Engaging patients and communities is invaluable for achieving a patient-centered learning health system. Based on lessons learned in genomic and public health public engagement efforts of our community-based organizations in Flint, Michigan, we offer a continuum model for distinguishing various levels of community engagement and recommendations for approaching community, patient, and public engagement for health care systems that are expanding uses of health information.
KEYWORDSCommunity engagement, learning health system, patient-centered health care, public engagement, Health Care in America, defines a learning health system (LHS) as a system "designed to generate and apply the best evidence for the collaborative health care choices of each patient and provider; to drive the process of discovery as a natural outgrowth of patient care; and to ensure innovation, quality, safety, and value in health care." 1 Learning health system core values were developed to present a gold standard approach toward the mission of a national patient-centered LHS. 2 One core value is cooperative and participatory leadership, which ensures the participation/engagement of diverse communities and populations. 3 As LHS frameworks increasingly shape health information use in a variety of ways ranging from research to largescale quality improvement and to chronic disease management, there are abundant opportunities and challenges for engagement. A critical factor in a productive LHS is the engagement of patients, family members, and community. 3 The National Academy of Medicine posits engaged and empowered patients as a key characteristic of the LHS. 4 Understanding the optimal strategies for knowing when, how, and to what extent to engage the public will be critical to building meaningful relationships between health care systems and the communities they aim to serve. Notably, an important consideration is the cultural context within which these processes occur (Figure 1) as supported by the Institute of Medicine, National Academy of Medicine's table of characteristics of a LHS. It is also important to have a clear definition of "community" and shared definitions across communities that enable dialogue about the goals and activities of efforts, such as LHSs, toThis is an open access article under the terms of the Creative Commons Attribution-NonCommercial License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited and is not used for commercial purposes.