The correlation between perceived social support and illness uncertainty in people with human immunodeficiency virus/acquired immune deficiency syndrome in Iran

Sajjadi, Moosa; Rassouli, Maryam; Bahri, Narjes; Mohammadipoor, Fatemeh

doi:10.4103/0973-1075.156508

Cited by 11 publications

(7 citation statements)

References 24 publications

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“…The direct effect of social support on uncertainty was significant, which was supported by the findings of previous studies (Hui Choi et al, 2012;Y. Kang, 2011;Sajjadi, Rassouli, Bahri, & Mohammadipoor, 2015). Uncertainty caused by unawareness of PD and symptoms is reversible.…”

Section: Discussionsupporting

confidence: 87%

Factors Associated With Uncertainty in Illness Among People With Parkinson’s Disease

Choi

Chu

et al. 2018

Clin Nurs Res

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People with Parkinson's disease (PD) reported to experience uncertainty because of gradually progressive disease characteristics with no cure, and variably manifesting and unpredictable symptoms. This study was designed to identify illness-related variables influencing uncertainty in PD patients and to analyze direct and indirect paths between these variables. Data were collected from 206 participants using a structured questionnaire. Path analysis revealed the direct and/or indirect effects of economic status, disease severity, social support, and resilience on uncertainty in people with PD. Disease severity, social support, and resilience were shown to have significant direct effects on uncertainty. Economic status and disease severity had indirect effects on uncertainty, which were mediated by social support. Disease severity and social support also had indirect effects on uncertainty, which were mediated by resilience. Therefore, the efforts of health care professionals should be directed not only toward managing PD symptoms, but also toward facilitating social support and resilience.

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Section: Discussionsupporting

confidence: 87%

Factors Associated With Uncertainty in Illness Among People With Parkinson’s Disease

Choi

Chu

et al. 2018

Clin Nurs Res

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“…25 In another investigation, people with higher education were more fulfilled and realized greater availability of emotional support, making it easier to share the diagnosis and doubts about the illness and, as a result, achieve social support. These differences were not attributed to gender or clinical conditions.…”

mentioning

confidence: 99%

Social Support for People Living With Acquired Immunodeficiency Syndrome

Pedrosa

Fiuza

Cunha³

et al. 2016

Texto contexto - enferm.

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ABSTRACT:The aim of this study was to evaluate the social support for people with AIDS. It was a cross-sectional study, with 215 outpatients at a University Hospital in Northeastern Brazil. Data were collected from August to December 2012, through interviews, using a Socio-demographic and Clinical Form and a Social Support Scale for People Living with HIV/AIDS. Statistical Package for the Social Science was used for data analysis. Results showed that average scores of social emotional and instrumental support were satisfactory and not influenced by sex (p=0.954; p=0.508), education (p=0.756; p=0.194), marital status (p=0.076; p=0.446) and length of antiretroviral therapy (p=0.480; p=0.120). People diagnosed for less than three years had more instrumental support (p=0.048) than those diagnosed over three years (p=0.370). Neighbors, employers and health professionals provided less support. The conclusion was that people with AIDS have satisfactory social support, especially from friends and family not living in the same household. DESCRIPTORS: APOYO SOCIAL DE LAS PERSONAS QUE VIVEN CON SÍNDROME DE INMUNODEFICIENCIA ADQUIRIDARESUMEN: Este estudio objetivó evaluar el apoyo social a personas con SIDA. Estudio transversal con muestra de 215 pacientes ambulatorios de un hospital universitario del nordeste de Brasil. Los datos recolectados entre agosto y diciembre de 2012, a través de entrevistas utilizando el formulario sociodemográfico y clínico y la Escala de Apoyo Social para las Personas que Viven con VIH/SIDA. El Statistical Package for the Social Science fue utilizado para análisis de datos. Los resultados evidenciaron que las puntuaciones medias de apoyo social emocionales e instrumentales fueron satisfactorios, y no influenciados por el sexo (p=0,954; p=0,508), educación (p=0,756; p=0,194), estado civil (p=0,076; p=0,446) y tiempo de terapia antirretroviral (p=0,480; p=0,120). Las personas diagnosticadas en menos de tres años tenían más apoyo instrumental (p=0,048) que los diagnosticados hace más de tres años (p=0,370). Los vecinos, jefe y profesionales de salud proporcionaban menos apoyo. Se concluyó que personas con SIDA tienen un apoyo social satisfactorio, principalmente por parte de amigos y familiares que no viven en el mismo hogar.DESCRIPTORES: Síndrome de inmunodeficiencia adquirida. VIH. Apoyo social.

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“…A similar concern was described in past studies among other patients, such as those with HIV [30], chronic heart failure [31], prostate cancer [32], and amyotrophic lateral sclerosis [33]. These examples are also involved in the specific context of palliative care.…”

Section: Discussionmentioning

confidence: 92%

Confronting the Forthcoming Death: A Classic Grounded Theory

Harstäde¹,

Sandgren²

2016

J Palliat Care Med

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Objective: The aim of this study was to develop a classic grounded theory of patients in palliative care. Methods:A classic Grounded Theory methodology was used to conceptualize patterns of human behavior. Twenty-seven interviews with patients in palliative care and two autobiographies written by persons receiving palliative care were analyzed.Result: "Confronting the forthcoming death" emerged as the pattern of behavior through which patients deal with their main concern, living in uncertainty of a death foretold. The theory involves four strategies; Seeking concrete knowledge, Shielding off, Seeing things through, and Embracing life. Holding on to hope and Suffering are also ever present. Conclusion:The theory shows that there is no easy way straight ahead; patients strive to confront the situation as well as they can, both wanting and not wanting to know what lies ahead. For health professionals, knowledge about how patients use different strategies, which can be used in tandem or succession, or shifted back and forth between over time, to confront their imminent deaths, can create an awareness of how to encounter patients in this uncertainty.

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The correlation between perceived social support and illness uncertainty in people with human immunodeficiency virus/acquired immune deficiency syndrome in Iran

Cited by 11 publications

References 24 publications

Factors Associated With Uncertainty in Illness Among People With Parkinson’s Disease

Factors Associated With Uncertainty in Illness Among People With Parkinson’s Disease

Social Support for People Living With Acquired Immunodeficiency Syndrome

Confronting the Forthcoming Death: A Classic Grounded Theory

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