The Burden of Sickle Cell Disease to Parents of Sufferers in Nigeria

Muoghalu, Caroline Okumdi

doi:10.15226/2377-4274/3/1/00113

Cited by 9 publications

(18 citation statements)

References 3 publications

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“…According to Muoghalu (24), low awareness, couples neglecting factual realities (incompatible genetical screening outcome) because of emotions, misconceptions of SCD, unavailability of screening centers in rural communities were some of the factors (highlighted by parents living with SCD sufferers) that led to birthing a sickle cell child. Sickle cell disease tremendously affects an individual psychosocial system and those of close family and friends of the individual.…”

Section: Sickle Cellmentioning

confidence: 99%

“…Firstly, Sickle cell disease condition poses a very traumatic experience for families, especially parents and partners, to bear (24). Sufferers of this condition always need medical attention, which could be traumatic and create family tensions.…”

Section: Sickle Cellmentioning

confidence: 99%

“…The financial burden also explains why some families resorted to loans to cater to the hospital bills of sufferers of SCD (25). This creates a ripple effect as a lack of funds results in poor nutrition for other family members of the household and culminates in the poor health of Nigerians (24). In addition, SCD is mainly symptomatic, and people living with the disease are continuously being monitored and cared for.…”

Section: Sickle Cellmentioning

confidence: 99%

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A critical review of the response of Nigeria to tuberculosis as an infectious disease and sickle cell as a long-term disease condition

James¹,

Miteu²,

Ajuk³

2022

World J. Bio. Pharm. Health Sci.

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Aims: Tuberculosis and Sickle cell are public health threats globally and in Nigeria. There is no study that that have captured how tuberculosis and sickle cell diseases have been managed in Nigeria. The aim of this review article is to bridge this study gap by evidently discussing the response of Nigeria and other relevant organization to these diseases and also the current challenges faced in response, management and mitigation of these diseases. This study also aims to keep the public health sector of ‘where we are’ and facilitate informed solution on ‘what can be done’ in a bid to manage these diseases more effectively. Methods: Scientific databases such as AJOL, Web of Science and PubMed were used to access relevant data on the disease of interest (Tuberculosis and Sickle cell). Articles relevant to the Nigerian setting was used and articles that did not revolve around the disease of interest were immediately excluded at first screening. Original articles not later than 2002 were included and used for this review, older articles were excluded for the purpose of this study. Results: This study revealed that the Federal Government of Nigeria showed much commitment in past years towards the fight of these diseases by setting up national programs and schemes. However, implementation has been weak since initiation. Government’s effort in time past towards mitigating these disease condition have not been effective because financial challenges of patients in getting treatments to manage these diseases. Last of all, associated comorbidities such as HIV, drug resistance and COVID-19 remain a major concern that affects response to tuberculosis and sickle cell disease. Conclusion: The government, relevant stakeholders, international and local NGOs, and ordinary individuals should must work together to effectively combat and eliminate the public health threats and concern posed by tuberculosis and sickle cell disease.

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Section: Sickle Cellmentioning

confidence: 99%

Section: Sickle Cellmentioning

confidence: 99%

Section: Sickle Cellmentioning

confidence: 99%

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A critical review of the response of Nigeria to tuberculosis as an infectious disease and sickle cell as a long-term disease condition

James¹,

Miteu²,

Ajuk³

2022

World J. Bio. Pharm. Health Sci.

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“…Nigeria and the disease affects about 2% of the population. 5,6 Sickle cell disease is the most common genetic disorder amongst black people and one of the major chronic noncommunicable diseases affecting children, poses a significant psychosocial burden, not only on the sufferers but also on the caregivers and their families. 7 Presently, there is no cure for sickle cell disease but costeffective treatment is available for the relief of symptoms and signs of the disease.…”

mentioning

confidence: 99%

“…Nigeria has been documented to bear the greatest burden of sickle cell disease in the world with a result of 100,000 infant death equivalents of 8 percent of infant mortality in the country. 5 Manifestation of Sickle cell disease differs widely with some children exhibiting severe manifestations requiring frequent hospital visits and admissions. The condition poses huge amount of stress and financial burden on the parents of children with Sickle cell disease who are usually the primary caregivers in most instances.…”

mentioning

confidence: 99%

The financial burden of sickle cell disease among parents of children with sickle cell disease in Lagos, Nigeria

2020

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Background: Sickle cell disease is a genetic condition that affects millions of people globally. In view of this, the study aims at determining the financial burden of sickle cell disease among caregivers of children with sickle cell disease in Nigeria.Methods: It was a descriptive cross sectional study and systematic sampling method was used in selecting 162 caregivers amongst the patients in the Lagos State University Teaching Hospital. Semi-structured questionnaires were used to collect data and analysed using SPSS version 22 software and Microsoft Excel 2007. Results were presented in frequency tables, chi-square to test association between categorical variables and the statistical significance level was set at p<0.05.Results: The mean age of the caregivers was 34.3 years with an increase in frequency of hospitalization 39% amongst respondents and a cost of hospital bill was over thirty thousand naira (US$76.82). The reason given mostly by 77% of the respondents for non-usage of health insurance was that the enrolment’s premium was high and 53% of the caregivers took loan to treat their wards. Catastrophic healthcare expenditure was found among a quarter 21% of the respondents due to non-usage of health insurance. There was a statistical significance association between level of education and Catastrophic healthcare expenditure at p value <0.05.Conclusions: Due to high level of financial burden on caregivers and family members, it will be an important step for the government to strengthen the health insurance scheme, intensify campaigns and subsidize costs of healthcare for these patients.

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Socio-economic burden of sickle cell disease on families attending sickle cell clinic in Kano state, northwestern Nigeria

Beli,

Ali,

Onuoha

et al. 2024

Global Pediatrics

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The Burden of Sickle Cell Disease to Parents of Sufferers in Nigeria

Cited by 9 publications

References 3 publications

A critical review of the response of Nigeria to tuberculosis as an infectious disease and sickle cell as a long-term disease condition

A critical review of the response of Nigeria to tuberculosis as an infectious disease and sickle cell as a long-term disease condition

The financial burden of sickle cell disease among parents of children with sickle cell disease in Lagos, Nigeria

Socio-economic burden of sickle cell disease on families attending sickle cell clinic in Kano state, northwestern Nigeria

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