The effect of a supportive home care program on caregiver burden with stroke patients in Iran: an experimental study

Farahani, Mansoureh Ashghali; Ghezeljeh, Tahereh Najafi; Haghani, Shima; Alazmani‐Noodeh, Farshid

doi:10.1186/s12913-021-06340-4

Cited by 21 publications

(14 citation statements)

References 31 publications

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“…Family caregivers are facing huge financial burdens, social pressure, and mental distress ( 12 ). A previous study reported a high incidence of negative emotions in caregivers, including low satisfaction with leisure time ( 13 ), loss of happiness, loneliness, depression, and a sense of imprisonment ( 14 ).…”

Section: Introductionmentioning

confidence: 99%

Relationships between care burden, resilience, and depressive symptoms among the main family caregivers of stroke patients: A cross-sectional study

et al. 2022

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ObjectivesThis study aims to explore the potential mediating role of resilience between care burden and depressive symptoms in family caregivers of stroke patients.MethodsA cross-sectional study was conducted with a convenience sample involving 245 main family caregivers of stroke patients recruited from the neurology department of a Tertiary A hospital in China. Mediation analyses were conducted using the PROCESS macro (Model 4) for SPSS, applying the Bootstrap analysis with 5,000 samples and a 95% confidence interval.ResultsThe results showed that with constant hemiplegia side, Barthel Index, education level, monthly income, care time per day, and living with patients in regression equations, the resilience partially mediated the correlation of care burden and depressive symptoms with a mediation effect ratio of 26.32%.ConclusionsResilience plays a mediating role in the correlation between care burden and depressive symptoms.ImpactThe findings indicated a protective effect of resilience in alleviating the negative influences of care burden on depressive symptoms, suggesting that resilience-training intervention may be developed to mitigate depressive symptoms of the main family caregivers of stroke patients.

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Section: Introductionmentioning

confidence: 99%

Relationships between care burden, resilience, and depressive symptoms among the main family caregivers of stroke patients: A cross-sectional study

et al. 2022

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“…Liu et al (2017) confirmed that considering the educational needs of home caregivers and their ability to adapt to conditions is necessary for reducing the burden of care. In a study conducted in Iran by Ashghali Farahani et al (2021), families in the intervention group received eight educational sessions (2 weeks before discharge to home and 6 weeks after discharge) which significantly lowered the burden of care In contrast, the burden of care increased in the control group who received routine hospital training (Ashghali Farahani et al, 2021). These findings indicate that supporting families and educating them makes them feel more confident and empowered.…”

Section: Discussionmentioning

confidence: 99%

Effectiveness of a Supportive Program on Caregiver Burden of Families Caring for Patients on Invasive Mechanical Ventilation at Home: An Experimental Study

Esmaeili,

Dehghan Nayeri,

Bahramnezhad

et al. 2023

Creative Nursing

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The prevalence of patients on mechanical ventilation who are being supported at home is increasing. Due to these patients’ complex and chronic conditions, the subjective burden on their family caregivers increases after discharge. The aim of this study was to evaluate the effectiveness of a supportive home care program on the caregiver burden of families caring for patients on invasive mechanical ventilation at home. Sixty patients hospitalized in three university-affiliated hospitals in Tehran, Iran between 7/2020 and 8/2021 were randomly assigned to one of two groups: A supportive home care program, and routine hospital education. The supportive home care program included six educational sessions delivered in the hospital before discharge, and home visits and continued education after discharge. Caregiver burden was measured using the Zarit Burden Interview. Results showed that caregiver burden increased significantly ( p ≥ .001) after discharge without the supportive home care program intervention. Follow-up by nurses after discharge is essential to reduce the psychological burden of caring for patients on invasive mechanical ventilation at home.

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“…They concluded that the group with a supportive home care program had comparatively lower burden scores. Hence providing support for home care can help decrease or prevent the burden on caregivers [ 16 ]. McCullagh et al indicated that advanced age and anxiety in stroke patients, excessive reliance, and low family support were predictors of increased caregiver burden [ 17 ].…”

Section: Discussionmentioning

confidence: 99%

Stress in Caregivers of Stroke Patients During Rehabilitation: An Observational Study

Sohkhlet¹,

Thakur²,

David³

et al. 2023

Cureus

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Introduction: Stroke causes a high burden of death and disability all over the world. The majority of stroke survivors continue to have difficulties, and their families must shoulder a considerable portion of the expenditures of ongoing rehabilitation and long-term care. In India, stroke rehabilitation is still underachieved due to various reasons leading to delay or incomplete recovery of the patients thus adding up more burden on the caregivers. Thus, studying the caregiver burden of stroke rehabilitation will help policymakers tackle this issue faced by our lower economically challenged citizens.Objectives: The objective is to measure the perceived burden on caregivers during stroke rehabilitation.Methods and materials: The observational study was conducted by interviewing the stroke survivors' caregivers and visiting the physiotherapy OPD using the caregiver burden scale/questionnaire.Results: The study had 76 caregivers, 51.32% were women and 48.68% were men. The average age for caregivers was 42 years and 55 years for patients. The average duration of giving care was six months. The perceived caregiver burden score was low (mean-19.61) suggesting that not all assistance is associated with stress. The correlation of each burden measure with Modified Rankin Scale for disability is significantly correlated (r=0.7, P<0.0001). Further investigation revealed that caregivers had considerably higher levels of stress when the patient needed to exercise, walk or use the restroom. A low yearly income, a higher secondary education, and a small number of family members were shown to be connected with individuals who scored the highest on stress.Conclusion: Based on this study, we conclude that people with low income residing in nuclear families require more support for caregiving during rehabilitation. We recommend that health and welfare policy measures be developed to lessen caregiver burden in order to improve caregivers' post-stroke experiences.

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The effect of a supportive home care program on caregiver burden with stroke patients in Iran: an experimental study

Cited by 21 publications

References 31 publications

Relationships between care burden, resilience, and depressive symptoms among the main family caregivers of stroke patients: A cross-sectional study

Relationships between care burden, resilience, and depressive symptoms among the main family caregivers of stroke patients: A cross-sectional study

Effectiveness of a Supportive Program on Caregiver Burden of Families Caring for Patients on Invasive Mechanical Ventilation at Home: An Experimental Study

Stress in Caregivers of Stroke Patients During Rehabilitation: An Observational Study

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