THE DARK SIDE OF CARING: Challenges of Caregiving

Boykin, Anne; Winland-Brown, Jill E.

doi:10.3928/0098-9134-19950501-05

Cited by 21 publications

(11 citation statements)

References 11 publications

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“…Assistance in bathing, toileting, clothing and feeding was not requested by family carers in the study. Furthermore, as with findings in other studies (20, 21) family carers worried about safety issues, continuously checking on their relative. Family carers provided emotional support and reassurance, thus meeting their relative's emotional needs.…”

Section: The Need Of Supportsupporting

confidence: 67%

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Support for family carers who care for an elderly person at home – a systematic literature review

Stoltz

Udén

Willman

2004

Scandinavian Caring Sciences

174

151

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Family carers are a major source of help and assistance to the persons they provide care for. They are also major contributors to the welfare system, balancing the national health care expenditure. Increasing attention, in research as well as government policy, is being paid to their role as informal caregivers. Support to family carers seems to be a new 'buzzword' in Swedish Government policy. However, supporting family carers may prove to be a more complex endeavour than one initially might be led to believe. Support could here be understood as any services, assistances, education, information, attitudes, and lay or professional person's provision for the benefit of the family carer. The aim of this systematic review was to identify modes of, and scientific evidence on, support for family carers of cohabiting elderly persons. The method followed a seven-step model: a focused research question was formulated creating a base for deriving search words and inclusion and exclusion criteria for studies. Systematic database searches identified several studies some of which were retrieved, critically appraised and classified by two independent reviewers. A total of 26 articles were finally included, revealing that family carers fear social isolation and wish to network in groups with peers, either for social or for learning needs purposes. Family carers also desire respite care. However, it is unclear whether they actually benefit from any of the above or how service provision should be attempted.

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Section: The Need Of Supportsupporting

confidence: 67%

“…Mackenzie and Holroyd (26), like other researchers (21–23), identify respite as a family carer need. Additional family carer needs concern financial help, information and education.…”

Section: The Need Of Supportmentioning

confidence: 95%

Support for family carers who care for an elderly person at home – a systematic literature review

Stoltz

Udén

Willman

2004

Scandinavian Caring Sciences

174

151

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“…Such tasks are measured in terms of their type, function, frequency and pattern. Emphasis upon the rational and functional aspects of caregiving has been deemed important for predicting effect in terms of family carers' lifestyles and well-being (Gaynor 1990, Pearlin et al 1990, Flicker 1992, Herrman et al 1993, Smith et al 1993, Waite & Knapman 1993, Coleman et al 1994, Collins et al 1994b, Boykin & Winland-Brown 1995, Fink 1995.…”

Section: Introductionmentioning

confidence: 99%

Meaning in caring: reconceptualizing the nurse–family carer relationship in community practice

Kellett

Mannion

1999

Journal of Advanced Nursing

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To date family caregiving studies have considered family caring in primarily practical terms such as 'how to do' and 'how to cope'. Research efforts have focused upon exploiting the productive elements of a certain conception of the essence of family caregiving. Thus despite a wealth of studies, the question of the nature of family caregiving is not well understood. This ontological-hermeneutic study highlights the importance of understanding the human experience of family caring at home. The study involved in-depth audio-taped interviews with seven family carers who care for an older relative at home. Thematic analysis of the transcribed interviews uncovered a number of common themes which highlighted unique and shared meanings family carers ascribed to their everyday existence as carers. The findings will challenge practitioners to reconceptualize the nurse-family carer relationship, to appreciate the many ways in which family members' involvement in care provides meaning and significance to their lives, and to understand family carers through a process of human relating which fosters families' meaningful involvement in caring at home.

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“…with disabling diseases, like Parkinson's disease or dementia [86,87]. Such diseases induce a total dependency of In the study of Cohen et al [80], the 18 UC patients who were well controlled on cyclosporin did not score differ-the caregiver and were associated with symptoms of depression and anxiety in caregivers [88][89][90] and frequently ently on the IBDQ than 46 UC patients who had been colectomized. However, patients on cyclosporin referred social and economic problems [91].…”

Section: Quality Of Life In Caregivers Of Patients With Inflammatory mentioning

confidence: 99%

Impact of Inflammatory Bowel Disease on Health-Related Quality of Life

Casellas¹,

López-Vivancos

Vergara³

et al. 1999

Dig Dis

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Health-related quality of life (HRQOL) has a recognized importance to evaluate, manage and follow patients. Different types of instruments for measuring HRQOL have recently been introduced to evaluate HRQOL in patients with inflammatory bowel disease. Most questionnaires suggest that inflammatory bowel disease has a significant impact in HRQOL. It seems that ulcerative colitis has less profound effects on HRQOL than Crohn’s disease and that some differences in HRQOL status are related to some factors such as the severity of the disease. When patients express their concerns, most important worries are related to surgery. Effective medical treatment appears to improve HRQOL. Effects of surgery on HRQOL can probably be different depending on the type of surgical technique and if it is curative or not. Recent studies suggest that inflammatory bowel disease not only impacts on patient's HRQOL but also on their caregivers. Features such as the impact on HRQOL of different disease variables, such as complications or patient personality, the role of medical or surgical treatments on different dimensions of HRQOL, the cost-utility evaluation of therapy are some of the fields that will probably focus the protagonism in the next years.

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THE DARK SIDE OF CARING: Challenges of Caregiving

Cited by 21 publications

References 11 publications

Support for family carers who care for an elderly person at home – a systematic literature review

Support for family carers who care for an elderly person at home – a systematic literature review

Meaning in caring: reconceptualizing the nurse–family carer relationship in community practice

Impact of Inflammatory Bowel Disease on Health-Related Quality of Life

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