The Impact of Fetal Alcohol Spectrum Disorders on Families: Evaluation of a Family Intervention Program

Leenaars, Lindsey; Denys, Kennedy; Henneveld, Dorothy; Rasmussen, Carmen

doi:10.1007/s10597-011-9425-6

Cited by 40 publications

(22 citation statements)

References 9 publications

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“…Positive effects have so far been demonstrated in studies utilizing supportive behavioral consultation with parents [52,134], socio-cognitive habilitation to improve math skills [135], language and literacy training [136], rehearsal training to improve working memory [137], computer-based interventions to increase fire and street safety skills [72] and attentional control [138], parent-assisted social skills intervention [139], and self-regulation training [140,141].…”

Section: Treatmentmentioning

confidence: 99%

Neurobehavioral Disorder Associated with Prenatal Alcohol Exposure (ND-PAE): Proposed DSM-5 Diagnosis

Kable

O’Connor

Olson

et al. 2015

Child Psychiatry Hum Dev

107

101

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Over the past 40 years, a significant body of animal and human research has documented the teratogenic effects of prenatal alcohol exposure (PAE). Neurobehavioral Disorder associated with PAE is proposed as a new clarifying term, intended to encompass the neurodevelopmental and mental health symptoms associated with PAE. Defining this disorder is a necessary step to adequately characterize these symptoms and allow clinical assessment not possible using existing physically-based diagnostic schemes. Without appropriate diagnostic guidelines, affected individuals are frequently misdiagnosed and treated inappropriately (often to their considerable detriment) by mental health, educational, and criminal justice systems. Three core areas of deficits identified from the available research, including neurocognitive, self-regulation, and adaptive functioning impairments, are discussed and information regarding associated features and disorders, prevalence, course, familial patterns, differential diagnosis, and treatment of the proposed disorder are also provided.

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Section: Treatmentmentioning

confidence: 99%

Neurobehavioral Disorder Associated with Prenatal Alcohol Exposure (ND-PAE): Proposed DSM-5 Diagnosis

Kable

O’Connor

Olson

et al. 2015

Child Psychiatry Hum Dev

107

101

View full text Add to dashboard Cite

show abstract

“…Pre-post data from parent training workshops suggests that the content is beneficial and acceptable for families regardless of the format in which it is delivered (e.g., in person workshops, online materials; [37–40]). Moderate-level intensity interventions have involved individual family goal-based mentoring [41] or group-based psychoeducation and support (Study 4 in [42]). Both of these interventions have yielded pre-post change on targeted outcomes and were satisfactory to families.…”

Section: Evidence From Empirically Studied Interventionsmentioning

confidence: 99%

Positive Behavioral Interventions and Family Support for Fetal Alcohol Spectrum Disorders

Petrenko

2015

Curr Dev Disord Rep

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Although the scientific community has recognized the effects of prenatal alcohol exposure on development for over 40 years, the empirical study of positive behavioral interventions and family support programs for people with fetal alcohol spectrum disorders (FASD) has only just emerged over the last 10 to 15 years. In this time, dedicated researchers have developed innovative programs that have generally produced large effects and have been acceptable to children with FASD and their families. This body of work demonstrates that children with FASD can benefit from interventions that are appropriately tailored to their neurodevelopmental disabilities. Despite this progress, much work lies ahead to meet the significant needs of people with FASD. This review evaluates available sources of information, including theoretical and Lived Experience models, empirical evidence on existing programs, and best practice guidelines, to guide future research priorities and clinical practice. Three priorities for future intervention research are offered.

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“…Leenaars, Denys, Henneveld, and Rasmussen [64] examined the efficacy of Coaching Families [n=186], a mentoring program for caregivers that provides support, education, advocacy, and referrals to families of children diagnosed with FASD. A significant decrease in reported family needs and caregiver stress, as well as an increase in goal-achievement was found from pre-to post-program.…”

Section: Mentoring Supportsmentioning

confidence: 99%

Interventions for Fetal Alcohol Spectrum Disorder: Meeting Needs Across the Lifespan

Pei¹,

Flannigan²,

Walls³

et al. 2016

Int J Neurorehabilitation Eng

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Background: Fetal Alcohol Spectrum Disorder (FASD) is a complicated disability resulting in a diverse, highneeds population for whom intervention is critical to optimize functional competence and reduce the emergence of adverse outcomes. Researchers have been evaluating intervention efforts for FASD to inform practice and policy decision-making. Objective: The current review provides a synopsis of the current state of evidence for intervention research in FASD, with consideration of how our growing understanding of the unique needs of individuals with FASD might inform future intervention initiatives. Method: A comprehensive literature review was conducted across a number of databases using multiple search terms linking FASD and intervention. Results: Existing evidence-based interventions are limited and focus predominantly on the school-aged population, thereby neglecting adolescents and adults. Future research efforts are needed to support individuals with FASD across the entire lifespan, particularly during transitions and for individuals involved in the legal system. Conclusion: As the field of FASD continues to grow, so must the quality and quantity of intervention research. It is through cross-discipline intervention research efforts that the evidence supporting best practices will be established, and policies can be implemented to reflect best uses of available funds to support this population.

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The Impact of Fetal Alcohol Spectrum Disorders on Families: Evaluation of a Family Intervention Program

Cited by 40 publications

References 9 publications

Neurobehavioral Disorder Associated with Prenatal Alcohol Exposure (ND-PAE): Proposed DSM-5 Diagnosis

Neurobehavioral Disorder Associated with Prenatal Alcohol Exposure (ND-PAE): Proposed DSM-5 Diagnosis

Positive Behavioral Interventions and Family Support for Fetal Alcohol Spectrum Disorders

Interventions for Fetal Alcohol Spectrum Disorder: Meeting Needs Across the Lifespan

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