The effect of a Web-based stroke intervention on carers' well-being and survivors' use of healthcare services

Pierce, Linda L.; Steiner, Victoria; Khuder, Sadik A.; Govoni, Amy L.; Horn, Lawrence J.

doi:10.1080/09638280902751972

Cited by 91 publications

(236 citation statements)

References 22 publications

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“…Future studies should be responsive and tailored to both the needs of the care of the survivor and the unique needs of the family caregiver. 25,27,38,40,41,[44][45][46][47][48][49][50][51][52][53][54][55][56][58][59][60][61] 17 (53.1) 4 (23.5) 16 (94) Stroke survivor-caregiver dyad 26,[28][29][30][31][32][33][35][36][37]39,42,43,57,62,63 15 ( Psycho-educational 26,29,33,37,39,42,58 7 (21.9) 6 (85.7) 6 (85.7)Skill building and psycho-educational 25,27,28...…”

mentioning

confidence: 99%

“…Only a few published studies accessed long-term outcomes. 48,57 Access to Experts Access to experts was specifically mentioned relative to several studies 38,59,61 and may have been available but not clearly identified in other interventions. Experts may include such individuals as case managers, nurses, therapists, social workers, psychologists, and in some cases, expert caregivers.…”

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confidence: 99%

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Evidence for Stroke Family Caregiver and Dyad Interventions

Bakas¹,

Clark²,

Kelly-Hayes³

et al. 2014

Stroke

214

188

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S troke is one of the leading causes of severe, long-term disability, 1 with a majority of stroke survivors requiring the assistance of a family caregiver.2 A family caregiver is defined in this context as a relative, partner, personal friend, or neighbor who provides assistance to an adult with a chronic or disabling condition such as stroke.3 Although family members may not consider themselves caregivers, this term is commonly used in the literature to represent family or informal (unpaid) caregivers.Family caregiver stress is commonly associated with longterm institutionalization of stroke survivors, resulting in significant costs to the healthcare system. [4][5][6][7][8] Family caregiver stress can also result in other negative outcomes for both survivors and their caregivers. 7 For example, caregiver stress has been shown to interfere with rehabilitation of the survivor 7 and can result in social isolation, declining health, and increased risk of mortality for the caregivers. 9,10 Depression is especially prevalent in stroke family caregivers, 7,11,12 with some studies reporting higher depression rates in the caregivers than in the survivors for whom they provide care. 11,13 Miller and colleagues 14 made recommendations for family caregiver education and support across inpatient, outpatient, and chronic care settings based on clinical practice guidelines and existing research. These recommendations involved (1) caregivers serving as integral members of interdisciplinary teams, (2) assessment of caregiver needs and concerns, (3) follow-up contacts and referrals, (4) counseling focused on problem solving and social support, (5) provision of strokerelated information, and (6) attention to the emotional and Abstract-Stroke is a leading cause of severe, long-term disability. Most stroke survivors are cared for in the home by a family caregiver. Caregiver stress is a leading cause of stroke survivor institutionalization, which results in significant costs to the healthcare system. Stroke family caregiver and dyad intervention studies have reported a variety of outcomes. A critical analysis of 17 caregiver intervention studies and 15 caregiver/stroke survivor dyad intervention studies was conducted to provide evidence-based recommendations for the implementation and future design of stroke family caregiver and dyad interventions. The American Heart Association makes every effort to avoid any actual or potential conflicts of interest that may arise as a result of an outside relationship or a personal, professional, or business interest of a member of the writing panel. Specifically, all members of the writing group are required to complete and submit a Disclosure Questionnaire showing all such relationships that might be perceived as real or potential conflicts of interest.This statement was approved by the American Heart Association Science Advisory and Coordinating Committee on March 26, 2014. A copy of the document is available at http://my.americanheart.org/statements by selecting either the "By Topic" link or ...

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mentioning

confidence: 99%

mentioning

confidence: 99%

Evidence for Stroke Family Caregiver and Dyad Interventions

Bakas¹,

Clark²,

Kelly-Hayes³

et al. 2014

Stroke

214

188

View full text Add to dashboard Cite

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“…In two cases, STAR in the EU and AlzOnline in the US, the outcome improvements were quite weak, concerning only better empathy feeling between caregivers and intervention staff [18] and selfefficacy [19]. One study, focused on the Caring Web program for family caregivers of stroke survivors [23], conducted a RCT involving 103 users but without demonstrating improvements in psychological outcomes, showing instead significant reductions in emergency department visits and hospital readmissions.…”

Section: Evidence Psychoeducational Programsmentioning

confidence: 99%

Effectiveness of Web-Based Psychosocial Interventions for Family Caregivers of Older People: What Do We Know?

Barbabella¹,

Poli²

2016

J Psychol Psychother

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“…Bakım vericileri geliştirme, güçlendirmeye yönelik bu girişimler maliyet etkili olduğu için uygulanabilir. 22,24,27,28,30,31,36 İnme öz yönetimini artırmak için yapılan bir çalışma, 10 hafta iki saatlik grup eğitimlerinden oluşmaktadır. Uygulanan öz yönetim programının en önemli sonuçlarından biri, bakım verenlerin topluma katılım oranındaki artıştır.…”

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İnmeli Hastaların Ailelerinin, Bakım Verme Yeterliliğini Geliştirmek İçin Yapılan Girişimler: Sistematik Derleme

Avcı¹,

Gözüm²,

Özer³

2016

TJFMPC

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Objective: It is to determine interventions performed to develop competence of family caregivers of patients with stroke in coping with caregiving and what are they of these interventions. Method: 20 randomized controlled studies, one of them meta-analysis, were evaluated in accordance with inclusion criteria. All studies were systematized and examined. Results: Types of interventions made to the caregivers were consultancy via phone, e-mail, web aided training, home visits, and group education. The intervention provided to caregivers was found to be effective in 15 of 20 studies included in the study. In other five studies, there was no statistical difference in terms of a measured parameter; whereas, it was found useful for caregivers in at least one of the other measured parameters. Conclusion: The fact that interventions for strengthening caregivers were highly effective points out the requirement of determining cost effective methods in future studies.Key words: Stroke, family caregivers, caregivers competence, care burden, cope with stress, systematic review ÖZET Amaç: İnmeli hastaların, aile bakım vericilerinin, bakım vermede baş etme yeterliliklerini geliştirmek amacıyla yapılan girişimler ve bu girişimlerin neler olduğunun belirlenmesidir. Yöntem: Dâhil edilme kriterlerine uygun olarak, biri meta analiz olmak üzere, 20 randomize kontrollü çalışma değerlendirilmiştir. Tüm çalışmalar sistematize edilerek incelenmiştir. Bulgular: Bakım vericilere yapılan girişim türlerinin; telefonla danışmanlık, e-posta, web destekli eğitim, ev ziyaretleri ve grup eğitimi olduğu belirlenmiştir. Araştırma kapsamına alınan 20 araştırmanın, 15'inde bakım vericilere yapılan girişimin etkin olduğu belirlenmiştir. Diğer beş araştırmada ise, ölçülen bir parametrede istatistik açısından farklılık yok iken, ölçülen diğer parametrelerin en az birinde girişimin bakım verenler için faydalı olduğu belirlenmiştir. Sonuç: Bakım vericileri güçlendirmeye yönelik girişimlerin büyük oranda etkin olması, gelecek çalışmalarda maliyet etkili yöntemlerin belirlenmesi gerektiğine işaret etmektedir.Anahtar kelimeler: İnme, aile bakım verici, bakım verme yeterliliği, bakım yükü, stresle başa çıkma, sistematik derleme

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The effect of a Web-based stroke intervention on carers' well-being and survivors' use of healthcare services

Abstract: This Web-based intervention helped new carers make informed decisions about healthcare needs of stroke survivors, thus reducing service use.

Cited by 91 publications

References 22 publications

Evidence for Stroke Family Caregiver and Dyad Interventions

Evidence for Stroke Family Caregiver and Dyad Interventions

Effectiveness of Web-Based Psychosocial Interventions for Family Caregivers of Older People: What Do We Know?

İnmeli Hastaların Ailelerinin, Bakım Verme Yeterliliğini Geliştirmek İçin Yapılan Girişimler: Sistematik Derleme

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