“The child is our focus”: On couple issues in child oncology treatment

Hooghe, An; Rosenblatt, Paul C.; Jongh, Sofie De; Bakker, Esther; Nijkamp, Marjan D.; Rober, Peter

doi:10.1002/pon.4855

Cited by 8 publications

(7 citation statements)

References 17 publications

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“…The qualitative data revealed the need for parents to better manage their distress following the diagnosis in order to be more helpful for their child [38]. This supports findings, including ours, that parents' interests in knowledge are mainly centered on their child's medical condition [39].…”

Section: Discussionsupporting

confidence: 83%

Nutrition education and cooking workshops for families of children with cancer: a feasibility study

et al. 2019

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Background: Changes in food intake are common in children with cancer and are often caused by nausea and perturbations in sense of taste. The VIE (Valorization, Implication, Education) study proposes family-based nutrition and cooking education workshops during childhood cancer treatments. Process evaluation during implementation allows to assess if the intervention was delivered as planned and to determine its barriers and facilitators. The study objective was to describe the implementation process of a nutrition education and cooking workshop program for families of children actively treated for cancer in a non-randomized non-controlled feasibility study. Methods: Six open-to-all in-hospital workshops were offered on a weekly basis during a one-year implementation phase. We collected qualitative and quantitative data using field notes and activity reports completed by the registered dietician facilitator; surveys and questionnaires fulfilled by the workshop participants and by the families enrolled in the VIE study. Field notes were used to collect only qualitative data. Survey respondents (n = 26) were mostly mothers (n = 19, 73%). Children's mean age was 7.80 (± 4.99) years and the mean time since diagnosis was 7.98 (± 0.81) months. Qualitative data were codified using hybrid content analysis. The first deductive analysis was based on the Steckler & Linnan concepts. Subthemes were then identified inductively. Quantitative data were presented with descriptive statistics. Results: Workshop attendance was low (17 participants over 1 year) and 71% of the planned workshops were cancelled due to lack of participants. The principal barriers to participation referred the child's medical condition, parental presence required at the child's bedside and challenges related to logistics and time management. The level of interest in the topics addressed was found high or very high for 92% of the participants. The themes that were perceived as the most useful by parents were related to the child's specific medical condition. Conclusions: Despite high interest, workshops delivered in a face-to-face format were poorly feasible in our sample population. This supports the need to develop educational programs in pediatric oncology using strategies and delivery formats that address the major barriers for participation encountered by families.

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Section: Discussionsupporting

confidence: 83%

Nutrition education and cooking workshops for families of children with cancer: a feasibility study

et al. 2019

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show abstract

“…The qualitative data revealed the need for parents to better manage their distress following the diagnosis in order to be more helpful for their child [39]. This supports findings, including ours, that parents' interests in knowledge are mainly centered on their child's medical condition [40].…”

Section: Discussionsupporting

confidence: 83%

Nutrition education and cooking workshops for families of children with cancer: a feasibility study

Beaulieu-Gagnon

Bélanger

Meloche

et al. 2019

Preprint

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Background: Changes in food intake are common in children with cancer and are often caused by nausea and perturbations in sense of taste. The VIE (Valorization, Implication, Education) study proposes family-based nutrition and cooking education workshops during childhood cancer treatments. Process evaluation during implementation allows to assess if the intervention was delivered as planned and to determine its barriers and facilitators. The study objective was to describe the implementation process of a nutrition education and cooking workshop program for families of children actively treated for cancer in a non-randomized non-controlled feasibility study. Methods: Six open-to-all in-hospital workshops were offered on a weekly basis during a one-year implementation phase. We collected qualitative and quantitative data using field notes and activity reports completed by the registered dietician facilitator; surveys and questionnaires fulfilled by the workshop participants and by the families enrolled in the VIE study. Field notes were used to collect only qualitative data. Survey respondents (n=26) were mostly mothers (n=19, 73%). Children’s mean age was 7.80 (± 4.99) years and the mean time since diagnosis was 7.98 (± 0.81) months. Qualitative data were codified using hybrid content analysis. The first deductive analysis was based on the Steckler & Linnan concepts. Subthemes were then identified inductively. Quantitative data were presented with descriptive statistics. Results: Workshop attendance was low (17 participants over 1 year) and 71% of the planned workshops were cancelled due to lack of participants. The principal barriers to participation referred the child’s medical condition, parental presence required at the child’s bedside and challenges related to logistics and time management. The level of interest in the topics addressed was found high or very high for 92% of the participants. The themes that were perceived as the most useful by parents were related to the child’s specific medical condition. Conclusions: Despite high interest, workshops delivered in a face-to-face format were poorly feasible in our sample population. This supports the need to develop educational programs in pediatric oncology using strategies and delivery formats that address the major barriers for participation encountered by families.

show abstract

Section: Discussionsupporting

confidence: 74%

Nutrition education and cooking workshops for families of children with cancer: a feasibility study

Beaulieu-Gagnon

Bélanger

Meloche

et al. 2019

Preprint

View full text Add to dashboard Cite

Background Perturbations of food intake are common in children with cancer and are often caused by changes in the sense of taste and nausea. The VIE (Valorization, Implication, Education) project proposes family-based nutrition and cooking education workshops during the cancer treatments. Process evaluation during implementation allows to assess if the intervention was delivered as planned and to determine its barriers and facilitators. The objective was to describe the implementation process of a nutrition education and cooking workshop program for families of children during active treatment of cancer in a non-randomized non-controlled feasibility study. Methods Six open-to-all in-hospital workshops were offered on a weekly basis during a one-year implementation phase. Multiple data collection methods were used including field notes, survey, questionnaires and activity reports. Data were collected from the facilitator and families from the Division of Hematology-Oncology. Survey respondents were mostly mothers (n=19, 73%) and the mean time since child’s diagnosis was 7.98 (± 0.81) months. Qualitative data were codified using hybrid content analysis. The first deductive analysis was based on the Steckler & Linnan concepts. Subthemes were then identified inductively. Quantitative data were presented with descriptive statistics. Results Attendance was low and 71% of the planned workshops were cancelled. The principal barriers to participation referred the child’s medical condition, parental presence at the child’s bedside and challenges related to logistics and time management. The level of interest in the topics addressed was found high or very high for 92% of the participants. The themes that were perceived as the most useful by parents were related to the child’ specific medical condition. Conclusions Despite high interest, workshops in a face-to-face format are poorly feasible in the context of pediatric oncology. Web-based video is a promising avenue to increase accessibility of the nutritional information provided in the workshops. According to our results, the workshops are now offered online as short video capsules. We believe that this will address the barriers encountered by families, provide a better access to information and evaluate of the impact of the intervention. Key words: nutrition workshops, culinary demonstration, process evaluation, childhood cancer, parents

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“The child is our focus”: On couple issues in child oncology treatment

Cited by 8 publications

References 17 publications

Nutrition education and cooking workshops for families of children with cancer: a feasibility study

Nutrition education and cooking workshops for families of children with cancer: a feasibility study

Nutrition education and cooking workshops for families of children with cancer: a feasibility study

Nutrition education and cooking workshops for families of children with cancer: a feasibility study

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