The experiences and perceptions of care in acute settings for patients living with dementia: A qualitative evidence synthesis

Reilly, Judith C.; Houghton, Catherine

doi:10.1016/j.ijnurstu.2019.04.018

Cited by 60 publications

(68 citation statements)

References 31 publications

Supporting

Mentioning

Contrasting

Unclassified

Order By: Relevance

“…We know however, that this is not always the case, with people with dementia having worse health outcomes than those without the condition [ 2 ]. Poor healthcare experiences are commonplace, with a recent qualitative synthesis on the experiences of people with dementia in hospital highlighting that disempowerment, environmental challenges and reliance upon restraint as being common experiences for this group of patients [ 3 ]. We therefore need to improve how we prepare future generations of healthcare professionals to develop and deliver care that supports people affected by dementia to live well from diagnosis through to the end of life.…”

Section: Introductionmentioning

confidence: 99%

A qualitative evaluation of the effect of a longitudinal dementia education programme on healthcare student knowledge and attitudes

et al. 2020

View full text Add to dashboard Cite

Background and objectives There is a need to ensure that the future healthcare workforce has the necessary knowledge and skills to deliver high quality compassionate care to the increasing number of people with dementia. Our programme has been set up to address this challenge. In the programme, undergraduate healthcare students (nursing, medical and paramedic) visit a family (person with dementia and their carer) in pairs over a 2-year period. This qualitative study sought to understand the student experience of the programme. Methods Participants were undergraduate healthcare students who were undertaking our programme at two universities. We sampled for variation in the student participants in order to generate a framework for understanding the student experience of the programme. Students were invited to take part in the qualitative study, and written consent was obtained. Interviews and focus group transcripts were analysed using thematic analysis. Results Thirty-nine (nursing, medical and paramedic) student participants took part in individual in-depth qualitative interviews and 38 took part in five focus groups. Four key themes were identified from the analysis; relational learning, insight and understanding, challenging attitudes and enhanced dementia practice. Discussion Student experience of our programme was shown to be positive. The relationship between the students and family was most impactful in supporting student learning, and the subsequent improvement in knowledge, attitudes and practice. Our model of undergraduate dementia education has applicability for other long-term conditions.

show abstract

Section: Introductionmentioning

confidence: 99%

A qualitative evaluation of the effect of a longitudinal dementia education programme on healthcare student knowledge and attitudes

et al. 2020

View full text Add to dashboard Cite

show abstract

“…It is estimated that about one-third of older people in acute Irish hospitals may have dementia [7][8][9]. However, the acute hospital setting can often be experienced as disorientating and stressful by people living with dementia and previous research has indicated that this can result in adverse health and functional outcomes including the provision of insufficient care [9][10][11][12][13][14][15][16][17][18][19]. Furthermore, limited knowledge and understanding of dementia among general hospital staff, coupled with organisational constraints on a busy hospital ward and traditional task approaches to care within acute settings, can contribute to negative attitudes towards people living with dementia and challenges to the ability to provide personcentred care [11,13,14,20,21].…”

Section: Introductionmentioning

confidence: 99%

Acute hospital staff’s attitudes towards dementia and perceived dementia knowledge: a cross-sectional survey in Ireland

Keogh

Daly

et al. 2020

BMC Geriatr

View full text Add to dashboard Cite

Background Little is known about staff’s attitudes in Irish acute hospital settings towards people living with dementia and their perceived dementia knowledge. The aim of this study was to understand the general level of dementia knowledge and attitudes towards dementia in different types of hospital staff, as well as to explore the potential influence of previous dementia training and experience (having a family member with dementia) and the potential moderating effects of personal characteristics. This data was required to plan and deliver general and targeted educational interventions to raise awareness of dementia throughout the acute services. Methods A cross-sectional survey was carried out among a diverse range of hospital staff (n = 1795) in three urban acute general hospitals in Ireland, including doctors, nurses, healthcare attendants, allied professionals, and general support staff. Participants’ perceived dementia knowledge and attitudes were assessed as well as their previous dementia training and experience. To measure participant’s attitude towards dementia, the validated Approaches to Dementia Questionnaire (ADQ) was used. Results Hospital staff demonstrated positive attitudes towards people living with dementia, and believed they had a fair to moderate understanding of dementia. Both ‘having previous dementia training’ and ‘having a relative living with dementia’ predicted attitude towards dementia and perceived dementia knowledge. Interestingly, certain personal staff characteristics did impact dementia training in predicting attitude towards dementia and perceived dementia knowledge. Conclusion This study provides a baseline of data regarding the attitudes towards dementia and perceived dementia knowledge for hospital staff in Irish acute hospitals. The results can inform educational initiatives that target different hospital staff, in order to increase awareness and knowledge to improve quality of dementia care in Irish hospitals.

show abstract

“…A meta-synthesis of qualitative studies focussed on the perspective of persons with dementia on their acute care hospital stay. Hospital care and the hospital environment caused anxiety, distress, lack of control, worries about the future, distrust, feelings of social exclusion, and uncertainty [50]. These aspects were not addressed in the reported outcomes.…”

Section: Discussionmentioning

confidence: 99%

A systematic review of interventions to improve acute hospital care for people with dementia

Karrer

Schnelli

Zeller

et al. 2020

Preprint

View full text Add to dashboard Cite

Background: People with dementia are confronted with negative consequences due to hospital stays. When developing new interventions to improve care for people with dementia in acute care hospitals (by intervention we understand organisational strategies, programmes, and/or treatments and actions performed by healthcare professionals), it is crucial to have a comprehensive overview of previous interventions tested in this field and to know the outcomes.Methods: We conducted a systematic review to provide an overview of interventions targeting the care situation of patients with dementia in acute care hospitals. We included trials with interventional study designs and systematic reviews without restrictions regarding the outcomes. We searched five electronic databases, conducted a hand search of journals and performed forward and backward citation tracking of included studies. For risk of bias assessment, we used the Cochrane Collaboration’s tool for assessing risk of bias in randomised trials, ROBANS (for non-randomised controlled trials) and AMSTAR (for systematic reviews). We provide tabular and narrative summaries of the findings. Results: Twenty studies met the inclusion criteria. The findings indicated a broad range of interventions and outcomes. We categorised the interventions into eight intervention types: educational programmes, special non-pharmacological interventions, delirium management programmes, inpatient rehabilitation interventions, family-/person-centred programmes, use of specially trained nurses, volunteer programmes and special care units. Staff outcomes were investigated in most of the studies, followed by patient outcomes. Outcomes concerning relatives were reported in four studies. Educational programmes were the most commonly reported intervention type and resulted in improved staff outcomes. Family-/person-centred care programmes, use of specially trained nurses and delirium management programmes were effective in improving patient-related outcomes, e.g. delirium severity and functional performance. Rehabilitation interventions after hip fractures and special care units for people with dementia hardly showed any significant effects. Conclusions: Although the included interventional studies reported improved outcomes concerning patients, relatives and staff, the evidence is insufficient to declare which interventions are effective in improving care for people with dementia in acute care hospitals. Future research should focus on relevant patient and family caregiver outcomes. Thereby, it is necessary to consider the complexity of the interventions. Interventions addressing relatives, interprofessional collaboration and the entire practice culture are needed. Trial registration: PROSPERO: CRD42018111032.

show abstract

The experiences and perceptions of care in acute settings for patients living with dementia: A qualitative evidence synthesis

Cited by 60 publications

References 31 publications

A qualitative evaluation of the effect of a longitudinal dementia education programme on healthcare student knowledge and attitudes

A qualitative evaluation of the effect of a longitudinal dementia education programme on healthcare student knowledge and attitudes

Acute hospital staff’s attitudes towards dementia and perceived dementia knowledge: a cross-sectional survey in Ireland

A systematic review of interventions to improve acute hospital care for people with dementia

Contact Info

Product

Resources

About