The care burden of families with members having intellectual and developmental disorder

Abstract

The longevity of people with intellectual and developmental disorder has made caring for older adults with intellectual developmental disorder developing dementia a new challenge. In addition, worldwide deinstitutionalization has made it possible for people with intellectual and developmental disorder to live within their communities and integrate with the general population. Because disabled individuals may become parents themselves, the requirements of family care for children born to persons with intellectual and developmental disorder may be different from previous generations of parents who raised children with IDD.

Caring for a family member with intellectual disability and epilepsy: Practical, social and emotional perspectives

“…Whilst research has shown epilepsy to be common, 22 and associated with chronicity, severity and increased mortality in people with an intellectual disability 1,2 , less attention has been paid to family experiences of the care burden 21 . Research has focused on specific epilepsy syndromes; Lennox Gastaut 23 & Dravet.…”

Applying Risk Society Theory to findings of a scoping review on caregiver safety

“…, Northouse et al . , Wang ). The range and extent of psychological symptoms experienced by caregivers were a pattern easily identified in the data.…”

Das Belastungserleben naher Angehöriger von Erwachsenen mit geistiger Behinderung und komorbider psychischer Störung

“…Am wenigsten belastet waren die Angehörigen der Menschen mit GB [10]. Übereinstimmend wird berichtet, dass Mütter die hauptsächliche Betreuungsleistung erbringen und somit ein höheres Risiko als Väter haben, belastet zu sein [11]. Dies ist auch aus der Forschung zu Angehörigen von psychisch Erkrankten bekannt [2].…”