The experiences of mothers of children with autism: Managing multiple roles

Safe, Anneleise P.; Joosten, Annette; Molineux, Matthew

doi:10.3109/13668250.2012.736614

Cited by 87 publications

(121 citation statements)

References 34 publications

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“…‘… it's impossible to maintain your role in other areas because there's only one you and there's only 24 hours in a day and so everything else has to give a bit’ (Safe et al . , p. 299)…”

Section: Resultsmentioning

confidence: 98%

Parents' voices: ‘why and how we advocate’. A meta‐synthesis of parents' experiences of advocating for their child with autism spectrum disorder

Boshoff

Gibbs

Phillips

et al. 2016

Child

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Parenting a child with autism spectrum disorder (ASD) can be stressful, and accessing services can add to this stress. Self-efficacy, agency and advocacy are important for parents when accessing and using services. To develop insight into parental advocacy, a meta-synthesis was undertaken to consolidate the literature focussing on parents' experiences of advocating for their child with ASD. A qualitative meta-synthesis was conducted. Fifteen databases were systematically searched by using key terms related to ASD, children, parents/carers, advocacy and qualitative studies. Twenty-four studies were identified and appraised using an adapted version of the Critical Appraisal Skills Programme tool. Data were synthesized into themes through the steps of review, meta-aggregation, integration and interpretation. Two overarching concepts emerged, illustrating both the challenging nature of advocacy and the associated personal and societal benefits. These two concepts are supported by eight themes: a life-long, all-encompassing challenge; advocacy as a parental coping strategy; advocacy involving working to create a future; balancing roles and needs; isolation versus support; personal impacts of advocacy; benefits of advocacy; and the barriers to advocacy. The experience of advocacy for parents with a child with ASD is complex and intensive, presenting both personal and societal benefits, as well as challenges for parents. In supporting individuals with ASD and family well-being, service providers need to have an understanding of the advocating role of parents and ensure that opportunities exist for their voices to be heard during service delivery.

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Section: Resultsmentioning

confidence: 98%

Parents' voices: ‘why and how we advocate’. A meta‐synthesis of parents' experiences of advocating for their child with autism spectrum disorder

Boshoff

Gibbs

Phillips

et al. 2016

Child

View full text Add to dashboard Cite

show abstract

“…There is little research, most of it qualitative, that seeks to explore the broader parent perspective and evolving life experience of what it is like to raise a child with ASD (Corcoran et al, 2015; Hoogsteen and Woodgate, 2013; King et al, 2006; Safe et al, 2012). Rutter (2007) pointed out that when studying parental reactions to adversity, it is important to consider the life span perspective in addition to past and present mental operations, and individual traits and experiences.…”

Section: Introductionmentioning

confidence: 99%

Family planning and family vision in mothers after diagnosis of a child with autism spectrum disorder

Navot

Jorgenson

Stoep

et al. 2015

Autism

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The diagnosis of a child with autism has short- and long-term impacts on family functioning. With early diagnosis, the diagnostic process is likely to co-occur with family planning decisions, yet little is known about how parents navigate this process. This study explores family planning decision making process among mothers of young children with autism spectrum disorder in the United States, by understanding the transformation in family vision before and after the diagnosis. A total of 22 mothers of first born children, diagnosed with autism between 2 and 4 years of age, were interviewed about family vision prior to and after their child’s diagnosis. Grounded Theory method was used for data analysis. Findings indicated that coherence of early family vision, maternal cognitive flexibility, and maternal responses to diagnosis were highly influential in future family planning decisions. The decision to have additional children reflected a high level of adaptability built upon a solid internalized family model and a flexible approach to life. Decision to stop childrearing reflected a relatively less coherent family model and more rigid cognitive style followed by ongoing hardship managing life after the diagnosis. This report may be useful for health-care providers in enhancing therapeutic alliance and guiding family planning counseling.

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“…Other studies that have aimed for richness in narrative, such as, the studies by Reitmanova and Gustafson (2008) and Safe et al (2012), have also reported findings with saturation and variability with this number of research participants. Hence, we commenced with this number as an initial target, and if saturation was not met, we planned to recruit additional participants.…”

Section: Research Participantsmentioning

confidence: 83%

Stereotyping – Predispositions, activations and applications in cross-cultural service interactions

Cheok

Aleti

Hede

2015

Journal of Vacation Marketing

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The aim of the article was to explore for stereotyping patterns in crosscultural service interactions. This research was set within the context of luxury hotel in Malaysia, where most of the service providers are non-Western. In-depth interviews and written diaries were used to develop deep narratives for the patterns of stereotyping adopted by the service providers. Predispositions, activations and applications of stereotypes were examined considering implicit theory and power distance. Associations between the service providers' culture and position and their tendency to activate and apply stereotypes were found. The findings highlight the increasing complexity in cross-cultural service interactions within the South East Asian region. This study provides management with insights into service interactions in the contemporary context of Asia, where socio/economic and cultural boundaries are blurring. Practical and theoretical recommendations are made for both management and further academic research on this issue, which has potential to influence guest satisfaction and ultimately business viability.

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The experiences of mothers of children with autism: Managing multiple roles

Abstract: The findings indicate that health professionals working with these families must support mothers in managing various aspects of their lives, including those not directly related to their child with autism.

Cited by 87 publications

References 34 publications

Parents' voices: ‘why and how we advocate’. A meta‐synthesis of parents' experiences of advocating for their child with autism spectrum disorder

Parents' voices: ‘why and how we advocate’. A meta‐synthesis of parents' experiences of advocating for their child with autism spectrum disorder

Family planning and family vision in mothers after diagnosis of a child with autism spectrum disorder

Stereotyping – Predispositions, activations and applications in cross-cultural service interactions

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