The Experiences of People With Advanced Cancer and Professionals Participating in a Program With Focus on Rehabilitation and Palliative Care

Raunkiær, Mette

doi:10.1177/00302228211058307

Cited by 5 publications

(1 citation statement)

References 17 publications

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“…It is not uncommon for people with lung cancer to constrain themselves to inactivity and live sedentary lives to avoid worsening the symptoms (The Danish Cancer Society, 2020). To alleviate the consequences of lung cancer, cancer rehabilitation can be essential (Edbrooke et al, 2019; Raunkiær, 2022). In a Danish context, the purpose of rehabilitation is that people achieve the best possible participation, self‐determination, mastery and a high degree of self‐perceived quality of life as possible in everyday life (Maribo et al, 2022).…”

Section: Introductionmentioning

confidence: 99%

‘When I can ride my bike, I think, am I at all as sick as they say?’ An exploration of how men with advanced lung cancer form illness perceptions in everyday life

Mærsk

Rosted

Lindahl-Jacobsen

2022

European J Cancer Care

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Objective: The purpose of this study was to explore how men with advanced lung cancer form perceptions of their illness in everyday life and how this influences perceptions about rehabilitation.Methods: Constructivist grounded theory principles guided the collection and analysis of data from in-depth interviews with 10 men with advanced lung cancer. Results:The findings show that the men's illness perception was fluid, contextual and formed by interrelated factors. Engaging in daily activities and maintaining everyday life was a strong influence on their illness perception. Conclusion:In order to make rehabilitation relevant to men with lung cancer, consideration should be given to how the men's everyday lives may be incorporated into the service provision.

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Section: Introductionmentioning

confidence: 99%

‘When I can ride my bike, I think, am I at all as sick as they say?’ An exploration of how men with advanced lung cancer form illness perceptions in everyday life

Mærsk

Rosted

Lindahl-Jacobsen

2022

European J Cancer Care

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Symptom burden and relief in palliative care units of German Comprehensive Cancer Center and other hospitals

Berendt,

Brunner,

Heckel

et al. 2024

J Cancer Res Clin Oncol

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Purpose The National Hospice and Palliative Registry contains patient data from German hospice and palliative care facilities about symptoms. The aim of the study at hand is to differentiate symptom burden of patients in palliative care units between Comprehensive Cancer Center (CCC) and other hospitals regarding symptom burden and relief of patients in palliative care units. Methods The registry analysis provided data of patients in palliative care units (2014–2018). We analyzed characteristic and symptom-related data on 18 symptoms, with considerable symptom-burdened patients (moderate or severe). We followed a cancer (yes/no) and facility-specific descriptive analysis (f, %, μ, Mdn, SD, V, r) using SPSS. Results We evaluated 10,447 patient records (CCC: 4234 pts/non CCC 6,213 pts), 82% with a cancer diagnosis. For cancer patients, the mean age in CCC-affiliated palliative care units was 68 (SD 19–99) years, in others 73 (SD 23–104) years (p < 0.05; V = 0.2). The proportion of patients with significant symptom burden is lower in CCC-affiliated than in other palliative care units. The difference between facilities shows a significant weak effect in pain, vomiting and constipation, depressiveness, anxiety, and tension. The proportion of cases which symptom burden could be alleviated is higher in CCC-affiliated palliative care units with significant weak/medium effect in pain, nausea, vomiting, shortness of breath, constipation, wound care problems, depressiveness, anxiety, tension, confusion, and problems in organizing care. Conclusion We found differences in symptom burden and symptom relief between CCC-affiliated and other palliative care units. CCCs should continue to feel responsible for sharing knowledge about symptom relief, such as through standard operating procedures and education.

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‘There is nothing beautiful or life-affirming in it’: experiences of harm in a narrative course combining rehabilitative and palliative care approaches for people who have or have had cancer

Gärtner,

Blix,

Raunkiær

et al. 2024

Mortality

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The Experiences of People With Advanced Cancer and Professionals Participating in a Program With Focus on Rehabilitation and Palliative Care

Cited by 5 publications

References 17 publications

‘When I can ride my bike, I think, am I at all as sick as they say?’ An exploration of how men with advanced lung cancer form illness perceptions in everyday life

‘When I can ride my bike, I think, am I at all as sick as they say?’ An exploration of how men with advanced lung cancer form illness perceptions in everyday life

Symptom burden and relief in palliative care units of German Comprehensive Cancer Center and other hospitals

‘There is nothing beautiful or life-affirming in it’: experiences of harm in a narrative course combining rehabilitative and palliative care approaches for people who have or have had cancer

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