The impact of caring for adults with intellectual disability on the quality of life of parents

Yoong, Amanda; Koritsas, Stella

doi:10.1111/j.1365-2788.2011.01501.x

Cited by 64 publications

(43 citation statements)

References 41 publications

(84 reference statements)

Supporting

Mentioning

Contrasting

Unclassified

Order By: Relevance

“…Deriving satisfaction from the caregiving role is a consistent finding in the literature. For example, Yoong & Koritsas () found that caring had a positive impact on quality of life by enabling participants to develop relationships and receive support, participate in leisure activities, achieve a sense of personal satisfaction and enable a more positive appraisal of their lives.…”

Section: Discussionmentioning

confidence: 99%

“…Older parents' experiences of depression, stress and anxiety in their caregiving role can be mediated by the high levels of satisfaction associated with caring for an adult‐child with intellectual disabilities (Hill & Rose ; Dillenburger & McKerr ; Rowbotham et al . ; Yoong & Koritsas ). Other factors affecting the psychological well‐being of older parents include availability of support networks, cognitive appraisals of their caregiving roles (Hill & Rose ), taking on additional caregiving recipients (Perkins & Hayley ) and the challenging behaviour of the person with intellectual disabilities (Unwin & Deb ).…”

Section: Introductionmentioning

confidence: 97%

See 1 more Smart Citation

Tolerating Uncertainty: Perceptions of the Future for Ageing Parent Carers and Their Adult Children with Intellectual Disabilities

Pryce

Tweed

Hilton³

et al. 2015

Research Intellect Disabil

View full text Add to dashboard Cite

show abstract

Section: Discussionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 97%

Tolerating Uncertainty: Perceptions of the Future for Ageing Parent Carers and Their Adult Children with Intellectual Disabilities

Pryce

Tweed

Hilton³

et al. 2015

Research Intellect Disabil

View full text Add to dashboard Cite

show abstract

“…; Samuel et al . ; Yoong & Koritsas ). For the authors of these studies, satisfaction with the support services is solely one of many indicators to measure parents' quality of life.…”

Section: Introductionmentioning

confidence: 98%

“…Traditionally, parents' views and experiences have rarely been the focus of studies, despite the widespread knowledge in the scientific literature, of the importance of offering quality services centred on the child and the family's needs. In recent research, parent's satisfaction with the support services is evaluated and measured using a broad concept of quality of life (Olsson & Hwang 2008;Rillotta et al 2012;Samuel et al 2012;Yoong & Koritsas 2012). For the authors of these studies, satisfaction with the support services is solely one of many indicators to measure parents' quality of life.…”

Section: Introductionmentioning

confidence: 99%

When satisfaction is not directly related to the support services received: understanding parents' varied experiences with specialised services for children with developmental disabilities

Robert

Leblanc

Boyer

2014

Brit J Learn Disabil

View full text Add to dashboard Cite

Accessible summary Parents of children with developmental disabilities need formal support services to help them. Their well‐being and satisfaction depend on how the support services respond to their needs. Some parents want to be more involved in decisions about support services and intervention for the best of their child's interests. Other parents believe that the child's best interest are addressed adequately by the professionals who deliver the services. Summary Parents of children with developmental disabilities (autism or intellectual disabilities) are more susceptible to stress and have a greater burden of adversity than other parents. Their well‐being and satisfaction greatly depend on the system's response of finding them formal support and the help they need. This study proposes an interpretive approach, based on the (fifteen) parents' experiences, to find and understand the strengths and weaknesses of specialised support services. Furthermore, our research aims to obtain data on parents' experiences in order to identify the conditions and the perceptions on which feeling satisfaction or dissatisfaction is based. The situations that were considered positive are all directly related to the professional concrete support parents say they received (e.g. ‘working with’ their child to improve communication with him or her, understanding his or her issues, and managing difficult behaviours). However, the overall experience of each parent has either a dominant positive or a dominant negative connotation. The parents' satisfaction or dissatisfaction appears to be constructed from two criteria: (i) whether parents see themselves as experts or nonexperts on the situation of their child and (ii) parents' opinions on the purpose or goal of the intervention or of the services they received.

show abstract

“…Existing research on parents of adults who have a learning disability tends to focus upon mothers (Yoong & Koritsas, ), and therefore, issues that are father‐specific rarely arise. Of the father‐specific research, much is over 10 years old which limits currency, and studies that include fathers of adults aged 18 and over are often cross‐sectional, focus upon psychological well‐being and employ a quantitative methodology (Davys, Mitchell, & Martin, ).…”

Section: Introductionmentioning

confidence: 99%

Fathers of adults who have a learning disability: Roles, needs and concerns

Davys

Mitchell

Martin

2017

Brit J Learn Disabil

View full text Add to dashboard Cite

Accessible summary• This study asked fathers of adults who have a learning disability about their experiences, what helps them and any worries they may have.• Fathers reported different experiences of being a father to an adult with a learning disability and talked about things that were helpful, such as their wives, grandparents, having information and hobbies.• Fathers were worried about the person who has a learning disability in the future.• Fathers can be important in supporting people who have a learning disability throughout their lives. AbstractBackground: There is little research that specifically relates to fathers of adults with a learning disability despite the social expectation that fathers will provide a supportive role over the lifespan.Methods: Semi-structured interviews were carried out with seven fathers of adults with a learning disability to explore their roles, needs and concerns. Data were analysed using a framework associated with interpretative phenomenological analysis (IPA).Results: Themes arising demonstrate that fathers were shocked at the diagnosis of learning disability but usually reported adaptation over time. The impact of learning disability upon men's lives, their perception of their adult child and the roles they assumed were varied. Fathers valued support from wives and grandparents, having knowledge and interests and work-type roles. All fathers were concerned about the future yet comprehensive futures planning was lacking. Some fathers reported difficulties in being emotionally open, and referred to societal stereotypes. Fathers valued positive support from service providers; however, this relationship was often in conflict. Conclusion:Although mothers are often the main carers for adults with a learning disability, fathers can make a significant contribution. The findings presented here support the results of previous studies regarding paternal response to learning disability and varied impact upon men's lives. Identified support strategies include leisure interests, volunteer/work roles, having information and support from wives and grandparents. Ongoing concerns incorporate the future and ambivalent relationships with service providers, which could have a negative impact upon the individual who has a learning disability. K E Y W O R D Sadults, concerns, fathers, learning disability, needs, roles | 267 DAVYS et Al.

show abstract

The impact of caring for adults with intellectual disability on the quality of life of parents

Abstract: Caring for an adult with ID had both positive and negative effects on parents' QOL. Improving services and service delivery, including the provision of residential services and respite, would address many of the issues that were reported to have a negative impact on parents' QOL.

Cited by 64 publications

References 41 publications

Tolerating Uncertainty: Perceptions of the Future for Ageing Parent Carers and Their Adult Children with Intellectual Disabilities

Tolerating Uncertainty: Perceptions of the Future for Ageing Parent Carers and Their Adult Children with Intellectual Disabilities

When satisfaction is not directly related to the support services received: understanding parents' varied experiences with specialised services for children with developmental disabilities

Fathers of adults who have a learning disability: Roles, needs and concerns

Contact Info

Product

Resources

About