The benefits of a standardized patient education program for patients with Parkinson's disease and their caregivers

A’Campo, L. E. I.; Wekking, Ellie M.; Spliethoff-Kamminga, N. G. A.; Cessie, Saskia le; Roos, Raymund A.C.

doi:10.1016/j.parkreldis.2009.07.009

Cited by 97 publications

(149 citation statements)

References 24 publications

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“…Fifteen studies (57.7%) tested an exercise intervention [14-28], and the remaining 11 studies each evaluated a different intervention including acupuncture [29], neuromuscular electrical stimulation [30], patient education [31], reflexology [32], self-management program [33], spa therapy [34], cognitive training [35], cueing training [36], music therapy [10], neuromuscular therapy [37], and physiotherapy network [38]. Eighteen of the 26 studies (69.2%) measured QOL asa primary outcome [14-20,22,24,25,27-34], while the remainders measured it as secondary outcomes [10,21,23,26,35-38].…”

Section: Resultsmentioning

confidence: 99%

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Effects of Non-PharmacologicalTreatments on Quality of Life in Parkinson’s Disease: A Review

Ahn

Chen

Bredow

et al. 2017

J Parkinsons Dis Alzheimers Dis

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Parkinson's disease is a neurodegenerative chronic condition with a declining trajectory and lack of a cure, making quality of life an important aspect of care. The purpose of this literature review was to analyze the state-of-the-science on the effects of non-pharmacological treatments on quality of life in person's with Parkinson's disease. Literature search was conducted using keywords in electronic databases up to September 1, 2016 and cross-searching the references of identified articles. Of the 259 articles generated, 26 met the eligibility criteria and were included in this review. The majority of studies (77%) were Level I evidence and 23% Level II evidence. The levels of study quality were: strong (50%), moderate (15%), and weak (35%). The interventions varied across studies with 15 studies evaluating a similar intervention. About 58% of the studies showed that the interventions improved quality of life. In conclusion, a variety of non-pharmacological interventions have been increasingly studied for their effects on quality of life in Parkinson's disease, showing initial promising results. However, most interventions were only examined by a limited number of studies and the minimal and optimal intervention doses needed for improving quality of life are yet unknown.

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Section: Resultsmentioning

confidence: 99%

“…Twenty studies (77%) used the Parkinson's Disease Questionnaire 39 (PDQ-39) [10,17,19-27,29,31-38]. The PDQ-39 is a 39-item self-report questionnaire with a 5-point Likert-type scale, representing 8 domains (Mobility, Activities of Daily Living, Emotional Well-Being, Stigma, Social Support, Cognitions, Communication, and Bodily Discomfort).…”

Section: Resultsmentioning

confidence: 99%

Effects of Non-PharmacologicalTreatments on Quality of Life in Parkinson’s Disease: A Review

Ahn

Chen

Bredow

et al. 2017

J Parkinsons Dis Alzheimers Dis

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“…Attending caregiver support groups may lessen loneliness and increase the perception of support (15), as the responders in the present study used to. Findings of harmful factors to the caretaker should be reflected in clinical guidelines and programs for the management of PD (13,24,25).…”

Section: Discussionmentioning

confidence: 99%

Anticipatory Grief among Close Relatives of Patients with Parkinson’s Disease

Johansson¹,

Grimby

2014

PBS

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Several illnesses cause suffering and pre-death grief among close relatives, as in cancer and dementia. This might be the case also at Parkinson's Disease (PD). We aimed at getting grief self-reports of relatives of PD patients using the same instrument (AGS) as in former grief studies to see similarities and differences. Anticipatory Grief Scale (AGS) and questions about background variables were sent to PD caregiver support groups in Sweden to be handed out to the members at their meetings. Close relatives of persons with Parkinson's disease (PD) reported feelings and reactions on the AGS, and the results were compared with those from relatives of dementia patients in a former study also using the AGS. Self-estimations about the duration of illness, the condition at the time for questioning, and the perceived quality of care of the relative with PD were also made. The study showed an overall stressful situation including feelings of missing and longing, inability to accept the terminal fact, preoccupation with the ill, tearfulness, sleeping problems, anger, loneliness, and a need to talk. The PD and dementia groups appeared to show much more anticipatory grief similarities than dissimilarities. The duration of the disease did not influence the grief reactions, which, however, was shown for perceived quality of care as regards irritability and preoccupation thinking of the ill relative. Also the respondents' perception of a bad condition of their relatives showed increased reports on loneliness, a need to talk about the illness, personal dysfunction, and not planning ahead.

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“…This can result in loss of confidence and independence (Mao et al, 2013). Self-help education programmes develop selfregulation skills through activities that include stress management, dealing with depression or anxiety and maintaining social competence (Macht et al, 2007;A'Campo et al, 2010).…”

Section: Education and Supportmentioning

confidence: 99%

Management of levodopa for residents with Parkinson’s disease

Mages

2016

Nursing Older People

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SummaryThis article discusses the medication management of levodopa in older people who have Parkinson's and live in a nursing home setting. It provides a detailed description of the diagnostic criteria, motor and non-motor clinical features of Parkinson's disease. Against this clinical picture the benefits and challenges of levodopa medication management are considered. A person-centered approach is championed as it supports collaborative clinical assessment and decision making between nurses and residents. To fully appreciate why a person-centered approach is important to safe and effective medication practice the pharmacological basis of levodopa management is explained. An empowerment approach to medication management is advocated that facilitates self-medication by residents. To this end the importance of continuous professional development for nursing home staff is discussed.

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The benefits of a standardized patient education program for patients with Parkinson's disease and their caregivers

Cited by 97 publications

References 24 publications

Effects of Non-PharmacologicalTreatments on Quality of Life in Parkinson’s Disease: A Review

Effects of Non-PharmacologicalTreatments on Quality of Life in Parkinson’s Disease: A Review

Anticipatory Grief among Close Relatives of Patients with Parkinson’s Disease

Management of levodopa for residents with Parkinson’s disease

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