The experiences of visually impaired teenage girls on menstrual hygiene management: a qualitative study

Wea, Lidwina Dewiyanti; Hepilita, Yohana; Fachry, Mardiana E.

doi:10.1016/j.enfcli.2019.07.083

Cited by 5 publications

(3 citation statements)

References 3 publications

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“…While evidence about disability and menstrual health is increasing, much more is required, including comparisons between the experiences of menstruators with and without disabilities, impairment groups (visual, hearing, mobility, cognition and communication) and for those living in rural and urban areas [18,20,[27][28][29][30][31].…”

Section: Introductionmentioning

confidence: 99%

“The weather is not good”: exploring the menstrual health experiences of menstruators with and without disabilities in Vanuatu

Wilbur¹,

Morrison²,

Iakavai³

et al. 2022

The Lancet Regional Health - Western Pacific

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Section: Introductionmentioning

confidence: 99%

“The weather is not good”: exploring the menstrual health experiences of menstruators with and without disabilities in Vanuatu

Wilbur¹,

Morrison²,

Iakavai³

et al. 2022

The Lancet Regional Health - Western Pacific

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“…A growing body of data reveals that people with disabilities face additional challenges in realising their menstrual health in LMICs. This issue is particularly evident for people with intellectual disabilities who often rely on caregivers [ 3 , 4 , 5 , 6 , 7 , 8 , 9 , 10 ]. For instance, a recent study in Vanuatu highlighted that women and girls must independently collect their own water, bathe, and wash their reusable menstrual materials when menstruating.…”

Section: Introductionmentioning

confidence: 99%

Menstrual Health Experiences of People with Intellectual Disabilities and Their Caregivers during Vanuatu’s Humanitarian Responses: A Qualitative Study

Wilbur

Poilapa

Morrison

2022

IJERPH

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Attention to menstrual health in humanitarian responses is increasing, but evidence related to people with intellectual disabilities and their caregivers is absent. This study begins to address that. We applied purposive sampling to select 17 women and girls (aged 15–31) with intellectual disabilities, their 17 caregivers in SANMA province, Vanuatu, and seven key informants. We used in-depth interviews, PhotoVoice and ranking, and observation and analysed data thematically using Nvivo 12. We found that caregivers wished to maintain the person’s safety and privacy, especially when menstruating, which reduced evacuation options. People with intellectual disabilities support requirements sometimes increased after emergencies. This meant caregivers were less able to work and recover from disasters. Caregivers requested the distribution of more reusable menstrual materials and a greater choice, including adult-sized diapers for menstruation and incontinence. Key informants noted that menstrual health interventions must always be delivered to people with intellectual disabilities and their caregivers so that menstrual health knowledge and practices exist before emergencies. We found that men and women supported people with intellectual disabilities’ menstrual health, thus challenging gendered assumptions about caregiving. Efforts to achieve menstrual health for this population within disaster preparedness plans must be included. If not, families will fall further into poverty every time a disaster hits Vanuatu.

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“…Women and girls with disabilities face numerous challenges to achieving menstrual health, which can be exacerbated in humanitarian crises [8][9][10][11][12][13][14][15]. Barriers include exclusion from menstrual health policies and practices, inaccessible WASH facilities, and a lack of support and guidance for caregivers.…”

Section: Introductionmentioning

confidence: 99%

Feasibility study of a menstrual health behaviour change intervention for women and girls with intellectual disabilities and their caregivers for Vanuatu’s humanitarian responses

Wilbur,

Crow,

Poilapa

et al. 2024

PLOS Glob Public Health

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The Veivanua campaign is a menstrual health intervention for people with intellectual disabilities and their caregivers in Vanuatu’s humanitarian setting. The campaign was adapted from the Bishesta campaign delivered in Nepal’s development setting. This feasibility study is designed to assess the feasibility and acceptability of the Veivanua campaign to understand if efficacy testing is warranted. The Veivanua campaign was delivered to a preselected group of 30 young people (individuals with intellectual disabilities) and 35 caregivers (males and females). Data were collected through several qualitative tools to allow for methods triangulation: process monitoring, post-intervention in-depth interviews with caregivers and nine young people, observation of young persons, photovoice and ranking with two young people, campaign resource ranking, and key informant interviews with staff involved in the intervention. Data were analysed thematically using Nvivo 12. Results show that the Veivanua campaign is feasible. Male and female caregivers reported an increased ability to support young people’s menstrual health and greater preparedness for the next emergency. Young people understood the training and applied their learning. Key informants want to scale up the intervention in their humanitarian responses. Several changes were made to the adapted campaign, but similar outcomes were recorded in Nepal and Vanuatu. All target behaviours improved, and campaign resources were used, but many caregivers found the menstrual calendar confusing. The intervention was not delivered with fidelity but responded to the context. The campaign cost more than the Bishesta campaign because procurement was more expensive in Vanuatu. In conclusion, this is the first intervention globally, so it begins to fill a substantial gap, but more must be done. As the Veivanua campaign is feasible, it requires efficacy testing in Vanuatu. It should also be adapted to humanitarian crises in other countries to support the menstrual health of this previously excluded population.

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The experiences of visually impaired teenage girls on menstrual hygiene management: a qualitative study

Cited by 5 publications

References 3 publications

“The weather is not good”: exploring the menstrual health experiences of menstruators with and without disabilities in Vanuatu

“The weather is not good”: exploring the menstrual health experiences of menstruators with and without disabilities in Vanuatu

Menstrual Health Experiences of People with Intellectual Disabilities and Their Caregivers during Vanuatu’s Humanitarian Responses: A Qualitative Study

Feasibility study of a menstrual health behaviour change intervention for women and girls with intellectual disabilities and their caregivers for Vanuatu’s humanitarian responses

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