The current practice of family-centred care in Italian neonatal intensive care units: A multicentre descriptive study

Dall’Oglio, Immacolata; Mascolo, Rachele; Tiozzo, Emanuela; Portanova, Anna; Fiori, Martina; Gawronski, Orsola; Dotta, Andrea; Piga, Simone; Offidani, Caterina; Alvaro, Rosaria; Rocco, Gennaro; Latour, Jos M.

doi:10.1016/j.iccn.2018.07.005

Cited by 16 publications

(12 citation statements)

References 44 publications

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“…Poor experiences were often reported for several key dimensions of the FCC model. This result is consistent with a recent study that analyzed the application of FCC in Italian NICUs from the perspective of health care professionals ( 44 ). Furthermore, our analysis confirmed the chronic issue of limited access, which, as shown in previous studies ( 45 , 46 ), interests several Italian NICUs.…”

Section: Discussionsupporting

confidence: 93%

Studying the Experience of Care Through Latent Class Analysis: An Application to Italian Neonatal Intensive Care Units

Spezia

Soncin

Masella

et al. 2022

Journal of Patient Experience

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Though many data on the experience of care of patients and caregivers are collected, they are rarely used to improve the quality of health care delivery. One of the main causes is the widespread struggle in interpreting and enhancing these data, requiring the introduction of new techniques to extract intelligible, meaningful, and actionable information. This research explores the potentiality of the latent class analysis (LCA) statistical model in studying experience data. A cross-sectional survey was administered to 482 parents of infants hospitalized in several Italian neonatal intensive care units. Through a 3-step LCA, four subgroups of parents with specific experience profiles, sociodemographic characteristics, and levels of satisfaction were identified. These were composed of parents who reported (1) a positive experience (36%), (2) problematic communication with unit staff (30%), (3) limited access to the unit and poor participation in their baby's care (26%), and (4) a negative experience (8%). Through its explorative segmentation, LCA can provide valuable information to design quality improvement interventions tailored to the specific needs and concerns of each subgroup.

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Section: Discussionsupporting

confidence: 93%

Studying the Experience of Care Through Latent Class Analysis: An Application to Italian Neonatal Intensive Care Units

Spezia

Soncin

Masella

et al. 2022

Journal of Patient Experience

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“…In our study and setting it can be argued that family-centered care is not yet fully implemented and therefore parents might have rated the satisfaction items lower as reported in other countries. Further studies are needed to explore the relationship between different family-centered care practices and parent satisfaction outcomes (26,27).…”

Section: Discussionmentioning

confidence: 99%

Turkish Adaptation and Validation of the EMpowerment of PArents in THe Intensive Care (EMPATHIC-30) Questionnaire to Measure Parent Satisfaction in Neonatal Intensive Care Units

et al. 2020

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The aim of this study was to translate and validate the shortened version of the "EMpowerment of PArents in THe Intensive Care" (EMPATHIC-30) questionnaire into Turkish to measure parent satisfaction in the Neonatal Intensive Care Units (NICU). Method: The study used a cross-sectional design. The data of the study were collected from parents with infants staying in the NICU of a training and research hospital in Sakarya, Turkey, between July 2018-2019 after obtaining ethical approval. Totally, 238 parents (234 mothers, four fathers) agreed to participate in the study and completed the questionnaire. Of these, 35 mothers were recruited 1 month later for the test-retest reliability analysis. The questionnaire was translated using back and forward translation. Reliability and validity test were performed to measure the psychometric properties of the Turkish EMPATHIC-30. Results: The mean age of the parents was 28.27 (SD 5.93), and 48.3% of them were primary school graduates. The infants: 55.9% were male, the mean gestational age was 36.89 (SD 3.25) weeks, and mean length of hospital stay was 9.36 (SD 10.17) days. The mean scores of each item with a six-point scale of the EMPATHIC-30 questionnaire ranged between 4.01 and 4.87. The Cronbach's alpha of the total questionnaire was 0.95. Cronbach's alpha of the five domains (Information, Care and Treatment, Organization, Parent Participation, and Professional Attitude) ranged between 0.80 and 0.92. Pearson correlation coefficient between the domains and total questionnaire was r = 0.988. The Intraclass correlation coefficient was ICC = 0.998 in the test-retest evaluation. Confirmatory factor analysis was performed for construct validity and was moderate; Comparative Fit Index = 0.792, Tucker-Lewis Index = 0.770, Standardized Root Mean Square Residual = 0.0811, and Root Mean Square Error of Approximation = 0.107. Tiryaki et al. Validation Turkish EMPATHIC-30 Questionnaire Conclusion: The Turkish version of EMPHATIC-30 has adequate psychometric properties. The EMPATHIC-30-Turkish questionnaire is an easy and appropriate instrument which can be used to measure satisfaction of Turkish parents with infants staying in the NICU.

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“…(2) Da mesma forma, deve haver liderança, tanto em nível hospitalar como de cada unidade, para desenvolver e apoiar políticas institucionais consistentes, a fim de evitar a variabilidade dos cuidados prestados. A criação de programas de educação e treinamento contínuos do pessoal para implementar e apoiar práticas clínicas centradas na família é uma forma de promover isto, (14) destacando a continuidade do pessoal. A utilização destas estratégias deve ser complementar, e o contexto em que ocorre a implementação deve ser considerado.…”

Section: Discussionunclassified

Irmãos de bebês recém-nascidos internados em unidades de neonatologia: revisão bibliográfica

Silva-Quintul¹,

Rosas²,

Triviño-Vargas³

et al. 2021

Revista Da Sociedade Brasileira De Enfermeiros Pediatras

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Objetivo: Analisar a importância das visitas de irmãos de recém-nascidos internados em Unidades de Neonatologia a partir das experiências relatadas na literatura. Métodos: Para proporcionar uma reflexão sobre as experiências no mundo, é realizada uma revisão de artigos que contenham a temática dos irmãos, selecionados pela amplitude do estudo, seja quantitativo, qualitativo ou experiência mista. Conclusão: A importância da implementação da visita de irmãos nos diversos centros hospitalares reside na sua detecção como fator fundamental para a redução do estresse parental e familiar, melhorando o vínculo entre os irmãos e a comunicação dentro da família. Os entraves residem no risco de transmissão de microrganismos a pacientes com sistema imunológico imaturo ou debilitado, juntamente com as políticas internas de muitos centros, que impedem a entrada de crianças pequenas como visitantes.

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The current practice of family-centred care in Italian neonatal intensive care units: A multicentre descriptive study

Cited by 16 publications

References 44 publications

Studying the Experience of Care Through Latent Class Analysis: An Application to Italian Neonatal Intensive Care Units

Studying the Experience of Care Through Latent Class Analysis: An Application to Italian Neonatal Intensive Care Units

Turkish Adaptation and Validation of the EMpowerment of PArents in THe Intensive Care (EMPATHIC-30) Questionnaire to Measure Parent Satisfaction in Neonatal Intensive Care Units

Irmãos de bebês recém-nascidos internados em unidades de neonatologia: revisão bibliográfica

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