The Care Continues: Responsibility for Elderly Relatives Before and After Admission to a Long Term Care Facility<sup>*</sup>

Keefe, Janice; Fancey, Pamela

doi:10.1111/j.1741-3729.2000.00235.x

Cited by 77 publications

(62 citation statements)

References 30 publications

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“…There is a considerable body of literature on the guilt experienced by carers as they place their care receiver in a nursing home (Keefe & Fancey, 2000;Kellett, 1999). However, there is less literature examining experiences of guilt during the post-death transition.…”

Section: The Thrush Was That Bad It Was Coming Out His Lip I Supposementioning

confidence: 99%

“…The transition and post-placement period were viewed as an extremely stressful time due to the complex feelings associated with placement as well as the strain of negotiating new relationships with the staff and the relative (Noonan et al, 1999;Pearson et al, 2003;Wackerbarth, 1999). Research studies have also identified a wide array of complex emotions for the carer including guilt, anxiety, sadness, relief, a sense of failure, disempowerment and a loss of control (Argyle et al, 2010;Keefe & Fancey, 2000;Kellett, 1999).…”

Section: 3a Research Findings On the Post-caring/ Care Transitions mentioning

confidence: 99%

“…Admission into the hospital setting demands a renegotiation of the carer's role rather than a relinquishment of the role of family carer (Ferrell et al, 2009;Keefe & Fancey, 2000;Kong, 2008). The caring that typically occurs during visits is described as 'indirect' including an overseer of care (e.g.…”

Section: 3a Research Findings On the Post-caring/ Care Transitions mentioning

confidence: 99%

“…The caring that typically occurs during visits is described as 'indirect' including an overseer of care (e.g. advocacy) or 'direct' such as performing specific tasks, such as feeding, brushing hair, going for walks, shopping (Keefe & Fancey, 2000;Kellett, 1998). In their three year study using semi-structured interviews and ethnographic research to examine the effect on carers (N=60) of placement in nursing homes, Pearson et al (2003) found that carers often act as advocates or case managers in care homes.…”

Section: 3a Research Findings On the Post-caring/ Care Transitions mentioning

confidence: 99%

“…In their three year study using semi-structured interviews and ethnographic research to examine the effect on carers (N=60) of placement in nursing homes, Pearson et al (2003) found that carers often act as advocates or case managers in care homes. Keefe & Fancey (2000) interviewed 214 Canadian carers whose care receiver had been placed in a nursing home. They found that if the resident experienced increased mental confusion, the family carer engaged in more advocacy and monitoring of care rather than in direct tasks such as playing cards.…”

Section: 3a Research Findings On the Post-caring/ Care Transitions mentioning

confidence: 99%

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Between worlds: the experiences and needs of former family carers

Cronin

Hynes

Breen

et al. 2014

Health Soc Care Community

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While the financial, physical and psycho‐social burden for caregivers is recorded, less is known about the post‐caring experience. The purpose of this qualitative descriptive study was to explore the experiences and needs of Irish former family carers in the post‐caring/care transitions period. Former family carers were defined as family members who provided physical and/or social care to a family member with an illness or disability in the home for at least 6 months prior to nursing home/hospice placement or death. A total of 40 family carers were recruited from members of or known to voluntary care groups/associations in Ireland. Fourteen participants took part in a focus group discussion and 26 participated in one‐to‐one, semi‐structured interviews, all of which were undertaken in 2010. The focus group discussion focused on gaining a broad understanding of the participants' post‐caring experiences and the emergent themes formed the basis for the development of a semi‐structured interview guide. Data from the focus group were analysed inductively using Creswell's qualitative analysis framework, while template analysis was the method of analysis for the 26 individual interviews. For the participants in this study, post‐caring was a transition that comprised three, interrelated, non‐linear, iterative themes that were represented as ‘loss of the caring world’, ‘living in loss’ and ‘moving on’ and symbolised as being ‘between worlds’. Transition was a complex interplay of emotions overlaid with economic and social concerns that had implications for their sense of health and well‐being. This exploratory study begins to address the dearth of data on post‐caring/care experiences, but further research is needed to inform support interventions to enable former family carers to ‘move on’.

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Section: The Thrush Was That Bad It Was Coming Out His Lip I Supposementioning

confidence: 99%

Section: 3a Research Findings On the Post-caring/ Care Transitions mentioning

confidence: 99%

Section: 3a Research Findings On the Post-caring/ Care Transitions mentioning

confidence: 99%

Section: 3a Research Findings On the Post-caring/ Care Transitions mentioning

confidence: 99%

Section: 3a Research Findings On the Post-caring/ Care Transitions mentioning

confidence: 99%

See 3 more Smart Citations

Between worlds: the experiences and needs of former family carers

Cronin

Hynes

Breen

et al. 2014

Health Soc Care Community

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Long-term Care Placement of Dementia Patients and Caregiver Health and Well-being

Schulz

Belle

Czaja

et al. 2004

JAMA

325

272

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Context Placing a relative with dementia into a long-term care facility is common among caregivers. Placement transition and factors that affect caregiver health and well-being after placement of the patient are not well described. Objective To assess the impact of placing a relative with dementia in a long-term care facility on caregivers' health and well-being. Design, Setting, and Participants Prospective study from 1996 to 2000 of the placement transition in a sample of 1222 caregiver-patient dyads recruited from 6 US sites. A total of 180 patients were placed in a long-term care facility during the 18month follow-up period. Data collected before and after placement were analyzed to identify factors associated with placement, the nature of contact between caregivers and their institutionalized relatives after placement, and the relation of both of these factors to health outcomes among dementia caregivers. Main Outcome Measures Caregiver depression (symptoms on the Center for Epidemiological Studies-Depression [CES-D] scale; range, 0-60) and anxiety (State Trait Inventory; range, 10-40) and use of prescription medications for depression and anxiety. Results Caregivers who institutionalized their relative reported depressive symptoms and anxiety to be as high as they were while in-home caregivers. Overall CES-D scores for depression did not change from before to after placement (median [IQR], 15.0 [8-24.5] and 15.0 [7.7-28]; P=.64). Overall anxiety scores on the State Trait Inventory also did not change significantly (median [IQR], 22.0 [19-27] before vs 21.1 [18-27] after; P=.21). These effects were most pronounced among caregivers who were married to the patient (P=.02 for depression), visited more frequently (P=.01 for depression and PϽ.001 for anxiety), and were less satisfied with the help they received from others (P=.003 for depression and PϽ.001 for anxiety). The use of antidepressants did not change significantly before (21.1%) to after (17.9%) placement (P=.16). The use of anxiolytics before to after placement increased from 14.6% to 19% (P=.02), and nearly half of caregivers (48.3%) were at risk for clinical depression following placement of their relative. Conclusions The transition to institutional care is particularly difficult for spouses, almost half of whom visit the patient daily and continue to provide help with physical care during their visits. Clinical interventions that better prepare the caregiver for a placement transition and treat their depression and anxiety following placement may be of great benefit to these individuals.

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Elder Care

Keating¹

2007

The Blackwell Encyclopedia of Sociology

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Elder care is assistance provided to a senior because of that senior's chronic health problem or disability. Tasks include household work, indoor and outdoor home maintenance, banking and financial management, personal care, and care management (Keating et al. 1999). The term has been part of the gerontology lexicon for many years. Its origins lie in the description of the tasks provided by formal or paid caregivers (i.e., nurses or home support workers) to seniors with chronic illnesses such as dementia. More recently, the term has also been used to describe family members and friends who care for frail older adults. In contrast to formal caregivers, their care is called informal. Tasks done by these formal and informal caregivers are not unique and may be provided to younger adults as well. While adults over age 65 are considered seniors, in contemporary discussion elder care denotes assistance to those who are very old. In developed countries, onset of age‐related chronic illnesses is prevalent after age 75 and most people in residential (nursing home) settings are over age 80.

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The Care Continues: Responsibility for Elderly Relatives Before and After Admission to a Long Term Care Facility^*

Cited by 77 publications

References 30 publications

Between worlds: the experiences and needs of former family carers

Between worlds: the experiences and needs of former family carers

Long-term Care Placement of Dementia Patients and Caregiver Health and Well-being

Elder Care

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The Care Continues: Responsibility for Elderly Relatives Before and After Admission to a Long Term Care Facility*

Cited by 77 publications

References 30 publications

Between worlds: the experiences and needs of former family carers

Between worlds: the experiences and needs of former family carers

Long-term Care Placement of Dementia Patients and Caregiver Health and Well-being

Elder Care

Contact Info

Product

Resources

About

The Care Continues: Responsibility for Elderly Relatives Before and After Admission to a Long Term Care Facility^*