The concept of “emotional distress” as a possible indicator of maladaptation in children/adolescents with oncological and oncohematological diseases and their caregivers

Ryabova, Tatiana V.; Никольская, Н. С.; Stefanenko, Ekaterina A.; Klipinina, Natalia V.; Shutkova, Ekaterina S.; Khain, Alina E.

doi:10.21682/2311-1267-2019-6-4-76-82

Cited by 6 publications

(4 citation statements)

References 41 publications

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“…Caregivers of chronically ill children are a population at particularly high risk for psychological distress, a state of emotional suffering characterized by periods of anxiety and depression 9,10 . Yet, research examining the mental health needs of caregivers in countries with differing parenting styles to Western countries is limited 11–14 . Preliminary evidence suggests that Russian caregivers of children with cancer are at risk of high distress and post‐traumatic stress 13,15 .…”

Section: Introductionmentioning

confidence: 99%

“…9,10 Yet, research examining the mental health needs of caregivers in countries with differing parenting styles to Western countries is limited. [11][12][13][14] Preliminary evidence suggests that Russian caregivers of children with cancer are at risk of high distress and post-traumatic stress. 13,15 Mothers report higher levels of distress compared with mothers of healthy children, and report that worry about their ill-child prevented them from meeting their child's emotional needs.…”

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confidence: 99%

“…[11][12][13][14] Preliminary evidence suggests that Russian caregivers of children with cancer are at risk of high distress and post-traumatic stress. 13,15 Mothers report higher levels of distress compared with mothers of healthy children, and report that worry about their ill-child prevented them from meeting their child's emotional needs. 12 Russian caregivers of children with cancer also report experiencing additional stressors such as financial distress, loss of employment, and social discrimination, with 15%-30% of parents separating during their child's treatment.…”

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confidence: 99%

“…Psycho-oncology is a bourgeoning field in Russia, with caregivers' needs becoming a research and clinical care priority. 3,13 The internationally developed Psychosocial Standards of Care advocate a patient and family-centered model in pediatric oncology settings. 23 Routine screening of caregiver mental health and provision of appropriate interventions are recommended.…”

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confidence: 99%

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Pediatric psycho‐oncology in Russia: Caregiver mental health and sleep outcomes on the oncology wards

et al. 2020

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Objectives Caregivers are at risk of poor sleep and elevated distress during their child's cancer treatment. Russia is currently underrepresented in the international psycho‐oncology field, with no identified psychosocial standards of care, and limited or inconsistent psychological service provision, particularly for caregivers. This study aimed to determine the prevalence of Russian caregivers' psychological distress and identify factors associated with caregiver sleep duration when staying on the pediatric oncology ward. Methods We recruited 74 caregivers of children with cancer and 74 comparison caregivers in Rostov‐on‐Don, Russia. Participants completed a survey assessing clinical outcomes, sleep (St Mary's Hospital Sleep Questionnaire), and psychological distress (Depression Anxiety Stress Scales‐21 [DASS‐21]). Results Caregivers of children with cancer reported significantly higher scores for all DASS‐21 subscales and higher depression (48.6% vs. 24.6%), anxiety (47.3% vs. 12.3%), and stress (45.9% vs. 0%) scores from “moderate” to “extremely severe.” Caregivers of children with cancer reported significantly shorter sleep duration (5.82 vs. 7.49 h, t[143] = −6.22, p = 0.002), more night‐time awakenings (3.20 vs. 1.25, t[135] = 6.94, p < 0.001) and worse sleep quality (46.5% vs. 9.6%; x2[1] = 24.4, p < 0.001) than comparison caregivers. Caregivers with a higher total DASS‐21 score (B = −1.32, p = 0.032) and those who were closer to diagnosis (B = −1.53, p = 0.012) reported shorter sleep duration. Conclusions Russian caregivers of children with cancer experience high rates of psychological distress and poor sleep on the oncology ward. These findings provide an important target for future research and culturally relevant clinical interventions to improve caregivers' mental health and capacity for care.

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confidence: 99%

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confidence: 99%

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Pediatric psycho‐oncology in Russia: Caregiver mental health and sleep outcomes on the oncology wards

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Professional Burnout, Symptoms of Emotional Disorders and Distress among Healthcare Professionals during the COVID-19 Epidemic

Петриков¹,

Холмогорова

Suroegina³

et al. 2020

Counseling Psychology and Psychotherapy

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The article presents the results of a synthesis by Australian and Canadian scientists (Kisely et al, 2020) of 59 reliable studies of the effects of work during various epidemics, including COVID-19, on mental health and well-being of medical workers in different countries. The research includes the level of professional burnout, symptoms of emotional ill-being, and distress data based on the analysis of a data sample from 248 involved healthcare professionals of Russian medical institutions. They anonymously and voluntarily filled up the Google-form that contained a methodical complex during the COVID-19 epidemic. The complex included: A. Beck Depression Scale, A. Beck Anxiety Scale, J. Goland Distress Rating Scale, K. Maslach Professional Burnout Inventory. The research showed that during the epidemic, most healthcare professionals experienced evidence of the professional burnout (60% complain of emotional exhaustion), moderate and severe indicators of depression (23%), all healthcare professionals had severe anxiety indicators (100%). Also, a suicidal trend was found (10%). Negative emotions (fear of infection, loneliness and isolation sense), organizational problems (personal protective equipment deficit), physical discomfort (inconvenience of protective clothing, lack of sleep), and communicative difficulties have a great influence on the emotional distress of healthcare professionals. Information “noise” and personal protective equipment deficit often performs as a problem area. Healthcare professionals involved in supporting COVID-19 patients have higher rates of professional burnout, depression, and anxiety. At the same time, high professional responsibility and motivation are maintained by the majority of specialists providing care to patients with COVID-19. Region healthcare professionals differ from Moscow healthcare professionals by higher rates of depression and anxiety and frequently complain about personal protective equipment deficit, leadership mistrust, or disagreement with them.

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Emotional Distress and Subjectively Significant Difficulties in Adolescents with Oncological and Oncohematological Diseases Undergoing Chemotherapy and their Mothers

Ryabova

Klipinina

Nikolskaya

et al. 2021

Консультативная Психология И Психотерапия

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The work aims to study emotional distress, the need for information about the disease and treatment, and the need for psychological assistance in adolescents undergoing inpatient treatment for oncological and oncohematological diseases. The paper presents research materials on a sample of patients aged 12—18 (N=28, 12 boys, 16 girls) and their mothers. We used distress scales for children (a version suitable for respondents aged 7—17) and parents with a modified Problem List, and questionnaires for doctors in the chemotherapy department. The results obtained indicate the severity of emotional distress, subjectively significant difficulties, the need for medical information and psychological assistance in patients and parents. Clinically significant distress was detected in 62.8% of adolescents and 64.4% of mothers. No association was found between reports of needs for information, psychological assistance, and overall distress scores in either adolescents or their mothers. Thus, it has been shown that when assessing the adolescent’s need for information and psychological assistance, it is advisable to focus not on the general dis tress score, but on the representation of difficulties associated with treatment, as well as on the adolescent’s own opinion about the presence of these needs. The inclusion in the Problem List of the distress scales of those subjectively significant difficulties that reflect the developmental characteristics of the patients and the specifics of the type of treatment, as well as the introduction of direct questions about the needs for information and psychological assistance, expands the possibilities of identifying adolescents in need of psychological support undergoing inpatient chemotherapy and facilitates their collaboration with the clinic’s multidisciplinary team of specialists.

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The concept of “emotional distress” as a possible indicator of maladaptation in children/adolescents with oncological and oncohematological diseases and their caregivers

Cited by 6 publications

References 41 publications

Pediatric psycho‐oncology in Russia: Caregiver mental health and sleep outcomes on the oncology wards

Pediatric psycho‐oncology in Russia: Caregiver mental health and sleep outcomes on the oncology wards

Professional Burnout, Symptoms of Emotional Disorders and Distress among Healthcare Professionals during the COVID-19 Epidemic

Emotional Distress and Subjectively Significant Difficulties in Adolescents with Oncological and Oncohematological Diseases Undergoing Chemotherapy and their Mothers

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