The first episode of psychosis: the experience of relatives

Addington, Jean; Coldham, E. L.; Jones, Barry D.; Ko, T.; Addington, Donald

doi:10.1034/j.1600-0447.2003.00153.x

Cited by 176 publications

(184 citation statements)

References 31 publications

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“…As such, compromised cognition, and in particular, memory for everyday tasks, might affect caregivers' ability to maintain the consistency and quality of care needed by the child. Indeed, the positive relationship between caregivers' well being and quality of life for the care recipient has been widely evidenced (Addington, Coldham, Jones, Ko, & Addington, 2003;Burgess & Gutstein, 2007).…”

Section: Introductionmentioning

confidence: 99%

Memory failures for everyday tasks in caregivers of children with autism

Lovell

Elliot

Liu

et al. 2014

Research in Developmental Disabilities

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The stress of caring for a loved one with chronic illness has been linked with impairments in cognitive processes such as attention and problem solving, though few studies have examined the impact on memory. Compromised cognition, in particular, aspects of everyday functioning such as remembering medical instructions and appointments, might affect caregivers' ability to maintain the consistency and quality of care needed by the child. A sample of 31 caregivers of children with autism and 51 parents of neuro-typical children completed an electronic survey assessing levels of psychological distress and everyday memory. Data confirmed that perceived levels of stress and memory failures for everyday tasks were higher in caregivers compared with the control group. Data also revealed a significant positive relationship between caregivers' perceived levels of stress and everyday memory failures. These findings might have implications for interventions that aim to improve caregivers' cognitive well being through targeting the psychological sequelae associated with the caregiving experience.

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Section: Introductionmentioning

confidence: 99%

Memory failures for everyday tasks in caregivers of children with autism

Lovell

Elliot

Liu

et al. 2014

Research in Developmental Disabilities

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“…Each family member addressed individual needs and concerns consistent with previous literature (Addington, Coldham, Jones, Ko, & Addington, 2003). For example, parents expressed a desperate need for education about this illness, particularly during the initial stages of schizophrenia, in order to learn how to manage the illness.…”

Section: Engaging Families In Self-management Interventionmentioning

confidence: 73%

Lessons Learned From Research With Adolescents With Schizophrenia and Their Families

Lee

Schepp

2013

Archives of Psychiatric Nursing

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The purpose of this study is to present our experiences of conducting a randomized clinical trial of a self-management intervention for adolescents with schizophrenia and their families. Challenges and strategies of recruiting subjects; engaging families in self-management intervention; tailoring interventions for this population were discussed. Participants' comments on their experience were presented. Adolescents and their families are poorly prepared to manage schizophrenia; therefore psychosocial interventions should address their needs. Impaired cognitive functioning in adolescents with schizophrenia should be a target for interventions and should be considered in planning interventions.

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“…There is abundant evidence that the family members of psychotic persons have difficult and complex emotional experiences, including difficulties in accepting the situation, looking to the future, and changing roles within the family (Addington & Burnett, 2005;Addington et al, 2003;Askey & Gray, 2009;Gerson et al, 2009;Hultsjo, Bertero, & Hjelm, 2009;Read & Magliano, 2012;Read & Seymour, 2013;Sin, Moone, & Harris, 2008). Many carer-relatives have encountered at least moderate aggression and trau-3…”

Section: The Experiences Of Family Membersmentioning

confidence: 99%

The Need-Adapted Approach in Psychosis: The Impact of Psychosis on the Treatment and the Professionals

Borchers¹,

Seikkula

Arnkil

2014

Ethical Hum Psychol Psychiatry

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This research aimed to describe the inner dialogues of psychiatrists in the context of the Need-Adapted treatment of psychosis. It strived to show that the experiences of professionals can have an impact on the treatments offered. In addition, the research aimed to clarify how the phenomenon of professionals' inner dialogues may be studied.The data for the three studies of the research consisted of eight videotaped and transcribed stimulated recall interviews with psychiatrists, who recalled their inner dialogues, assisted by videos from co-research interviews. The dialogues took place in multi-agent discussions with patients, with the family members of patients, and with other professionals. The first study provided an overall picture of the research material, with a focus on psychiatrists' inner dialogues concerning their workmates. The second study focused on how the psychiatrists viewed their agency. The third study dealt with the impact of psychosis on the treatment, the psychiatrists, and other professionals. The first two studies used adaptations of dialogical-narrative analysis, while the third study used an adaptation of qualitative content analysis.From the perspective of real-world clinical practice the studies suggested the following: (i) since psychiatrists interact with the clients and with other professionals, they respond as embodied individual human beings with possibly strong emotions; this suggests that the experiences and inner dialogues of the participants may be interdependent; (ii) clinician-clinician relationships can be of crucial importance in the treatment; (iii) especially in the inpatient setting, institutional forces can have an enormous impact on psychiatrists' agency by reducing professional creativity, and occasionally, by leading to a kind of agentless situation; (iv) psychiatrists seem to be more or less aware of the many harmful effects of (in particular) inpatient treatment; (v) the interview methods used in the research increased professionals' reflective opportunities, indicating that such interviews could be helpful in the dilemmas professionals encounter in practice. Tämän tutkimuksen tavoite oli kuvata psykiatrien sisäistä keskustelua psykoosien tarpeenmukaisen hoitomallin kontekstissa. Se pyrki osoittamaan, että ammattilaisten kokemuksilla voi olla vaikutusta tarjottuun hoitoon, ja selvittä-mään, miten ammattilaisten sisäistä keskustelua voidaan tutkia. Kolmen osatutkimuksen aineisto koostui kahdeksasta videolle tallennetusta ja transkriptoidusta stimulated recall -haastattelusta, joissa psykiatrit yhteisen tutkimisen haastattelun kuvanauhan avulla palauttivat mieleensä sisäistä keskusteluaan. Yhteisen tutkimisen haastattelu oli ryhmäkeskustelu, jossa oli lääkärien ohella läsnä potilas, hänen perheenjäseniään sekä muita ammattilaisia. Ensimmäisessä osatutkimuksessa kuvattiin tutkimusaineistoa kokonaisuudessaan ja keskityttiin psykiatrien työtovereita koskevaan sisäiseen keskusteluun. Toisessa osatutkimuksessa paneuduttiin psykiatrien kokemukseen toimijuudestaan....

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The first episode of psychosis: the experience of relatives

Abstract: As the majority of these first episode families are keen to be involved early and have engaged in an intervention programme, the next step should be an evaluation of their involvement to determine if it is effective.

Cited by 176 publications

References 31 publications

Memory failures for everyday tasks in caregivers of children with autism

Memory failures for everyday tasks in caregivers of children with autism

Lessons Learned From Research With Adolescents With Schizophrenia and Their Families

The Need-Adapted Approach in Psychosis: The Impact of Psychosis on the Treatment and the Professionals

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