The home environment and family asthma management among ethnically diverse urban youth with asthma.

Abstract

While the pediatric psychology literature underscores the importance of illness related aspects of the home environment for optimal family asthma management, little is known about the contribution of more global aspects of the home environment (e.g., family routines/schedule, quality of stimulation provided to child) to asthma management in ethnic minority and urban families. The goals of this study were to: 1) explore ethnic/racial group differences in global and specific dimensions of home environment quality among Latino, non-Latino white (NLW), and African American urban children with asthma; and 2) examine associations between the quality and quantity of support and stimulation within the home environment, as measured by the HOME Inventory, and family asthma management in this sample. Urban, low-income children (N=131) between the ages of 6 and 13 with asthma and a primary caregiver participated in a multi-modal assessment including an in home observation and semi structured interviews to assess aspects of home environment quality and family asthma management practices. While controlling for poverty, no ethnic group differences were found in the global home environment; however, there were significant differences in specific dimensions (e.g. Family Participation in Developmentally Stimulating Experiences, and Aspects of the Physical Environment) of home environment quality. Across the whole sample, home environment quality predicted family asthma management. When examining this association for specific ethnic groups, this finding did not hold for the Latino subsample. The results highlight the need to consider ethnic group differences in non-illness specific aspects of the home environment when addressing families’ asthma management strategies.

Valor do emprego do questionário WHOQOL‐BREF na avaliação da qualidade de vida de pais de crianças com asma

“…Such factors are potentially modifiable, and can be included in practical interventions aiming at improving the quality of life of family members. 17 The family resources were identified as the positive aspects of the family, that is, parents and children perceiving a consistent family environment, facilitating communication and the expression of thoughts and feelings. Family challenges refer to the burden experienced by the caregiver, regarding the negative impact the disease can bring to the family environment.…”

“…Fatores esses potencialmente modificáveis que podem ser incluídos em intervenções práticas que visam a melhorar a qualidade de vida dos membros da família. 17 Os recursos familiares foram identificados como os aspectos positivos da família, ou seja, pais e filhos percebem um ambiente familiar coeso e facilitam a comunicação e a expressão de pensamentos e sentimentos. Desafios da família referem-se à carga vivenciada pelo cuidador quanto ao impacto negativo que a doença possa trazer ao ambiente familiar.…”

Cuidado à família da criança com doença crônica

“…Regarding the object of the studies, 11 (28.20%) articles focused on the family 12,14,19,21,31,39, , three (7,69%) on the mothers 13,40-1 , one (2.57%) on the children, parents and health professionals 15 , seven (17.95%) studies dealt with children 16,20,22,25,28,34,48 , four (10,26 %) with children and their families 17,35 , six (15,38%) studies focused on parents (mother and father) 18,24,27,38,[49][50] , two (5,12%) studies on parents and health professionals 23,26 , one (2.57%) on the child and the parents 29 , one (2.57%) on the health professionals 30 , two (5.12%) on the nursing professionals, 45,47 and, finally, one (2.57%) focused on the nursing professionals and the family. 46 A synthesis of the results found in the articles gave origin to two thematic categories: Facing the diagnosis of a chronic disease, change of habits and family reorganization; Care routines of families with children with chronic conditions.…”

“…Thus, there is an obvious financial impact on these families. [17][18][19][20][21][22][23][24][25][26][27][28][29][30][31][32] The routine of the families, especially of the mothers who play the role of main caregivers, is affected. They have to reorganize things in the face of new responsibilities and constant demands.…”

“…22, Prayer by parents and children is the most frequent coping method reported, for the family' believes and religiosity. 22,28 The use of prayer by parents, both individually and in groups, has a very positive meaning. 22,27 Parents face a reality in which their expectations and plans need to be adjusted due to the condition and limitations that the children present in their situation.…”