The Experience of Parents of Toddlers Diagnosed With Autism Spectrum Disorder in the More Than Words Parent Education Program

Patterson, Stephanie; Smith, Veronica

doi:10.1097/iyc.0b013e31822c10e4

Cited by 24 publications

(21 citation statements)

References 20 publications

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“…As a result, mothers with ASD felt socially isolated as they didn't engage in social activities and kept their ASD children at home which is consistent with previous research (DePape and Lindsay 2014; Divan et al 2012;Altiere and Von Kluge 2009). In turn, this could have negative impact on their family welling (Smith et al 2012;Patterson and Smith 2011;Ekas and Whitman 2010). Despite that the current findings indicated social stigma among mothers of children with ASD, previous research showed positive societal attitudes towards individuals with ASD in Egypt (Gobrial 2015).…”

Section: Discussionsupporting

confidence: 88%

The Lived Experiences of Mothers of Children with the Autism Spectrum Disorders in Egypt

Gobrial

2018

Social Sciences

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The aim of this study was to gain insight into the experiences of mothers caring for children with autism spectrum disorders (ASD) in relation to the early life, resources and to address the consequences of raising a child with ASD in Egypt. Semi-structured interviews were conducted with 14 mothers of children with ASD in Egypt, the children were aged 5–14 years old (mean: 7.3 years). Data were thematically analysed. Results revealed that life with ASD was daunting for the Egyptian mothers. Findings suggested that provision of inadequate education, healthcare and stigma constitute the main issues for mothers. Furthermore, ASD impacted negatively on the social life, emotional wellbeing and sacrifices of mothers of children with ASD. The findings provided valuable insight into the life of mothers, revealing what life really is like for mothers caring for a child with ASD in one of the low-medium-income countries. Understanding the mothers’ experiences of caring for children with ASD is crucial in providing support and developing the services that are urgently needed in Egypt.

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Section: Discussionsupporting

confidence: 88%

The Lived Experiences of Mothers of Children with the Autism Spectrum Disorders in Egypt

Gobrial

2018

Social Sciences

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“…Maternal mental health supports in ASD care and QoL. Studies conducted in both the high resource and LMIC settings have reported that parents who participated in any training interventions for their children with ASD consistently report a high degree of satisfaction and improvement in their children [Patterson & Smith, 2011;Perera et al, 2016;Rahman et al, 2016]. However, higher socioeconomic status of mothers and improvement in children after schooling were important contributory factors for the improvement of the QoL of mothers in our study, suggesting affordability of the families to offer ASD care through school services may influence QoL of mothers of children with ASD, and more representative studies will be needed to further parse such a relationship.…”

Section: New Evidence Of Asd In Relevance To Lmic and Contextualizatimentioning

confidence: 99%

Burden of major depressive disorder and quality of life among mothers of children with autism spectrum disorder in urban bangladesh

Naheed

Islam

Hossain³

et al. 2019

Autism Research

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This cross‐sectional study examined the burden of depression and quality of life (QoL) among mothers of children with autism spectrum disorder (ASD) attending six schools offering special educational services for children with ASD in urban Dhaka, Bangladesh. All consenting mothers were 18 years of age and older and met criteria for major depressive disorder (MDD) on the Structured Interview for DSM‐V‐TR Research Version‐non patient edition administered by trained raters. QoL was assessed by the EuroQol five‐dimensional standardized questionnaire. MDD was diagnosed in 45% of mothers and was proportionally higher among those who did not work outside the home, had no childcare support at home, expressed low level of satisfaction with the quality of providers when they had sought care for their children with ASD, and reported being recipient of negative attitudes from neighbors toward their children with ASD. QoL was negatively associated with MDD, mothers' illness, and low satisfaction with the health care providers for children with ASD, as well as experiencing a negative attitude by neighbors toward their children. QoL was positively associated with the reported family monthly income and improvement of the children with ASD on school attendance. The prevalence of MDD among mothers of children with ASD was high and associated with poor QoL. Integrating mental health services and supports for mothers in the ASD care of children is likely to address the high burden of depression they face, and improve their overall quality of life. Autism Res 2020, 13: 284–297. © 2019 International Society for Autism Research, Wiley Periodicals, Inc. Lay Summary The levels of depression were assessed among mothers of children with autism spectrum disorder (ASD) attending six schools offering special educational services for children with ASD in urban Dhaka, Bangladesh. Almost one in two mothers was found to have major depression. The quality of life of these mothers was generally poor. Integrating mental health services for mothers with ASD care in children is likely to address the burden of depression among the mothers of children with ASD and improve overall quality of life.

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“…Parenting a child with ASD in Egypt can have a dramatic and negative impact on the family's life, since health, social and mental health care and support for Egyptian children and young people with ASD are typically based on a household-provider model (Diggle, MaConachie, & Randle, 2003;Hartmann, 2012;Karst & Hecke, 2012;Patterson & Smith, 2011). Lack of awareness and resources in Egypt often leaves families with limited options to support their children and young people with ASD, and this can cause family isolation and frustration (Taha & Hussein, 2014).…”

Section: The Life Of Children and Young People With Asd In Egyptmentioning

confidence: 99%

Education of children and young people with autistic spectrum disorders in Egypt

Gobrial

McAnelly

Shannon

2018

Brit J Learn Disabil

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Accessible Summary This paper reviews the present educational needs of children and young people and autistic spectrum disorder (ASD) in Egypt. Children with ASD are largely unrecognised by the educational provision in Egypt. This paper highlights the need for an improved educational programme for children with ASD who also experience an associated learning disability and learning difficulties. It is crucial to develop teacher support programmes and empower teachers to enable children and young people with ASD develop their fullest potential. Abstract This paper outlines, through a transnational discourse between partners in Egypt and the UK, an overview of the literature on the definition and features of autistic spectrum disorder (ASD) with associated learning needs and health conditions as applied to children and young people in Egypt. As a low‐ to middle‐income country, Egypt has a poor and underdeveloped health, education and social service to support children with ASD and very little research has investigated this phenomenon. This paper adds to the discussion through the shared knowledge and practice in the educational curriculum of children with ASD in Egypt.

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The Experience of Parents of Toddlers Diagnosed With Autism Spectrum Disorder in the More Than Words Parent Education Program

Cited by 24 publications

References 20 publications

The Lived Experiences of Mothers of Children with the Autism Spectrum Disorders in Egypt

The Lived Experiences of Mothers of Children with the Autism Spectrum Disorders in Egypt

Burden of major depressive disorder and quality of life among mothers of children with autism spectrum disorder in urban bangladesh

Education of children and young people with autistic spectrum disorders in Egypt

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