The experiences of social and community participation of people with non‐traumatic spinal cord injury

Barclay, Linda; Lentin, Primrose; Bourke-Taylor, Helen; McDonald, Rachael

doi:10.1111/1440-1630.12522

Cited by 29 publications

(46 citation statements)

References 25 publications

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“…The process of returning to social and community participation was identified as occurring in three main stages: withdrawal; re-emergence into society; and stability. Each stage consisted of adjustment and adaptation in several areas, including the loss of independence; the experience of being out in public; social networks; participation in productivity roles; and expectations regarding satisfactory social and community participation [37].…”

Section: Discussionmentioning

confidence: 99%

Promoting factors and barriers to participation in working life for people with spinal cord injury

Sturm

Bökel

Korallus

et al. 2020

J Occup Med Toxicol

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Background It is still difficult for people with physical impairments to be and remain equally integrated into the labour market. For this reason, the question of occupational activity has explicitly been examined by the German Spinal Cord Injury Survey (GerSCI) in order to identify barriers and facilitators for labour market participation. Methods Cross-sectional explorative observational study. The GerSCI survey is the German part of the International Spinal Cord Injury Survey (InSCI). Using survey data from persons recruited at eight specialised SCI-centres in Germany. Participants: 1.479 persons with Spinal Cord Injury (SCI) aged 18 years and older. Results In a self-disclosure questionnaire, persons with SCI show themselves as a professionally well-educated and highly motivated group with most of them aiming at gainful employment and considering themselves fit for work. Many changeable and non-changeable factors have been found, which showed a high correlation with the return to work after acquired SCI. Conclusion Education and pain belong to the most critical factors and thereby possible approaches to increase the level of employment, which is essential and highly relevant not only for earning money but also for self-confidence and social integration. SCI has many dimensions in itself; support also should be multidimensional. Study results might help to improve participation.

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Section: Discussionmentioning

confidence: 99%

Promoting factors and barriers to participation in working life for people with spinal cord injury

Sturm

Bökel

Korallus

et al. 2020

J Occup Med Toxicol

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show abstract

“…Initially after SCI, everyday life drastically changes. Everyday life occupations, roles, and routines are discontinued (5) and the person can experience loss of control and power in relation to their bodies (4,6), and in relations to others (4). Both the situation of being injured and the hospital environment are unfamiliar (4,6,96).…”

Section: Spinal Cord Injurymentioning

confidence: 99%

“…possibilities for neuroregeneration, management of acute SCI and associated conditions, as well as prevention and management of secondary complications (1). In addition, this needs to be balanced to physical training (1, 3) practice of new skills, applying skills to real world situations (4), and community participation (5). In this way there are many priorities, both for the person, as well as healthcare staff in the initial rehabilitation process.…”

Section: Spinal Cord Injurymentioning

confidence: 99%

“…After injury the person is typically admitted to acute care for management, followed by extended medical rehabilitation (1, 3). Recapturing everyday life after SCI is a process where the person can gradually become familiar with their new situation (4)(5)(6) and return to embrace participation in occupations in their homes and communities (4,5). Because of the role of work for meaningful participation in everyday life (7)(8)(9)(10)(11), and its importance to health and wellbeing (12) return to work (RTW) is often highlighted as a critical element in the rehabilitation process.…”

Section: Introductionmentioning

confidence: 99%

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Mapping Out One’s Own Paths Toward Work: Focus on Experiences of Return to Work After Spinal Cord Injury

2018

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Involving persons with spinal cord injury (SCI) as experts in their lives is important for research to design relevant health care interventions. The purpose of this study was to use photovoice methods to explore experiences of barriers and possibilities in return to work among working adults with SCI. The photovoice group consisted of six persons living with SCI that met weekly over 2 months to share and discuss photos related to return to work. Five themes were identified: (a) there is only one way, (b) welcome back-or not, (c) to be like anyone else-or to be perceived as someone else, (d) friction in the absence of clarity, and (e) finding integrated strategies for everyday life with work. Work was experienced as rewarding and viable, but due to lack of societal and workplace support, a need to map out one's own paths toward work was identified.

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“…For example, greater perceived environmental barriers (e.g., design of home/community, support at home/community, and transportation) were associated with lower social participation [25][26][27][28]. In a series of qualitative studies, social participation was shown to be impacted by physical and mental health [26][27][28][29], societal attitudes [26][27][28][29], and changes in social networks [26,27]. These factors have also been shown to influence return to work, which is an important marker of a sense of belonging [30].…”

Section: Introductionmentioning

confidence: 99%

An exploration of perceived social isolation among persons with spinal cord injury in Ontario, Canada: a qualitative study

Cimino

Hitzig

Craven

et al. 2020

Disability and Rehabilitation

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Purpose: To advance the understanding of perceived social isolation among persons with spinal cord injury (SCI), the objectives of the present study were to explore: (1) experiences of perceived social isolation and (2) factors that contribute to perceived social isolation. Methods: Interpretive description qualitative methodology was used to conduct semi-structured interviews with 30 individuals with SCI from across Ontario (Canada) from November 2016 to August 2017. Data were analyzed using thematic analysis. Results: Participants identified disruption to social networks that seemed to impact perceived social isolation. Five major themes were identified: (1) impact on structure and frequency of social network; (2) importance of feeling heard; (3) importance of employment, hobbies, and sports; (4) need to improve physical accessibility and built environment; and (5) individual characteristics. Changes in quality of social networks, rather than size, contributed to greater feelings of perceived social isolation. The built environment, maintenance of employment, hobbies, and sports, social media, and technology use, as well as individual traits, were also found to impact perceived social isolation. Conclusion: Future research should focus on the development of programs to help maintain or improve social network quality for persons with SCI to minimize the impact of perceived social isolation. ä IMPLICATIONS FOR REHABILITATION Perceived social isolation, resulting from physical and environmental barriers, is a challenge that is faced by many individuals who are living in the community with a spinal cord injury (SCI). Rehabilitation and community programs should utilize an individualized approach to find solutions to challenges faced by this population to prevent the effects of perceived social isolation. Education on how to adapt to changes in social network, together with the provision of access to peer-to-peer support groups, and SCI specific return to work or leisure programs, is recommended as an essential component of rehabilitation.

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The experiences of social and community participation of people with non‐traumatic spinal cord injury

Cited by 29 publications

References 25 publications

Promoting factors and barriers to participation in working life for people with spinal cord injury

Promoting factors and barriers to participation in working life for people with spinal cord injury

Mapping Out One’s Own Paths Toward Work: Focus on Experiences of Return to Work After Spinal Cord Injury

An exploration of perceived social isolation among persons with spinal cord injury in Ontario, Canada: a qualitative study

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