The Continuum of Community Engagement in Research: A Roadmap for Understanding and Assessing Progress

Key, Kent; Furr‐Holden, Debra; Lewis, Edith A.; Cunningham, Rebecca; Zimmerman, Marc A.; Johnson-Lawrence, Vicki; Selig, Steve E

doi:10.1353/cpr.2019.0064

Cited by 149 publications

(108 citation statements)

References 12 publications

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“…Fourth, due to the need to keep the survey concise for purposes of field surveys, other outcomes such as mental health indicators and other potential confounders may have been left unmeasured. Finally, scholars have highlighted how community-based participatory research holds promise in reducing health disparities and power structures in research (Wallerstein & Duran, 2006 ); while the present study involves community members in its design, management, and execution, and situates itself toward a more community-driven approach along the continuum of community engagement in research (Key et al, 2019 ), further work can be done to create more democratic research structures in the sex work community.…”

Section: Discussionmentioning

confidence: 94%

The Impact of the Coronavirus Disease (COVID-19) on the Health and Social Needs of Sex Workers in Singapore

Tan

Ho²,

Sherqueshaa³

et al. 2021

Arch Sex Behav

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We evaluated the impact of the coronavirus disease (COVID-19) on the sex work industry and assessed how it has impacted the health and social conditions of sex workers in Singapore. We conducted a sequential exploratory mixed methods study amidst the COVID-19 pandemic from April to October 2020, including in-depth interviews with 24 stakeholders from the sex work industry and surveyor-administered structured surveys with 171 sex workers. COVID-19 had a substantial impact on sex workers' income. The illegality of sex work, stigma, and the lack of work documentation were cited as exclusionary factors for access to alternative jobs or government relief. Sex workers had experienced an increase in food insecurity (57.3%), housing insecurity (32.8%), and sexual compromise (8.2%), as well as a decrease in access to medical services (16.4%). Being transgender female was positively associated with increased food insecurity (aPR = 1.23, 95% CI [1.08, 1.41]), housing insecurity (aPR = 1.28, 95% CI [1.03, 1.60]), and decreased access to medical services (aPR = 1.74, 95% CI [1.23, 2.46]); being a venue-based sex worker was positively associated with increased food insecurity (aPR = 1.46, 95% CI [1.00, 2.13]), and being a non-Singaporean citizen or permanent resident was positively associated with increased housing insecurity (aPR = 2.59, 95% CI [1.73, 3.85]). Our findings suggest that COVID-19 has led to a loss of income for sex workers, greater food and housing insecurity, increased sexual compromise, and reduced access to medical services for sex workers. A lack of access to government relief among sex workers exacerbated such conditions. Efforts to address such population health inequities should be implemented.

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Section: Discussionmentioning

confidence: 94%

The Impact of the Coronavirus Disease (COVID-19) on the Health and Social Needs of Sex Workers in Singapore

Tan

Ho²,

Sherqueshaa³

et al. 2021

Arch Sex Behav

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“…Researchers have highlighted these issues, emphasized the importance of including racial and ethnic minority populations in research, and shared general strategies for promoting their participation. 12 , 13 Distinct subpopulations, age groups, and research designs, however, involve different considerations, challenges, and opportunities. Relatively limited information has been disseminated regarding specific strategies for facilitating participation of urban African American and Latinx adolescents in school-based intervention trials, particularly those with long-term follow-up assessments, which may be intimidating to some participants due to the time commitment and study duration.…”

Section: Introductionmentioning

confidence: 99%

Research with youth of color in low-income communities: Strategies for recruiting and retaining participants

Mendelson

Sheridan

Clary

2021

Research in Social and Administrative Pharmacy

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Background Youth of color from low-income urban communities are crucial participants in research, as their involvement can shape effective, culturally responsive interventions and policy to promote youth health and well-being. These young people, however, are an often-neglected research population, due in part to perceived challenges associated with their inclusion as well as marginalized communities’ justifiable mistrust of research. Objectives Based on our experience conducting a school-based randomized intervention trial in Baltimore, Maryland, we present strategies for conducting research with low-income, urban youth of color. We discuss strategies in three domains: university-community partnership development, participant recruitment, and participant retention. Methods We reviewed partnership building and recruitment strategies employed by our team across four years of trial implementation and evaluated success of participant retention at our final survey timepoint. Results Partnership building was facilitated by selection of a study design that maximized benefits for all participants, promotion of capacity building at partner institutions, and attention to research staff hiring and training practices. Effective study recruitment strategies included personal contact with parents and close cooperation between school personnel and study staff. Providing incentives and collecting multiple types of participant contact information contributed to increased retention rates. On average, those who participated in the final survey timepoint were less likely to be male and Latinx and exhibited more favorable baseline mental health than those who did not, suggesting differential attrition based on youth characteristics. Conclusions Lessons learned from this school-based trial can be applied more broadly to research with low-income urban youth of color. Researchers should strive to maximize scientific rigor, minimize harm to vulnerable adolescents and their communities, promote positive research experiences for young people, and provide concrete benefits to those who participate.

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“…Th e CE approach involves improving population health by building trust, utilizing eff ective communication strategies, creating long-standing collaborations, and enlisting new allies and resources. Community-based participatory approaches (CBPA) fall on the spectrum of CE, and necessitate CE throughout the process ( Key et al, 2019 ).…”

Section: Community-based and Community-engaged Approachesmentioning

confidence: 99%

Prejudice, Discrimination, and Health

Carty¹,

Key²,

Caldwell³

et al. 2020

Health Equity

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Defi ne racism, prejudice, and discrimination, and identify the levels at which they operate • Describe the ways in which racism directly impacts health • Discuss the ways in which racism aff ects diff erent racial/ethnic groups • Identify strategies that can be used to address racism and health • Describe how community-based interventions can be designed to impact racism at multiple levels Defi nitions of RacismRacism is a system of beliefs and structures that denigrate and disadvantage members of racial groups who are categorized and regarded as inferior. A defi nition of racism is "beliefs, attitudes, institutional arrangements, and acts that tend to denigrate individuals or groups because of

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The Continuum of Community Engagement in Research: A Roadmap for Understanding and Assessing Progress

Cited by 149 publications

References 12 publications

The Impact of the Coronavirus Disease (COVID-19) on the Health and Social Needs of Sex Workers in Singapore

The Impact of the Coronavirus Disease (COVID-19) on the Health and Social Needs of Sex Workers in Singapore

Research with youth of color in low-income communities: Strategies for recruiting and retaining participants

Prejudice, Discrimination, and Health

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