x Questionnaire.Linear regression measured the relationship between parent role overload and HCT readiness, controlling for youth's age, sex, and degree of youth's educational support.Results: One hundred fifty-two parents and 50 youth completed the measures.Greater parental role overload was associated with less overall HCT readiness on the parent proxy measure (β = −.12, P ≤ .008) and a lower level in the selfmanagement domain on the parent proxy measure (β = −.20, P ≤ .001). We found no associations between parent role overload and youth self-report of HCT readiness. Conclusion:Parent's level of role overload had no association with youth's self-report of HCT readiness but was negatively associated with parent proxy report of their youth's HCT readiness, suggesting that parents with high levels of role overload may perceive their youth as less ready to transition to adultfocused care.

show abstract

Section: Methodsmentioning

confidence: 99%

Association of youth health care transition readiness to role overload among parents of children with chronic illness

Hart

Tilburg

Campbell

et al. 2019

Child

View full text Add to dashboard Cite

show abstract

“…The Transition Readiness Assessment Questionnaire (TRAQ), measuring participation in general transition-age tasks, and the Adolescent/Young Adult Self-Management and Independence Scale II (AMIS II), measuring independence both SB specific and general AYA self-management tasks, have been previously used with AYASB [35][36][37]. Goal-setting interventions show promise in improving care responsibility, independence, and general executive functioning for AYASB [38][39][40].…”

Section: Assessment and Intervention For Transition Readiness And Selmentioning

confidence: 99%

Spina bifida transition to adult healthcare guidelines

Fremion

Dosa

2019

PRM

View full text Add to dashboard Cite

With an estimated 85% of individuals with spina bifida (SB) surviving into adulthood, SB-specific transition to adult healthcare guidelines are warranted to address the diverse and complex medical, adaptive, and social needs particular to this condition. This commentary discusses the SB Transition Healthcare Guidelines from the 2018 Spina Bifida Association's Fourth Edition of the Guidelines for the Care of People with Spina Bifida, reviews current transition care models in which such guidelines can be implemented, and explores further research topics in SB transition care.

show abstract

“…11,12 Deve-se levar em consideração a época em que a doença foi diagnosticada, bem como as transformações que acarreta na vida do indivíduo, englobando processos de tomada de decisão e construção de uma rede que abranja família, hospital, escola e sistema de garantia de direitos. 13,14 Também deve-se considerar se os adolescentes exibem 'comportamentos adultos', como gravidez, abuso de substâncias ilegais, desafio às autoridades. Eles tendem a ser desligados dos serviços pediátricos precocemente, às vezes, sem os cuidados inerentes à transição.…”

Section: Introductionunclassified

Transição dos cuidados de pacientes com doenças crônicas da pediatria para a medicina de adultos: Práticas de um hospital terciário no Brasil

Pastura¹,

Paiva²

2018

Rev Ped SOPERJ

View full text Add to dashboard Cite

Transição para assistência do adulto; Cuidado transicional; Adolescente; Doença crônica; Serviços de saúde. Resumo Introdução: devido aos avanços nos cuidados médicos, 90% das crianças com doenças crônicas estão, na atualidade, sobrevivendo até a vida adulta. Por este motivo, é necessário um processo de transição dos cuidados da pediatria/hebiatria para a medicina do adulto que envolva uma equipe multidisciplinar e seja planejado, individualizado, gradual e baseado nas competências do adolescente, principalmente nos seus próprios cuidados e no conhecimento da sua doença. Objetivo: avaliar as condições da transição implementadas em serviços de especialidades pediátricas de um hospital público materno-infantil terciário no Rio de Janeiro. Métodos: estudo descritivo qualitativo baseado na aplicação de um questionário específico para avaliação da organização dos serviços de especialidades pediátricas quanto a este processo de transição de cuidados. Resultados: em apenas três de cinco unidades avaliadas existe um profissional ou uma equipe de profissionais de saúde dedicados ao processo de transição, porém não exclusivamente. Em nenhuma das cinco unidades avaliadas há consulta conjunta entre o pediatra e o médico de adultos antes da transferência, apesar de existirem referências externas para três serviços. Nenhum serviço utiliza ferramentas validadas para auxiliar a avaliação das habilidades do adolescente ao longo do processo ou conta com programas educativos específicos para a transição. Conclusões: não há um programa estabelecido de transição de cuidados para a medicina de adultos para pacientes com doenças crônicas em nossa unidade.

show abstract

The Associations of Chronic Condition Type and Individual Characteristics With Transition Readiness

Cited by 108 publications

References 28 publications

Association of youth health care transition readiness to role overload among parents of children with chronic illness

Association of youth health care transition readiness to role overload among parents of children with chronic illness

Spina bifida transition to adult healthcare guidelines

Transição dos cuidados de pacientes com doenças crônicas da pediatria para a medicina de adultos: Práticas de um hospital terciário no Brasil

Contact Info

Product

Resources

About