The fibromyalgia diagnosis – hardly helpful for the patients?

Undeland, Merete; Malterud, Kirsti

doi:10.1080/02813430701706568

Cited by 75 publications

(75 citation statements)

References 12 publications

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“…Many of the participants were already outside the labour market and their mean age was higher than that in previous studies, both of which might partially explain the impression of progressive deterioration in work ability in this study (Arnold et al, 2008;Liedberg et al, 2006;White et al, 1999b). According to Undeland and Malterud (2007), receiving a diagnosis may be a turning point in the lives of people with unexplained symptoms. However, after the initial relief of having a diagnosis, uncertainty and stigmatization continue, since fi bromyalgia does not seem to invoke recognition from either doctors or lay people.…”

Section: Discussioncontrasting

confidence: 65%

Women's narratives on experiences of work ability and functioning in fibromyalgia

MSc

Kukkurainen²,

Peltokallio

et al. 2009

Musculoskeletal Care

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Section: Discussioncontrasting

confidence: 65%

Women's narratives on experiences of work ability and functioning in fibromyalgia

MSc

Kukkurainen²,

Peltokallio

et al. 2009

Musculoskeletal Care

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“…We did not include papers that did not meet our criteria for inclusion, and included an additional nine fibromyalgia studies. 324,327,335,351,352,366,373,377,381 Their synthesis supports important areas of our conceptual analysis, for example the 'conscious awareness' of the body in pain; the unrelenting nature of fibromyalgia; isolation and loneliness; the search for an diagnosis; the ambiguity of diagnosis and loss of legitimacy. It also supports concepts related to moving forward with pain, including listening to the body, accepting loses and re-evaluating life.…”

Section: Qualitative Syntheses In Musculoskeletal Painmentioning

confidence: 96%

“…66,312,323,325,326,330-334,336,338,342-345,350,353-358, 362-365,367,372,374,376,379,385-387 Twenty-eight papers (23 individual studies) explored the experience of people with fibromyalgia. 324,[327][328][329]335,337,[339][340][341]346,349,351,352,[359][360][361]366,373,375,377,378,[380][381][382][383][384] A description of these studies is provided in Tables 6 and 7, showing for each study the age range and source of participants, the country where the study was carried out, the method of data collection and the methodology used. …”

Section: Included Studiesmentioning

confidence: 99%

A meta-ethnography of patients’ experience of chronic non-malignant musculoskeletal pain

Toye

Seers

Allcock

et al. 2013

Health Services and Delivery Research

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Health Services and Delivery ResearchISSN 2050-4349 (Print) ISSN 2050-4357 (Online) This journal is a member of and subscribes to the principles of the Committee on Publication Ethics (COPE) (www.publicationethics.org/).Editorial contact: nihredit@southampton.ac.ukThe full HS&DR archive is freely available to view online at www.journalslibrary.nihr.ac.uk/hsdr. Print-on-demand copies can be purchased from the report pages of the NIHR Journals Library website: www.journalslibrary.nihr.ac.uk Criteria for inclusion in the Health Services and Delivery Research journalReports are published in Health Services and Delivery Research (HS&DR) if (1) they have resulted from work for the HS&DR programme or programmes which preceded the HS&DR programme, and (2) they are of a sufficiently high scientific quality as assessed by the reviewers and editors. HS&DR programmeThe Health Services and Delivery Research (HS&DR) programme, part of the National Institute for Health Research (NIHR), was established to fund a broad range of research. It combines the strengths and contributions of two previous NIHR research programmes: the Health Services Research (HSR) programme and the Service Delivery and Organisation (SDO) programme, which were merged in January 2012.The HS&DR programme aims to produce rigorous and relevant evidence on the quality, access and organisation of health services including costs and outcomes, as well as research on implementation. The programme will enhance the strategic focus on research that matters to the NHS and is keen to support ambitious evaluative research to improve health services.For more information about the HS&DR programme please visit the website: www.netscc.ac.uk/hsdr/ This reportThe research reported in this issue of the journal was funded by the HS&DR programme or one of its proceeding programmes as project number 09/2001/09. The contractual start date was in October 2010. The final report began editorial review in November 2012 and was accepted for publication in February 2013. The authors have been wholly responsible for all data collection, analysis and interpretation, and for writing up their work. The HS&DR editors and production house have tried to ensure the accuracy of the authors' report and would like to thank the reviewers for their constructive comments on the final report document. However, they do not accept liability for damages or losses arising from material published in this report.This report presents independent research funded by the National Institute for Health Research (NIHR). The views and opinions expressed by authors in this publication are those of the authors and do not necessarily reflect those of the NHS, the NIHR, NETSCC, the HS&DR programme or the Department of Health. If there are verbatim quotations included in this publication the views and opinions expressed by the interviewees are those of the interviewees and do not necessarily reflect those of the authors, those of the NHS, the NIHR, NETSCC, the HS&DR programme or the Department of Health. Published b...

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“…Differentiating FMS patients from other patients also having chronic pain by clinical symptoms and signs is necessary in order to determine appropriate treatment strategies, albeit the outcome is not always satisfying. Indeed, Undeland and Malterud, [22] stated that sometimes diagnosis of FMS is hardly helpful for the patients.…”

Section: Discussionmentioning

confidence: 99%

Ten Year Results of a Fibromyalgia Out-Patient Clinic: Is There a Happy Ending?

et al. 2011

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Amaç: Bu geriye dönük özdeş grup çalışmasında, fibromiyalji sendromlu (FMS) hastaların klinik özellikleri, tedavi seçenekleri ve sonuçları belirlendi ve Fibromiyalji İzlem Polikliniğimizde (FİP) edinilen 10 yıllık deneyimlerin sonuçları sunuldu. Hastalar ve yöntemler: Fibromiyalji sendromu şüphesi ile FİP'ye sevk edilen 308 hastanın (247 kadın, 61 erkek) 252'sine FMS tanısı konuldu. Tüm hastaların demografik verileri kaydedildi. Fibromiyalji izlem polikliniği'nin hasta formları kullanılarak hastalarda yaygın vücut ağrısı, yorgunluk, uyku bozukluğu, sabah tutukluğu, parestezi, Raynaud fenomeni, göz kuruluğu, ağız kuruluğu, iritabl bağırsak sendromu, baş ağrısı, libido azalması, kadın üretral sendromu semptomları veya subjektif şişlik mevcut olup olmadığı sorgulandı. Üç veya altı aylık aralıklarla yapılan her görüşmenin sonunda ağrı şiddeti, uyku bozukluğu, hassas nokta sayısı, total miyaljik skor, fibromiyalji etki anketi (FEA), sağlık değerlendirme anketi (SDA) ve Beck depresyon envanteri (BDE) de kaydedildi. Kaydedilen tüm veriler eksik verileri dikkate alınarak analiz edildi. Bulgular: FMS (+) ve FMS (-) hastalar arasında hastalık süresi, hassas nokta sayısı, total miyaljik skor (p<0.001), BDE, baş ağrısı, parestezi, uyku bozuklukları, sabah tutukluğu, libido azalması ve iritabl bağırsak sendromu (p<0.05) açılarından istatistiksel olarak anlamlı farklılık saptandı. FMS (+) hastalarda, bir hafta boyunca uykuya dalma güçlüğü çekilen gün sayısı (uyku-1), total miyaljik skor, toplam FEA skoru ve toplam SDA skoru şeklindeki klinik parametreler açısından zaman içerisinde anlamlı değişiklikler görüldü. Giriş ve son kontrol arasında, selektif serotonin geri alım inhibitörü ilaç alan hastalarda total FEA skoru ve ağrıda anlamlı iyileşme görüldü (p<0.05). Amitriptilin tedavisi uygulanan FMS (+) hastalarda uyku-1'de anlamlı iyileşme görüldü, bununla birlikte sertralin ile klinik parametrelerde anlamlı farklılık saptanmadı. Sonuç: Fibromiyalji sendromu çok çeşitli klinik belirti ve semptomlarla seyreden bir kas-iskelet sistemi hastalığı oldundan, en uygun tedavinin uygulanabilmesi için her hastanın ağırlıklı klinik özelliğine göre değerlendirilmesi şarttır. Bu hastaları alt gruplara ayırmak yararlı olabilir.Anahtar sözcükler: Fibromiyalji sendromu; ilaç tedavisi; sondurum; retrospektif çalışma; alt grup. Objectives:In this retrospective cohort, we determined the clinical characteristics, treatment options and outcomes of fibromyalgia syndrome (FMS) patients and reported the results of the 10 years of experience of our Fibromyalgia Follow-up Outpatient Clinic (FOC). Patients and methods:Of the 308 patients (247 females, 61 males) who were referred to the FOC with suspicion of FMS, 252 were diagnosed with FMS. The demographic data of all patients were recorded. The patient forms of the FOC were used to question whether the patients had widespread body pain, fatigue, sleep disorders, morning stiffness, paresthesia, Raynaud's phenomenon, dry eye, dry mouth, irritable bowel syndrome, headaches, decreased libido, symptoms of fe...

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The fibromyalgia diagnosis – hardly helpful for the patients?

Cited by 75 publications

References 12 publications

Women's narratives on experiences of work ability and functioning in fibromyalgia

Women's narratives on experiences of work ability and functioning in fibromyalgia

A meta-ethnography of patients’ experience of chronic non-malignant musculoskeletal pain

Ten Year Results of a Fibromyalgia Out-Patient Clinic: Is There a Happy Ending?

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