The impact of ear disease and hearing impairment on the lives of Nepali patients in Pokhara: a qualitative study

Skilton, Mica; Poole, Nicola; Metcalfe, Christopher; Martín, Timothy; Smith, Michael C.

doi:10.1093/inthealth/ihv052

Cited by 7 publications

(15 citation statements)

References 23 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…A total of six studies reported mental health problems associated with bullying behaviors and two also reported physical health problems. 15,17,18,[23][24][25] Four studies collected quantitative data related to consequences of bullying. 15,17,18,23 Akram et al found that victimization predicted a significant proportion of physical and psychosocial problems.…”

Section: Health Consequences Of Bullying For Dhh Childrenmentioning

confidence: 99%

“…23 Two studies presented qualitative data regarding the consequences of bullying. 24,25 The interviews conducted by Skilton et al relayed themes of self-esteem issues, felt-stigma, and fears of maltreatment that prevented formation of new friendships following peer victimization. 24 Interviews conducted by Terkektsi et al reiterated themes of depression, self-esteem issues, and isolation in DHH children who were victims of bullying.…”

Section: Health Consequences Of Bullying For Dhh Childrenmentioning

confidence: 99%

See 1 more Smart Citation

Bullying and Children who are Deaf or Hard‐of‐hearing: A Scoping Review

et al. 2021

View full text Add to dashboard Cite

Objective/Hypothesis: The goal of this scoping review is to evaluate and synthesize the published research regarding bullying and children who are deaf or hard-of-hearing (DHH).Study Design: The Preferred Reporting Items for Systematic Reviews and Meta-Analyses extension for scoping review (PRISMA-ScR) statement was used as the guideline for conducting this review.Methods: This review included studies assessing pediatric (0-21 years) DHH children. Seventy records underwent the initial title-abstract screening, 33 underwent full-text review, and 23 studies met inclusion criteria. During the data extraction process, an additional six were excluded, resulting in a total of 17 evaluated studies.Results: Of the 17 studies assessed, nine compared peer victimization of DHH children and their hearing peers. Of those, seven studies reported that hearing loss (HL) is significantly associated with increased victimization. Two studies found that HL is significantly associated with decreased bullying perpetration. Notably, bullying in DHH children was not associated with a visible sign of disability, such as a hearing assistive device. Rather, variables such as educational setting, parental, and peer support are more likely to mediate bullying in this population.Conclusions: DHH children have a higher risk of peer victimization and may bully others less often than their hearing peers. Studies described the health consequences of bullying in children who are DHH, including sleep issues and anxiety. These consequences may have implications for the patients' overall HL management. Additional research regarding bullying interventions and prevention in this population should be conducted.

show abstract

Section: Health Consequences Of Bullying For Dhh Childrenmentioning

confidence: 99%

Section: Health Consequences Of Bullying For Dhh Childrenmentioning

confidence: 99%

Bullying and Children who are Deaf or Hard‐of‐hearing: A Scoping Review

et al. 2021

View full text Add to dashboard Cite

show abstract

“…The narratives of being teased about hearing and discharge, mixed reactions from the community and feelings of 'hurt and upset from the stigma' are common to both this study and the study by Skilton et al (2016). 9 However, Skilton et al reported that none of their participants 'recounted teachers displaying negative or stigmatising behaviour', whereas our participants gave mixed answers on this topic.…”

Section: Stigmamentioning

confidence: 50%

“…There is however a dearth of qualitative literature on the topic, and to our knowledge there has only been one such study previously conducted in Nepal. 9 Qualitative research is particularly useful for exploring QoL as it places emphasis on the experiences and views of the participants in a way that quantitative research cannot. 10 The Britain Nepal Otology Service has been providing a community-based ear programme in Western Nepal since 2006.…”

Section: Introductionmentioning

confidence: 99%

How chronic ear disease affects quality of life: a qualitative research study in Nepal

Cates

Jashek‐Ahmed

Bohara³

et al. 2022

J. Laryngol. Otol.

View full text Add to dashboard Cite

Objective Hearing loss is the third leading cause globally for ‘years lived with disability’. The majority of those affected live in low and middle-income countries. Method This study used qualitative research methods to explore the impact of chronic ear disease on quality of life in Nepal. Twenty face-to-face semi-structured interviews were conducted during a visiting ear camp at the Britain Nepal Otology Service Ear Care Centre in Nepal. Interviews were recorded, transcribed and translated with thematic content analysis performed manually by two researchers. Results Chronic ear disease has a significant impact on social interactions, emotional well-being and functionality. Barriers to surgery are cost, accessibility, reputation, gender and fear of complications. Conclusion This study provided valuable new insight into patient perspectives on living with chronic ear disease in Nepal. Patients with chronic ear disease experience discrimination and stigmatisation across all levels of personal, family and social life, with their function across all domains being directly limited by symptoms.

show abstract

“…In addition to experiencing stigma and discrimination, evidence suggests that children with unmanaged hearing loss have lower levels of literacy and poorer educational attainment compared to children with normal hearing [2,3,4,5]. This, in turn, can limit employment opportunities later in life and increase the risk of poverty [6,7].…”

Section: Introductionmentioning

confidence: 99%

An Intervention to Improve Uptake of Referrals for Children with Ear Disease or Hearing Loss in Thyolo District, Malawi: Acceptability and Feasibility

Baum

Mulwafu

Phiri

et al. 2019

IJERPH

View full text Add to dashboard Cite

(1) Introduction: Poor uptake of referral for ear and hearing services in Malawi has been demonstrated in previous research. A multi-component educational intervention was developed to address poor uptake. The aim of this study was to explore the feasibility and acceptability of the intervention. In addition, we aimed to provide a case study of an intervention development and feasibility testing process in preparation for a potential randomised trial. (2) Methods: The intervention included three components: (i) an information booklet; (ii) personalised counselling by a community health worker and an expert mother; (iii) a text message reminder. To assess feasibility, the counselling and information booklet were provided for caregivers of eligible children (<18 years) at ear and hearing outreach camps in Thyolo. Text message reminders were sent to caregivers after the camps. After 4 weeks, all caregivers were revisited and completed a structured questionnaire and a subset were interviewed in-depth. (3) Results: 30 children were recruited, and 53% took up the referral. Interviews found counselling with a booklet was acceptable. It provided motivation, enabled a two-way conversation, and helped dispel fear. It allowed information to be shared with social networks, initiating conversations about raising funds. The text message reminder was reported to be a valued prompt. Challenges to feasibility included low network coverage, and time needed for counselling. Residual barriers included the costs of transportation. The cost was £3.70/camp. (4) Conclusions: The study found that counselling with an information booklet was feasible and acceptable. The process of testing the feasibility of the intervention identified some adaptations to the intervention components and delivery which could be implemented before it is tested in a trial. This study highlighted the value of the feasibility testing process.

show abstract

The impact of ear disease and hearing impairment on the lives of Nepali patients in Pokhara: a qualitative study

Abstract: This research suggests that a 'stigma cycle' has developed and that participants are being trapped within it. This impacts adversely upon individuals' personal, social and economic development, limiting the human capital available to Nepal.

Cited by 7 publications

References 23 publications

Bullying and Children who are Deaf or Hard‐of‐hearing: A Scoping Review

Bullying and Children who are Deaf or Hard‐of‐hearing: A Scoping Review

How chronic ear disease affects quality of life: a qualitative research study in Nepal

An Intervention to Improve Uptake of Referrals for Children with Ear Disease or Hearing Loss in Thyolo District, Malawi: Acceptability and Feasibility

Contact Info

Product

Resources

About