The Gen-Equip Project: evaluation and impact of genetics e-learning resources for primary care in six European languages

Abstract

PurposeGenetic advances mean patients at risk of genetic conditions can be helped through testing, clinical screening, and preventive treatment, but they must first be identified to benefit. Ensuring quality of genetic care for patients requires genetic expertise in all health services, including primary care. To address an educational shortfall, a series of e-learning resources was developed in six languages to equip primary care professionals with genetic skills relevant for practice. The purpose of the study was to evaluate these resources using Kirkpatrick’s framework for educational outcomes.MethodsMixed methods (qualitative and quantitative) were used over four phases of the study.ResultsA high level of satisfaction with the resources was reported. Knowledge and skills improved significantly after using the education material. Participants reported changes in confidence and practice behavior, including family history taking, seeking advice from specialists and referring patients. The resources helped users to learn how to explain genetics. Many visited the resources repeatedly and some used them to educate colleagues or students.ConclusionGen-Equip modules are effective in improving genetic knowledge, skills, and attitudes for primary care professionals. They provide both continuing professional development and just-in-time learning for a potentially large global audience at a practical level.

Informing Integration of Genomic Medicine Into Primary Care: An Assessment of Current Practice, Attitudes, and Desired Resources

“…There are limited studies of educational interventions in GM showing mixed effectiveness. (Rubanovich et al, 2018) They include studies of interactive web-based curricula and educational modules (Blazer et al, 2005; Blazer et al, 2011; Houwink et al, 2013; Bell et al, 2014; Houwink et al, 2014; Orlando et al, 2014; Reed et al, 2016; Paneque et al, 2017), FH and clinical support programs (Jackson et al, 2018), point-of-care tools and decision support (Carroll et al, 2011; Carroll et al, 2014), and push reflective e-learning (Carroll et al, 2016b). Several websites exist with genomics information and on-line educational programs for PCPs (GECKO ; Genetics in Primary Care Institute ; Genomics Education Programme, ; The Jackson Laboratory, ; Genetics/Genomics Competency Centre, ; Gen-Equip programme, ).…”

Evidence-Based Genetic Education of Non-Genetic-Expert Physicians: Experiences Over Three Decades in Amsterdam

“…The materials are available for free. Knowledge and skills increased significantly, and self-reported behavior changed (Jackson et al, 2019). Just like in the Houwink study, not only increasing skills in collecting family information and drawing pedigrees were mentioned but also knowing how to explain genetics to patients.…”

Patient and Health Care Provider Needs and Preferences in Understanding Pharmacogenomic and Genomic Testing: A Meta-Data Analysis

“…The primary care professionals who were consulted about e-learning resources (Gen-Equip modules) appreciated the fact that they were interactive, easy to access/use, and applicable to practice (Jackson et al, 2019). They also reported that simple wording made the resources accessible to non-genetic health professionals and helped them learn how to explain genetics to students, patients, and their families.…”