The experience of cancer survivors in community-based psycho-social support activities in Shanghai, China: a qualitative study

Wang, Jiwei; Zhang, Tian-Rui; Shen, Qian; Yang, Zhi-Qi; Liu, Cong; Chen, Si-Jia; Li, Jiang; Luo, Zheng-Nian; Yuan, Zhenyu; Yu, Jinming

doi:10.1007/s11136-015-1021-8

Cited by 9 publications

(20 citation statements)

References 38 publications

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“…Health dimensions identified in this study were similar to those found in previous studies of Chinese people through focus group discussion (6)(7)(8)(9)(10)(11)(12). However, some of those health dimensions identified from focus group discussion were not surfaced in the present study.…”

Section: Discussionsupporting

confidence: 85%

Culture-Related Health Disparities in Quality of Life: Assessment of Instrument Dimensions Among Chinese

Bao

et al. 2021

Front. Public Health

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Background: Health-related quality of life (HRQoL) is one of the major focuses of primary care. However, HRQoL instruments used in China are mainly developed from Western countries. Such instruments may not cover all important health concepts valued by the Chinese as health is a culture-specific concept.Objectives: The objectives of this study are to identify culture-specific health dimensions and culture-related health disparities in primary care that are considered important by Chinese living in China.Methods: A purposive sample of 164 adult Chinese (67 healthy persons and 97 patients) were interviewed face to face. In-depth open-ended questions were asked to elicit culture-specific dimensions of quality of life in primary care settings in China.Results: Twelve health dimensions were identified. Five most frequently mentioned dimensions were: mood (N = 52, 31.71%), physical activities (N = 48, 29.27%), work (N = 40, 24.39%), diet (N = 32, 19.51%), and vitality (N = 28, 17.07%). Significantly more healthy persons reported mood (49.25 vs. 19.59%, P < 0.001), mindset (16.42 vs. 0.00%, P < 0.001), and self-care (11.94 vs. 2.06%, P = 0.016) characterizing good HRQoL, while more patients emphasized on work (4.48 vs. 38.14%, P < 0.001). Diet and vitality appeared to be culture-specific dimensions related to health among Chinese.Conclusions: To better adapt or develop HRQoL instruments for Chinese, dimensions or items regarding diet might be included and disparities in the meaning of vitality between Chinese and Western cultures should be considered.

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Section: Discussionsupporting

confidence: 85%

Culture-Related Health Disparities in Quality of Life: Assessment of Instrument Dimensions Among Chinese

Bao

et al. 2021

Front. Public Health

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“…Besides, in China, some cancer rehabilitation clubs provide social support through psycho-social interventions such as recreational and sports activities, hospice care and cognitive behavioral therapy 49,50 . These cancer rehabilitation clubs also promote the social participation of cancer survivors and help them build informed social networks for cancer treatment and recovery 49,50 . To effectively strengthen social capital, the interventions should be developed within an ecological framework that considers many levels of influence 51 .…”

Section: Discussionmentioning

confidence: 99%

Effects of physical activity and stress on the relationship between social capital and quality of life among breast cancer survivors

Zhao

Ma²,

Tanimoto

et al. 2020

Sci Rep

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This study aims to investigate the serial multiple mediation of physical activity and perceived stress in the relationship between individual social capital and quality of life (QOL) in breast cancer survivors (BCSs). This study was conducted among 520 BCSs between March and April 2017 in Shanghai, China. Data were collected using the Individual Social Capital Scale, the Health-Promoting Lifestyle Profile-II, the Perceived Stress Scale-14 and the EORTC QLQ-C30. Ordinary least-squares regression and the bootstrap method was used to test the significance of the serial multiple mediation model. The serial-multiple mediations of physical activity and perceived stress were found significant in the relationship of QOL with all five dimensions of individual social capital. The separate mediations of two single mediating variables were found significant in the relationship of QOL with control over life and feeling about the community. In the relationship of QOL with social participation, social network and social support, the separate mediation of physical activity was significant, while the separate mediation of perceived stress was not significant. A multidisciplinary team approach and a variety of delivery systems are needed to address the social, physical and psychological issues for improving QOL among BCSs.

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“…Thus, participants might be highly representative for shared values and opinions toward cancer. 21 , 29 , 30 Furthermore, compared with the original ABCAM questionnaire, with permission from its original authors, we removed the subjective norm and adjusted some specific items for the ABTCM questionnaire. Thus, there may be some bias for direct comparison between the results of the 2 studies.…”

Section: Discussionmentioning

confidence: 99%

“…Such institutions play an important role in Chinese cancer patients’ rehabilitation and well-being. 21 However, limited evidence existed to evaluate attitudes toward TCM use among this population. We also aimed to investigate whether socioeconomic and disease factors impact these expectations and barriers among Chinese cancer patients.…”

Section: Introductionmentioning

confidence: 99%

Evaluating Cancer Patients’ Expectations and Barriers Toward Traditional Chinese Medicine Utilization in China: A Patient-Support Group–Based Cross-Sectional Survey

et al. 2018

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Background: Traditional Chinese medicine (TCM) is widely used among Chinese cancer patients. However, little is known about Chinese patients’ expectations and barriers toward using TCM for cancer. Methods: We conducted a cross-sectional survey within a patient-support group, the Beijing Anti-Cancer Association. We measured the outcome, Chinese cancer survivors’ expectations and barriers toward TCM utilization, using a modified version of ABCAM (Attitudes and Beliefs towards Complementary and Alternative Medicine), the ABTCM (Attitudes and Beliefs towards Traditional Chinese Medicine). We used multivariate models to evaluate the impact of socioeconomic status and clinical factors on their expectations and barriers (including treatment concerns and logistical challenges domain) toward TCM. Results: Among 590 participants, most patients expected TCM to boost their immune system (96%), improve their physical health (96%), and reduce symptoms (94%). Many had logistical challenges (difficulty decocting herbs (58%) and finding a good TCM physician (55%)). A few were concerned that TCM might interfere with conventional treatments (7.6%), and that many TCM treatments are not based on scientific research (9.1%). In the multivariable regression model, age ≤60 years was independently associated with higher expectation score (P = .031). Age ≤60 years (coefficient 5.0, P = .003) and localized disease (coefficient 9.5, P = .001) were both associated with higher treatment concerns. Active employment status (coefficient 9.0, P = .008) and localized disease (coefficient 7.5, P = .030) were related to more logistical challenges. Conclusion: Age and cancer stage were related to Chinese cancer patients’ perceived expectations and barriers toward TCM use. Understanding these attitudes is important for reshaping the role that TCM plays in China’s patient-centered comprehensive cancer care model.

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The experience of cancer survivors in community-based psycho-social support activities in Shanghai, China: a qualitative study

Abstract: The psycho-social support activities of SCRC had influenced cancer survivor's life. Public health resources and supportive policies should be in place to support local self-help cancer rehabilitation groups.

Cited by 9 publications

References 38 publications

Culture-Related Health Disparities in Quality of Life: Assessment of Instrument Dimensions Among Chinese

Culture-Related Health Disparities in Quality of Life: Assessment of Instrument Dimensions Among Chinese

Effects of physical activity and stress on the relationship between social capital and quality of life among breast cancer survivors

Evaluating Cancer Patients’ Expectations and Barriers Toward Traditional Chinese Medicine Utilization in China: A Patient-Support Group–Based Cross-Sectional Survey

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