The economic and societal burden associated with adolescent idiopathic scoliosis: A burden-of-disease study protocol

Hoelen, Thomáy-Claire Ayala; Willems, Paul; Arts, Jacobus J.; Mastrigt, Ghislaine A. P. G. van; Evers, Silvia M. A. A.

doi:10.1016/j.xnsj.2023.100231

Search citation statements

Order By: Relevance

Paper Sections

Select...

Citation Types

Supporting

Mentioning

Contrasting

Year Published

2024

Publication Types

Select...

Article1

Preprint1

Relationship

Self Cite1

Independent1

Authors

Journals

Cited by 2 publications

References 34 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

The societal burden associated with adolescent idiopathic scoliosis: a cross-sectional burden-of-disease study

Hoelen,

Evers,

Arts

et al. 2024

BMC Public Health

View full text Add to dashboard Cite

The societal burden associated with adolescent idiopathic scoliosis: a cross-sectional burden-of-disease study

Hoelen,

Evers,

Arts

et al. 2024

BMC Public Health

View full text Add to dashboard Cite

The Societal Burden associated with Adolescent Idiopathic Scoliosis: a cross-sectional burden-of-disease study

Hoelen,

Evers,

Arts

et al. 2024

Preprint

Self Cite

View full text Add to dashboard Cite

Background Adolescent idiopathic scoliosis (AIS) has a general population prevalence of 2–3%. The impact of AIS on the patients’ quality of life is increasingly recognized. However, there is limited knowledge on the societal burden of AIS. Therefore, this study aimed to determine societal burden of AIS. Methods A cross-sectional, prevalence-based, bottom-up burden of disease study was conducted. AIS patients or parents of a child with AIS residing in the Netherlands were eligible for inclusion. The survey was distributed between June - December 2022 and was completed once by each participant. The institute for Medical Technology Assessment - Medical Consumption and Productivity Cost Questionnaires were used to assess costs. The health-related quality of life (HRQoL) was assessed using the EuroQol 5D-5L/EuroQol 5D Youth and the Scoliosis Research Society-22 revised questionnaires. Costs and HRQoL were identified, measured, and valued. Results Participants (n = 229) were predominantly female (92%), on average 35 years old, and were employed (65%). The societal cost for a patient with AIS in the Netherlands was €12,275 per year. The largest costs were estimated for the healthcare and productivity sectors. The mean utility score for adults was 0.7 (SD 0.20). Severe pain was experienced by 10% of the adult participants and 44% reported to experience moderate pain/discomfort. Statistically significant differences between different age groups were present for individual sector costs and HRQoL. Conclusions AIS negatively impacts societal costs and the HRQoL. Reducing the productivity sector burden and further improving the HRQoL of life for patients with AIS is needed.

show abstract

The economic and societal burden associated with adolescent idiopathic scoliosis: A burden-of-disease study protocol

Cited by 2 publications

References 34 publications

The societal burden associated with adolescent idiopathic scoliosis: a cross-sectional burden-of-disease study

The societal burden associated with adolescent idiopathic scoliosis: a cross-sectional burden-of-disease study

The Societal Burden associated with Adolescent Idiopathic Scoliosis: a cross-sectional burden-of-disease study

Contact Info

Product

Resources

About