The Cost of Patient Education Materials Development: Opportunities to Identify Value and Priorities

Papadakos, Janet; Samoil, Diana; Giannopoulos, Eleni; Jain, Priyanka; McBain, Sarah; Mittmann, Nicole; Papadakos, Tina; Fox, Colleen; Moody, Lesley; McLeod, Robin S.

doi:10.1007/s13187-020-01893-0

Cited by 5 publications

(2 citation statements)

References 10 publications

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“…However, developing, producing and supplying in-person, physical pamphlets and materials are higher and more variable in cost in comparison to low-cost online materials. 38,39 Another factor that can play a role in both regional and ranking differences is the variety of funding that goes towards patient education between hospitals. 40 For example, National Institutes of Health (NIH) funding is usually concentrated in a small number of highly ranked academic centers.…”

Section: Discussionmentioning

confidence: 99%

A Comprehensive Assessment of Cleft Lip and Palate Websites and Patient Education Information

Sunkara

Powell

Quick

et al. 2023

The Cleft Palate Craniofacial Journal

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Objective The objective of this study is to evaluate online educational resources on cleft lip and palate teams. Design A Cross-Sectional Study. Setting An International, Multi-Institutional Study. Participants All American Cleft Palate and Craniofacial Association-approved teams with websites. Interventions None Main Outcome Measures Websites were assessed for patient education and support content. Affiliation between presence of materials and U.S. Newsweek Top 100 Hospitals was also assessed. Results 187 teams were included. Presence of educational videos were available in 29.4% of websites, educational infographics in 18.2%, written materials in 66.8%, perioperative instructions in 19.3%, diagnosis information in 34.8% and treatment information in 63.1%. Information on team members were available on 77.0% of websites, resources in languages other than English in 38.5%, and support group resources in 25.7%. Cleft lip and palate diagnosis information was significantly associated with geographic region, with the largest impact from the West region ( P = .03). There was a significant difference between teams affiliated with U.S. Newsweek Top 100 hospitals: Top 100 hospitals had a higher presence of educational infographics, perioperative instructions, definitions, diagnosis, and treatment ( P < .01). There was no significant difference between presence of educational videos ( P = .37). Conclusion While many websites had basic educational materials, very few included detailed information on peri-operative planning, as well as additional forms of information including videos, infographics, and non-English languages. Providing comprehensive patient education materials online is an important supplement for patients with cleft lip and palate and should be prioritized by cleft teams.

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Section: Discussionmentioning

confidence: 99%

A Comprehensive Assessment of Cleft Lip and Palate Websites and Patient Education Information

Sunkara

Powell

Quick

et al. 2023

The Cleft Palate Craniofacial Journal

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“…Leveraging existing resources will not only allow for timely provision of information and closing of existing collection gaps but could reduce duplicated efforts across centers and costs for patient education resource development. Our previous study reports that cancer centers spend significant amounts of time and money on patient education material development and that patient education programs could reduce some of these costs if they share resources developed by one another [ 44 , 45 ]. As such, connecting with patient education programs and libraries in other cancer centers may help librarians quickly address collection gaps.…”

Section: Discussionmentioning

confidence: 99%

Identifying gaps in consumer health library collections: a retrospective review

Giannopoulos

Snow

Manley

et al. 2021

jmla

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Background: The objective of this study was to determine if search request forms, which are used when a patron’s request for information cannot be fulfilled at the time of contact with the library team, can be used to identify gaps in consumer health library collections.Case Presentation: Search request forms were collected from 2013 to 2020 and analyzed independently by two reviewers. Search request forms were included if they were complete and contained a record of how the request was fulfilled. Descriptive statistics were used to summarize patron characteristics. Search request forms were iteratively coded to identify themes in the data and determine if resources provided to patrons could be found within the library collection. The study team subsequently reviewed search request forms to determine reasons for identified gaps. Two hundred and forty-nine search request forms were analyzed. Six main content themes were identified: 1) understanding the cancer diagnosis, 2) cancer treatments, 3) understanding disease prognosis, 4) support during and after treatment, 5) natural health products and therapeutic effects in oncology, and 6) research literature. The majority of patrons were patients (53%). Over half (60%) of the submitted search request forms reflected collection gaps, and many (16%) contained queries for information about rare cancer diagnoses. The main reason that queries could not be satisfied was that there was limited consumer health information on the requested topics (53%).Conclusions: Search request forms are a useful resource for assessing gaps in consumer health library collections.

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Reinventing the wheel: The incidence and cost implication of duplication of effort in patient education materials development

Papadakos

Giannopoulos

Forbes

et al. 2021

Patient Education and Counseling

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The Cost of Patient Education Materials Development: Opportunities to Identify Value and Priorities

Cited by 5 publications

References 10 publications

A Comprehensive Assessment of Cleft Lip and Palate Websites and Patient Education Information

A Comprehensive Assessment of Cleft Lip and Palate Websites and Patient Education Information

Identifying gaps in consumer health library collections: a retrospective review

Reinventing the wheel: The incidence and cost implication of duplication of effort in patient education materials development

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