2015
DOI: 10.1111/jar.12221
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Tolerating Uncertainty: Perceptions of the Future for Ageing Parent Carers and Their Adult Children with Intellectual Disabilities

Abstract: This research has found commonalities in how families tolerate the uncertainty of the future, but also unique differences that require tailored interventions and prospective action by services.

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Cited by 52 publications
(52 citation statements)
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“…Attachment to spirituality increases the ability of families to cope with daily difficulties and uncertainties. However, the very vigorous deposition of faith in superior entities may lead to little family responsibility in the planning of the future (15) .…”
Section: Discussionmentioning
confidence: 99%
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“…Attachment to spirituality increases the ability of families to cope with daily difficulties and uncertainties. However, the very vigorous deposition of faith in superior entities may lead to little family responsibility in the planning of the future (15) .…”
Section: Discussionmentioning
confidence: 99%
“…The primary concern for older mothers of PwId is the inability to take care of their children as they get older; many said they wished to live at least one day longer than their disabled children, because they considered themselves the only source for protecting the PwId (12) . The avoidance, the lack of guidance and the lack of adequate residential provision caused suffering and were obstacles to the development of future plans (15) .…”
Section: Discussionmentioning
confidence: 99%
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“…The parental role is changed from being the primary source of caring to be more supportive. Caring within a family system differs from community services, and many parents experience these changes as problematic (19)(20)(21)(22). The rights to self-determination can create con icts between parents and services.…”
Section: Introductionmentioning
confidence: 99%
“…Employees, who are mandated to work in a team-based ethos with loyalty to their employer (the services), but the parents have their child's best interest as a primary goal. In addition, many parents have problems with a rule-governed system with no room for spontaneity, while others ask for more explicit care and service planning (8,12,22,24,26).…”
Section: Introductionmentioning
confidence: 99%