2016
DOI: 10.5812/numonthly.36854
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The Effect of the Family Empowerment Model on Quality of Life in Children with Chronic Renal Failure: Children’s and Parents’ Views

Abstract: BackgroundChronic renal failure (CRF) causes a gradual decline in kidney function to the extent that CRF patients need long-term clinical care, which affects the patients’ family function and quality of life (QoL).ObjectivesThe present study was conducted to study the effects of the family-centered empowerment model on QoL in children with CRF during 2012-2013.Patients and MethodsIn this quasi-experimental study, 68 children with CRF and their parents were randomly assigned to two groups, intervention and cont… Show more

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Cited by 26 publications
(18 citation statements)
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“…Key steps leading to empowerment are acquiring new knowledge, confidence in oneself to manage emotionally the life or health challenges that are being presented, and connecting to and learning from similar others . Parents of children with chronic or rare disorders report not having the tools needed to be successful in formulating next steps, face challenges in coordinating complex medical care with multiple providers, limited opportunities to connect to and learn from other parents, as well as little information on the long‐term consequences or medical management of the child's condition .…”
Section: Discussionmentioning
confidence: 99%
See 1 more Smart Citation
“…Key steps leading to empowerment are acquiring new knowledge, confidence in oneself to manage emotionally the life or health challenges that are being presented, and connecting to and learning from similar others . Parents of children with chronic or rare disorders report not having the tools needed to be successful in formulating next steps, face challenges in coordinating complex medical care with multiple providers, limited opportunities to connect to and learn from other parents, as well as little information on the long‐term consequences or medical management of the child's condition .…”
Section: Discussionmentioning
confidence: 99%
“…Key steps leading to empowerment are acquiring new knowledge, confidence in oneself to manage emotionally the life or health challenges that are being presented, and connecting to and learning from similar others. 21,23,37 Parents of children with chronic or rare disorders report not having the tools needed to be successful in formulating next steps, face challenges in coordinating complex medical care with multiple providers, limited opportunities to connect to and learn from other parents, as well as little information on the long-term consequences or medical management of the child's condition. 6,38,40 With less than half of children undergoing genomic sequencing obtaining a diagnosis and with these diagnoses likely to be rare, ultra-rare, or unique disorders 41 for which little is known, high parental expectations and importance placed on a diagnosis are unlikely to be met.…”
Section: Interpretation Of Factors and Clinical Translationmentioning
confidence: 99%
“…To overcome the seemingly slow uptake of PFCC practices in the acute setting , healthcare staff must place greater emphasis on activating and empowering families. Family empowerment can be identified when healthcare staff create opportunities to increase families’ knowledge and support family to contribute their expert understanding of patient needs or preferences . Early childhood and family researchers have unique insights into building the capacity of families .…”
Section: Discussionmentioning
confidence: 99%
“…They addressed from the description of the experience of the disease by the child and his family and the changes caused in the family environment 14 to the development of a care proposal for family members of children with Chronic Kidney Disease (CKD) based on the difficulties faced at home. 11 Highlighting the participation of families in empowerment groups and their contributions to the care of children with CKD, 35 an activity that can increase the quality of life of children with CKD, 24 because the application of the family-centered empowerment model influences knowledge, attitudes and parents' self-efficacy in controlling and managing their child's disease. 34 When carefully analyzing the different approaches described in the studies, it is highlighted that the care for the family of the child with CKD, which implies major changes in family life, as its structure undergoes exhausting adaptations to face the disease 14 and this transition can provide the transformation in the care.…”
Section: Implications Of Family Intervention Strategiesmentioning
confidence: 99%
“…34 When carefully analyzing the different approaches described in the studies, it is highlighted that the care for the family of the child with CKD, which implies major changes in family life, as its structure undergoes exhausting adaptations to face the disease 14 and this transition can provide the transformation in the care. 35 The analyzed studies allowed to evidence different ways to evaluate and or intervene with the family of the child and/or adolescent, considering that there is no single model of approach to the family. 2 The International Family Nursing Association, 6 recommends the use of 15 world models for family assessment and intervention.…”
Section: Implications Of Family Intervention Strategiesmentioning
confidence: 99%