The effect of supportive educative program on the quality of life in family caregivers of hemodialysis patients

Ghane, Golnar; Farahani, Mansoureh Ashghali; Seyedfatemi, Naime; Haghani, Hamid

doi:10.4103/jehp.jehp_78_16

Cited by 24 publications

(25 citation statements)

References 28 publications

Supporting

Mentioning

Contrasting

Unclassified

Order By: Relevance

“…Support programs have been reported to help caregivers develop coping strategies that could reduce the burden of caregiving 42–44. The caregivers of CKD patients must be seen by Clinicians as important stakeholders in the successful management of CKD patients, hence their psychological needs must be met by adopting this supportive approach.…”

Section: Discussionmentioning

confidence: 99%

Burden, psychological well-being and quality of life of caregivers of end stage renal disease patients

Adejumo¹,

Iyawe²,

Akinbodewa³

et al. 2019

Ghana Medical Journal

View full text Add to dashboard Cite

SummaryBackgroundCaregivers of chronic kidney disease (CKD) patients play an important role in the management of the patients. Their psychological needs are often overlooked and unmet by the managing team. This study assessed the psychosocial well-being and quality of life (QoL) of caregivers of CKD patients in two hospitals in Southern Nigeria.MethodsBurden of caregiving, QoL, depression, and anxiety were assessed using standardized instruments; modified Zarit questionnaire, modified SF-12 questionnaire and Hospital Anxiety and Depression Scale (HADS) respectively among caregivers of CKD patients on maintenance haemodialysis and controls.ResultsFifty-seven caregivers of CKD patients and aged and sex-matched controls participated in the study. Anxiety was significantly higher in caregivers compared to control (31.6% vs 5.3%, p = 0.004). Also, depression was significantly higher in caregivers (31.6% vs 3.5%, p= <0.001). Twenty-eight (49.1%) of the caregivers had mild to moderate burden and 19 (33.3%) had a high burden. The mean Zarit burden score was higher in female caregivers compared to male caregivers (18.30±8.11 vs 14.83±6.70, p = 0.09). The mean depression score was higher in female caregivers compared to male caregivers (8.58±3.83 vs 6.75±3.80, p= 0.08). There was significant positive correlation between Zarit burden and hospital anxiety score (r = 0.539, p= < 0.001) and depression score (r = 0.472, p = 0.005).ConclusionDepression, anxiety and burden were common among caregivers of CKD patients especially females compared to controls. Supportive interventions for these caregivers should be included in treatment guidelines in order to improve overall patients' outcome.FundingSelf-funded

show abstract

Section: Discussionmentioning

confidence: 99%

Burden, psychological well-being and quality of life of caregivers of end stage renal disease patients

Adejumo¹,

Iyawe²,

Akinbodewa³

et al. 2019

Ghana Medical Journal

View full text Add to dashboard Cite

show abstract

“…26 No. 5 -2020 erate (10)(11)(12)(13)(14), moderate to severe (15)(16)(17)(18)(19) and severe (20). The Cronbach alpha for PHQ-9 is 0.88 (17); it was 0.80 for this study.…”

Section: Caregiver's Depressive Symptomsmentioning

confidence: 59%

“…The family caregiver burden in primary care clinics is linked to psychological, socioeconomic, and physical consequences (11,12). However, the quality of life of family caregivers of patients on haemodialysis tends to be neglected, although they are distressed emotionally, financially and psychologically (13). The burden on caregivers of dialysis patients has been acknowledged in recent investigations in the Middle East (4,10).…”

Section: Introductionmentioning

confidence: 99%

Predictors of the burden on family carers of patients on haemodialysis in Jordan

Alnazly¹

2020

East Mediterr Health J

View full text Add to dashboard Cite

In Jordan, the number of people with end-stage renal disease who receive dialysis in 2016 increased to 5130 (1). Most of these people (5048, 98%) received haemodialysis and 2% received peritoneal dialysis (1). However, the number of sessions a week varied between patients: 2% received treatment four times a week, 71% received treatment three times a week, 26% twice a week and 1% once a week, with the average duration of the treatment session being about four hours (1). Therefore, family members, including spouses and children, or friends, usually provide care for people on dialysis, which can be a challenge (2). Factors that can affect the burden on caregivers include patient characteristics and caregiver-related factors (3).Data on family caregivers for people with chronic kidney disease are not yet available in Jordan (1). However, the prevalence of haemodialysis is increasing and family members often have to take over the responsibility of care for the person receiving dialysis. According to Jordanian culture and traditions, family members have a commitment to caring for the sick (4).Previous studies indicate that family caregivers can suffer from depression as a result of caregiving. A study in Turkey found that the burden on caregivers has a direct effect on the quality of the caregiving delivered (5). The study further reported that emotional and psychological distress were common in caregiver spouses in relation to their cultural and traditional values. Other studies in Turkey reported that caregivers perceived that the burden of caring for people on haemodialysis was high (6,7). A more recent study also found that most patients with kidney disease and their family caregivers were depressed (8). Depression in people on dialysis was associated with their socioeconomic and marital status, while the socioeconomic status of caregivers was associated with caregivers' depression (8).Another study reported that the burden of caregiving was associated with the perceived difficulty of the tasks the caregiver was required to do and this burden strongly predicted caregiver depression (9). However, a study in Saudi Arabia found that caring for people receiving haemodialysis was a subjective burden that contributed to depression, social isolation, financial constraints and declining physical health (10). Furthermore, the demands associated with the provision of care for people on dialysis may result in caregivers making ineffective decisions that could adversely affect the way the caregiver manages the personal health needs of the person on dialysis (5).

show abstract

“…In this review, 1-8 groups of caregivers took part in these sessions, the sessions spanned from 2 to Full-size  DOI: 10.7717/peerj.11713/fig- 1 6 weeks and the number of hours of intervention delivered to caregivers ranged from 4 to 16 h. Coordinators of group sessions had different professional backgrounds. Three studies reported a nephrologist, a psychiatric nurse, and/or an HD nurse as the person responsible for delivering the content of the sessions (Ghane et al, 2016;Ghane et al, 2017;Rabiei et al, 2020). The remaining studies were conducted by the authors of the articles.…”

Section: Study Characteristicsmentioning

confidence: 99%

“…The majority of them (n = 4) also used booklets or pamphlets (Ghane et al, 2016;Rabiei et al, 2020;Sotoudeh, Pahlavanzadeh & Alavi, 2019;Ashghali Farahani et al, 2016). Three studies mentioned having validated these materials prior to use (Ghane et al, 2016;Ghane et al, 2017;Sotoudeh, Pahlavanzadeh & Alavi, 2019). Furthermore, after implementing the intervention with the intervention group, one study organized two supervised meetings with the control group, where participants could discuss their issues, feelings, and experiences (Sotoudeh, Pahlavanzadeh & Alavi, 2019).…”

Section: Control Groupsmentioning

confidence: 99%

Interventions to improve the well-being of family caregivers of patients on hemodialysis and peritoneal dialysis: a systematic review

Hovadick

Jardim

Paúl

et al. 2021

PeerJ

View full text Add to dashboard Cite

Background The family caregivers of patients on hemodialysis (HD) and peritoneal dialysis (PD) typically experience higher burden than the general population because of the nature of tasks these caregivers need to carry out as a part of homecare. This fact influences both the caregivers’ quality of life and the quality of their care toward the patient. Thus, this study aimed to review the effectiveness and limitations of interventions in improving the well-being of family caregivers of patients on HD and PD. Methodology A systematic review was performed according to the Preferred Reporting Items for Systematic Reviews and Meta-Analyses and the Cochrane Handbook for Systematic Reviews of Interventions (version 5.1.0). The Cochrane Library, Cumulative Index to Nursing and Allied Health Literature, Embase, MEDLINE, VHL Regional Portal, Scopus, and Web of Science databases were searched queried for randomized controlled trials that developed interventions aimed at improving the well-being of family caregivers of patients undergoing HD and/or PD from 2009 to 2020. The study protocol was registered at the International Prospective Register of Systematic Reviews (registration no. CRD42020151161). Results Six studies met the inclusion criteria, all of which addressed caregivers of patients undergoing HD. All interventions reported in the included studies were carried out in group sessions, which addressed topics such as patient assistance and care, treatment complications, coping strategies, caregiver self-care practices, problem solving, and self-efficacy. The studies found significant improvement in the caregiver’s well-being. Conclusions Group session interventions are effective in improving the well-being of family caregivers of patients undergoing HD. In regard to PD, there is insufficient evidence to make recommendations for caregivers of patients with this treatment.

show abstract

The effect of supportive educative program on the quality of life in family caregivers of hemodialysis patients

Cited by 24 publications

References 28 publications

Burden, psychological well-being and quality of life of caregivers of end stage renal disease patients

Burden, psychological well-being and quality of life of caregivers of end stage renal disease patients

Predictors of the burden on family carers of patients on haemodialysis in Jordan

Interventions to improve the well-being of family caregivers of patients on hemodialysis and peritoneal dialysis: a systematic review

Contact Info

Product

Resources

About